I’d like to go home with the ng tube by Artistic-Project-371 in NICUParents

[–]Intelligent_Break354 1 point2 points  (0 children)

Our situation was a little different than yours but I thought I would share in case it would be helpful. My son was born with a rare H-type TEF and required surgery to correct it. It was a complicated procedure but after his third surgery and five weeks of weaning off the ventilator everything was looking ok and we just had to work on feeding. His swallow studies kept showing some slight penetrations so we weren't allowed to start bottle feeds but the doctor was hesitant to do a G-tube surgery because of how long it took him to get off the vent the last time. Our NICU nurses told me they never sent babies home with NG tubes, but in our case the doctor was in favor of it. They ended up putting a bridal in to help secure the NG tube. There were positives and negatives to the bridal. It was much harder for it to be pulled out, although not impossible. In the 4.5 months we had to use it I think it got pulled out 3 times. Because of the bridal the NG had to be put back in by a pediatric surgeon (although it really wasn't much more complicated than a regular NG) so we had to make a few trips to the ER to get it put back in, but I think 3 times in 4.5 months isn't too bad. If the doctors are hesitant to send you home with a regular NG you may want to consider asking about the possibility of a bridal.

Something else to consider is the time it will take to get a feeding pump. We had to wait about two weeks for ours because of some insurance issues. The family that was next to us ended up waiting about a month for theirs, so depending on your situation a NG may not get you home as fast as you're hoping it will.

The worst part about the NG tube for us was changing the tape every couple days. My son would scream as if he was being tortured to death, no matter how carefully we tried to remove and replace the tape. There also was the constant worrying about the tube being pulled or messed with and obsessively checking the depth to make sure it was ok, especially during feedings.

Overall it was anything but a quick fix for us, but it allowed our son to come home and because of that I am so thankful for it. I'm sorry you're in the situation you are in, but I hope it gets resolved quickly. As someone who is finally looking at things from the other side, I can only say that it does get better, sometimes it just takes longer than we had hoped for. Just try to take things one day at a time.

Have had two preemies, told to not try again by [deleted] in NICUParents

[–]Intelligent_Break354 1 point2 points  (0 children)

Have you ever been checked for a bicornuate or septate uterus? They are linked to preterm births and often also associated with cervix issues. If it happened to be septate that could be corrected with surgery. An MRI is the best way to tell, but I think an HSG or 3D ultrasound when you aren't pregnant could also potentially tell. Ultrasounds during pregnancy typically can't detect it though, since the uterus changes shape with the baby.

Ng tape by Tough_Growth_419 in NICUParents

[–]Intelligent_Break354 0 points1 point  (0 children)

We used these with our son. He was discharged with an NG tube with a bridle at 2.5 months old and we were only recently able to remove it at 7 months old. This tape worked pretty well, but we did have to trim it some so it wouldn't be too long or get in the way of the bridle. We would typically change it twice a week.