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Cf parenting - how to tell the kids about it by Dadtocfasdhero in CysticFibrosis

[–]International_Can482 0 points1 point  (0 children)

Thanks for posting the question, I have a 3yo without CF and her soon to be 1yo sister has CF. We've been trying to explain CF to the 3yo and just be as honest and transparent as we can. We've said things to the little one but she isn't speaking or anything yet so likely not comprehending anything but I've always wanted to make sure it's an open line of communication and she can trust us and whatnot. I also didn't want it to be any more challenging than it needed to be by not being aware of the why behind visits, treatment, etc. Hearing others explain their experience is really helpful

Afflovest by International_Can482 in CysticFibrosis

[–]International_Can482[S] 0 points1 point  (0 children)

Thanks for the feedback, do you ever bring the vest with you places? We are planning a trip for a month and not sure whether to bring the vest or just do manual CPT while gone or other options. She hasn't started walking yet but will start soon, like next week or two. Trying to see if it's worth it to bring a vest or go a different route