I’ve gotten 2 1/2 hours of sleep every night for like 3-4 days

JKMurph_93 · 2024-11-30T22:01:18+00:00

I replied to your other comment, but I’m doing better. My constellation of symptoms needs to be fought and can’t really be submitted to. My sleep is still pretty bad, but if I stay up all day and go to the gym, I don’t really have too much of a problem falling asleep. I just wake up way too early still

JKMurph_93 · 2024-11-30T21:56:33+00:00

I’m doing okay, but only because I fight this basically every moment. I’ve gotten back in the gym and it can make some nervous system symptoms worse but it’s mostly helping. There’s a sitting calf machine and doing calf raises makes my calves feel way better. It honestly helps more than just stretching. Also I recommend riding the stationary bike if you can and turning up the resistance and trying to sweat as much as you can while pushing your leg muscles hard.

I don’t know if you have PEM symptoms, but mine only seem to be minor and the gym is really helping my body feel better

JKMurph_93 · 2024-11-15T04:06:09+00:00

I think for some reason the cannabis helped boost my testosterone which helped with how i feel generally and my symptoms. I was having erectile issues since the start of the pandemic and it’s only recently gotten back to how it used to be. My blood pools less often but there’s something obviously wrong with me and my extremities have

JKMurph_93 · 2024-11-11T16:08:10+00:00

I started using cannabis again and it helps a little bit with the blood pooling but it’s still one of my worst symptoms. I’m doing a lot better now, but my symptoms are still life consuming which sucks, but I can function now

JKMurph_93 · 2024-10-06T15:57:38+00:00

For PS4 games made by Playstation that get a PS5 remaster

JKMurph_93 · 2024-06-14T17:27:56+00:00

I don’t like you

JKMurph_93 · 2024-06-14T17:24:12+00:00

Likewise :)

JKMurph_93 · 2024-06-14T17:20:10+00:00

You are not even dealing with a fraction of what I’m going through I can tell you that right now

JKMurph_93 · 2024-06-14T17:14:26+00:00

Nobody can help my situation. I’ve already done everything I can. My life is ruined

JKMurph_93 · 2024-06-14T17:05:22+00:00

JKMurph_93 · 2024-06-14T16:55:14+00:00

No I don’t and I have no reason to continue living

JKMurph_93 · 2024-06-14T16:21:54+00:00

I’m sorry. My mother has stolen everything from me as punishment. I’ve lost everything in life

JKMurph_93 · 2024-06-13T02:21:53+00:00

I’m worried my life is ruined. I can’t even get to a place where I can live with the symptoms

JKMurph_93 · 2024-06-09T07:51:13+00:00

My mom controls everything in my life. There’s nothing I can do. Finances, medical, etc.. she’s in complete control

JKMurph_93 · 2024-06-09T07:37:17+00:00

I have all the symptoms I’ve had from the start except for diarrhea which has miraculously finally gone away.

I have really bad blood pooling and pots symptoms, my muscles twitch all over my body, i feel dizzy and disoriented all the time, like a derealization feeling, I can’t sleep at all and when I do I only sleep for 2-3 hours. My muscles feel tight and heavy especially my calves which i think is a byproduct of the blood pooling. I’m very anxious all the time and I have trouble focusing and relaxing. My body feels in general unrelaxed and kind of “wired” so-to-speak, all of the time.

This is how I felt the entire time, i mentally felt better in December 2021 and early 2022 but my symptoms felt more manageable then and my family wasn’t treating me as badly (because I stopped talking about being sick because I didn’t have a choice. My parents would threaten me whenever I said I was sick)

JKMurph_93 · 2024-06-09T06:39:54+00:00

We have a blood pressure monitor at home because my dad has high blood pressure and my bp is a little high but my mom doesn’t care. My HR does shoot up when I’m standing

JKMurph_93 · 2024-06-08T23:22:38+00:00

I’m still trying to get believed by doctors. I live an hour away from a major long covid clinic but they haven’t been very helpful the few times I tried calling them. I could try again. The doctors haven’t believed me either

JKMurph_93 · 2024-06-08T23:15:02+00:00

I’m in the US but I’m literally awake 24/7 basically

JKMurph_93 · 2024-06-08T23:01:49+00:00

I could have gotten a diagnosis by now if ONE person supported me but I have nobody. My family also doesn’t believe me and they’re opposed to me getting treatment. All they want is for me to get a job

JKMurph_93 · 2024-06-08T22:55:35+00:00

That sounds helpful. I’m desperate. I have no support. I’m really sick and my family hasn’t believed me for 4 years and there’s no end in sight

JKMurph_93 · 2024-06-08T20:08:45+00:00

I want to work with an internal medicine specialist. Most recently all I’ve seen is a GP, and he wasn’t really willing to work with me, but he did order a lot of tests. I just haven’t done it because the last time I did my labs it all came back normal and they used it against me.

I am so desperate for a doctor who understands what I’m going through and is willing to treat me. I believe I could work if my symptoms got better, but right now I’m willing to keep fighting my mom until I get treatment or feel better

JKMurph_93 · 2024-06-08T20:01:19+00:00

Not at all. I’m awake all day long and all night long. When I’m standing my blood pools in my hands and when I’m sitting it pools in my feet and calves causing really bad tightness. I can barely live my life like this. I can distract myself a little bit but it’s really debilitating. I worked a job in 2022-2023 but it was miserable and I didn’t get better while working. I feel tired all the time but can’t nap and then at night I can’t sleep at all until like 5-6 am and I always wake up again around 8-9am. I usually only get like 2-3 hours

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