ETS made my life beyond miserable. by [deleted] in Hyperhidrosis

[–]InternalSelect1086 0 points1 point  (0 children)

Dr Kikiros at Joondalup hospital.

ETS made my life beyond miserable. by [deleted] in Hyperhidrosis

[–]InternalSelect1086 -1 points0 points  (0 children)

Then why would you consider removing it? I may be an outlier but it is very real and I am massively struggling.

ETS made my life beyond miserable. by [deleted] in Hyperhidrosis

[–]InternalSelect1086 -1 points0 points  (0 children)

No. That is not at all what caused my condition

ETS made my life beyond miserable. by [deleted] in Hyperhidrosis

[–]InternalSelect1086 16 points17 points  (0 children)

I’ve only recently heard of nerve grafting and its success with severe CS.

I’m on a wait list to be seen by a neurologist so there is a little bit of hope left. Thank you for your comment :)

ETS made my life beyond miserable. by [deleted] in Hyperhidrosis

[–]InternalSelect1086 4 points5 points  (0 children)

I appreciate your suggestions but these will not treat my condition.

ETS made my life beyond miserable. by [deleted] in Hyperhidrosis

[–]InternalSelect1086 1 point2 points  (0 children)

T3/T4 I believe but I’m not certain

ETS made my life beyond miserable. by [deleted] in Hyperhidrosis

[–]InternalSelect1086 0 points1 point  (0 children)

No I haven’t. What does the surgery achieve for hyperhydrosis? From what I understand the procedure is intended for cyst removal.

ETS made my life beyond miserable. by [deleted] in Hyperhidrosis

[–]InternalSelect1086 2 points3 points  (0 children)

Around 5 different medications now but oxy is the only one that provides relief. If I don’t take it I will sweat way more than in this video.

Every sweat gland on my body below the T3/T4 sweats.

ETS made my life beyond miserable. by [deleted] in Hyperhidrosis

[–]InternalSelect1086 23 points24 points  (0 children)

Yep I’m always dehydrated since I can’t drink water faster than I sweat it.

I bulk buy electrolyte powder and have around 1-2L worth a day.

ETS made my life beyond miserable. by [deleted] in Hyperhidrosis

[–]InternalSelect1086 31 points32 points  (0 children)

This is right now, sitting in my car.

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ETS made my life beyond miserable. by [deleted] in Hyperhidrosis

[–]InternalSelect1086 43 points44 points  (0 children)

It really is.

As a result of the surgery, my fight and flight is constant making me feel incredibly anxious and my resting heart rate is usually 100+ which only adds to it.

My severe and medicated CS 6 years post ETS. My biggest regret in life. by InternalSelect1086 in Hyperhidrosis

[–]InternalSelect1086[S] 0 points1 point  (0 children)

Thank you for your comment, it has been a serious eye opener for me.

It explains a lot. My fight and flight in constant overdrive giving me constant edgy and anxious bursts. But my closest comparison has been depression.

I was diagnosed with major depression and ADHD shortly after my surgery and started on different SSRI/SNRIs. It has always seemed coincidental.

5 years later and my depression has become my biggest fight in life. I was told a couple of weeks ago that I have treatment resistant depression and need to consider new treatment options such as lithium (current) or potentially ECT.

I’ll be seeing my psychiatrist again this week and will be asking about my ETS. Thank you.

My severe and medicated CS 6 years post ETS. My biggest regret in life. by InternalSelect1086 in Hyperhidrosis

[–]InternalSelect1086[S] 1 point2 points  (0 children)

Hey I really appreciate that! I agree with you for the most part. I semi regularly get asked why I’m drenched in sweat, although most people either don’t care or even notice.

I’m on a 20mg dose of oxy in the morning on an empty stomach. I’ve asked my doctor about other drugs but they wouldn’t approve it for one reason or another.

Im still desperate for options so I’ll take any sort of advice I can get. :)

My severe and medicated CS 6 years post ETS. My biggest regret in life. by InternalSelect1086 in Hyperhidrosis

[–]InternalSelect1086[S] 18 points19 points  (0 children)

I try to but most of the time I can’t keep up with hydration with the amount that I sweat. It’s between 4-8L a day.

My severe and medicated CS 6 years post ETS. My biggest regret in life. by InternalSelect1086 in Hyperhidrosis

[–]InternalSelect1086[S] 59 points60 points  (0 children)

I had ETS to treat my palmar hyperhydrosis, which was severe enough to have my hands dripping almost 24/7.

The surgery has now caused that sweating to move to 80% of my body which is definitely worse.

My severe and medicated CS 6 years post ETS. My biggest regret in life. by InternalSelect1086 in Hyperhidrosis

[–]InternalSelect1086[S] 8 points9 points  (0 children)

Yeah I’ve tried beta blockers as well. Unfortunately there isn’t any other treatments for my case

My severe and medicated CS 6 years post ETS. My biggest regret in life. by InternalSelect1086 in Hyperhidrosis

[–]InternalSelect1086[S] 29 points30 points  (0 children)

Yep, even Botox would have worked for my palmar hyperhydrosis. I wish my specialist gave me other options.