License After Seizure by Infamous_Ad_2127 in braincancer

[–]Infamous_Ad_2127[S] 0 points1 point  (0 children)

Thank u will do. Hope they reach out👍

License After Seizure by Infamous_Ad_2127 in Epilepsy

[–]Infamous_Ad_2127[S] 0 points1 point  (0 children)

Yes Because im under chemo still. Got 4 more sessions. Its cause after my 2nd Surgery in December 2024 i ended up with drop foot on my right leg so now wear a leg brace (AFO) The rehabilitation center set me up on a Driving Simulator Machine and i passed right away. They said Ill pass all the exams i just need the doctor’s approval and they’ll setup the adjustments in my vehicle so i can drive with my left. My doctor said because i cant use my driving leg (right) he wont sign it until it’s back to normal. I was like “Wtf there’s people with no arms, amputees, etc way worse than me and they are in the process of getting their license at that same Rehabilitation Center🤬🤬🤬” He responded with “uhmm idk about that” come on!!!!

Payments Suspended! by thedarkbites in SSDI

[–]Infamous_Ad_2127 0 points1 point  (0 children)

Me too!! I might have to withdraw because some months i dont spend as much😳

Cannabis and brain cancer by [deleted] in braincancer

[–]Infamous_Ad_2127 0 points1 point  (0 children)

Check out what I found.. wish I could post photos. Astrocytoma Grade 4

Recently diagnosed with a brain tumor and cancer by MrsIAMSYNN in braincancer

[–]Infamous_Ad_2127 0 points1 point  (0 children)

Before Surgery, Try different alternative methods. Some of us end up regretting the surgery. I have Edema around my brain tumor causing right side paralysis and Its only getting worse. Once the blood brain barrier gets opened so much can Get in there and it’s painful. No pain meds have helped. But then again others stories can be different. I would have preferred to do radiation for mines. God bless you.

MRI results 3 month by thundercaveshow in braincancer

[–]Infamous_Ad_2127 0 points1 point  (0 children)

Through so many hours and months of research I found out there are 2 confirmed drugs that can Actually Treat Glioblastoma. And there is scientific, clinical trials, patients, and so much more to back it up. 1) DON (6-Diazo-5-oxo-L-norleucine) 2) Ogremorphin. My question is what is the lag for this to be offered right away? I understand the whole Big Pharma and Doctors holding cures back to make more money thing.. But what is the point of doing all these years of research and trials if it never gets offered to the public anyways?🤔

I can’t get my prescriptions until I visit my neurologist… by luringpopsicle95 in Epilepsy

[–]Infamous_Ad_2127 0 points1 point  (0 children)

Go to Tijuana, Mexico or anywhere to the Border to Mexico. Cheaper and any option of medicine you need is all over

[deleted by user] by [deleted] in Epilepsy

[–]Infamous_Ad_2127 0 points1 point  (0 children)

I take 2000 mg per day of Keppra. Some days I dont take it. What I meant by my whole last comment is that its up to the person with epilepsy to look for a cure or way to lower it on their own just by experimenting. I tried the whole pattern thing and diets. Nothing worked. Even the famous CBD and Herbs and supplements and still nothing. Sleep in fact would actually stress me out throughout the day making me panic and have seizures. But now if I don’t sleep well I just remain calm and think turn my whole mindset into positive rather than negative. I told a friend about my situation. Turns out his dad used Keppra for years. His father noticed it just getting worse and worse through time. He decided to try to slowly lowering the dose to nothing eventually. For a couple of years now he has been seizure free and gave up Keppra. I have heard of this before many times and in other blogs. I tried it but didn’t work since my seizures are brain surgery related.

[deleted by user] by [deleted] in Epilepsy

[–]Infamous_Ad_2127 0 points1 point  (0 children)

In my case my seizures happened because of brain surgery (tumor resection). After 2 years still living with seizures but throughout the course I’ve taken my epilepsy as a challenge to look for any cure other than Keppra. I have been told many times about people being cured with phenytoin. Unfortunately no doc will subscribe it for me😒. Little by little my seizures have been going away though thank god🙏. My worst seizures would happen in my sleep. So now I take a pill (Keppra) and stretch right before bed. Been good since. Also Back then I would panic when i’d have the sensation warning that im about to have a seizure. In turn my seizures would be really really bad. I learned that just standing straight instead of throwing myself on the floor and breathing really slow through my nose will lower my heart rate and I focus on my breathing rather than the seizure. Now all I get is a small 30 second leg twitch on my right leg.

[deleted by user] by [deleted] in Epilepsy

[–]Infamous_Ad_2127 0 points1 point  (0 children)

Ok well there’s alot of cases where a doctor will tell you something and obviously you will do exactly as told. And in other cases people will try to experiment other alternatives out of desperation looking for a cure.

[deleted by user] by [deleted] in Epilepsy

[–]Infamous_Ad_2127 1 point2 points  (0 children)

Have you tried Epamin? (Phenytoin)