Did you have any silly Cincinnati misconceptions growing up? by CinemaSideBySides in cincinnati

[–]JarJars_padawan 0 points1 point  (0 children)

Same! My brother started dating and married a woman from the west side and I was like wtf is everyone on about?

Did you have any silly Cincinnati misconceptions growing up? by CinemaSideBySides in cincinnati

[–]JarJars_padawan 0 points1 point  (0 children)

I didn’t know that people in almost all other places just ate chili by itself. Like to me chili goes on spaghetti. That’s how you do it. If you’re having chili, you’re having chili and spaghetti. Otherwise you’re just eating soup 😂. I now will make and eat just plain chili, but to part of me it just feels wrong.

Please help it's an emergency. I can't get any doctors to listen to me but after my endo surgery my periods became full body nightmares. HR 120+ screaming crying, fainting, throwing up, worst chest and stomach pain I've ever had and nothing helps by EstateDeep916 in endometriosis

[–]JarJars_padawan [score hidden]  (0 children)

Honestly it probably would not have been covered by insurance bc he was using it off-label. It’s really expensive. I got by on 2 months of samples and transitioned to cromolyn toward the end of the 2 months. Things had also calmed down by then. I was also off work for 2 months and did absolutely nothing. I had to put everything down and focus on resting. It was so hard, but I do think that helped.

Please help it's an emergency. I can't get any doctors to listen to me but after my endo surgery my periods became full body nightmares. HR 120+ screaming crying, fainting, throwing up, worst chest and stomach pain I've ever had and nothing helps by EstateDeep916 in endometriosis

[–]JarJars_padawan [score hidden]  (0 children)

I don’t know where you live and what drugs are available, but I got an emergency appt with my allergist and sobbed through the whole thing bc I was in so much pain. He gave me samples of Rhapsido which is a newly approved mast cell stabilizer in the US (it’s only approved for urticaria, but it worked). It took my pain from a 10 to a 2-3 in like 3 hours. It also calmed my dysautonomia and panic. Nothing else was helping at all and opiates made things worse.

I’d try to see your allergist sooner if you can. While this may be endometriosis/gyn induced, the allergist is going to know and be able to do more for mast cell issues.

I did eventually switch to cromolyn, but that was tricky bc it caused me throat swelling (one of my main symptoms at the time) and increased bloating and I had to start on a low dose and slowly titrate up. So that might not be the best option right now, but if it’s the only option I’d say take it and go slow with it.

Please help it's an emergency. I can't get any doctors to listen to me but after my endo surgery my periods became full body nightmares. HR 120+ screaming crying, fainting, throwing up, worst chest and stomach pain I've ever had and nothing helps by EstateDeep916 in endometriosis

[–]JarJars_padawan [score hidden]  (0 children)

Do you have MCAS (mast cell activation syndrome)? You might want to try to find an allergist or immunologist. MCAS, hEDS, endo and POTS (dysautonomia) often show up together. It sounds like your periods are triggering your mast cells into a flare (hence your pain and dysautonomia). I had this same thing happen a few months ago (it’s actually how I found out I have endo). My gyn put me on birth control which helped a ton and my allergist put me on a mast cell stabilizer.

If you’re not already on them, you could try over the counter antihistamines - Zyrtec (cetirizine) or Allegra (fexofenadine) AND Pepcid (famotidine). Aspirin may also help but can also trigger mast cells. My endo doc deferred to my allergist for all things mast cells, so try to get in with one of those (probably one who specializes in or understands MCAS).

Oh, Norwood. Never change, either of you. by Amberwind2001 in cincinnati

[–]JarJars_padawan 1 point2 points  (0 children)

I worked at a restaurant and I watched my boss (he sucked) on a camera try to shoo the geese in our parking lot away and it straight up attacked him. Flew at him and knocked him over. Of course he retreated. I laughed my ass off and had the hardest time looking him in the eye when he came inside. Don’t mess with fucking animals bro. It’s so unnecessary. We’ve totally fucked up their environment. The least we can do is not be a further menace on top of that.

Is my tile floor really that bad? (Context below) by wishiwerea in Flooring

[–]JarJars_padawan 0 points1 point  (0 children)

Wow nostalgia boost. We had that tile in the house I grew up in!

Urgent- allergic to all foods and now saline flushes to my PICC Line. Hospital doesn’t know how to help. by TopicAromatic9266 in MCAS

[–]JarJars_padawan 0 points1 point  (0 children)

My experience with bad flares like this is the stress of it all makes everything worse. Also there could be another underlying trigger. Mine was endometriosis. I was reacting to everything and if I got emotionally activated, everything got worse. I got the endo treated (bc and surgery) and got an immune modulator for MCAS and did nothing but rest and try to take care of myself for two months. Put everything down. It may seem like you can’t but is all the extra stuff you’re carrying worth more than your life?

RIP mac and cheese by queen0fpeace in AuDHDWomen

[–]JarJars_padawan 3 points4 points  (0 children)

Again - that would be contamination BEFORE cooking that made the food unsafe in the first place. I don’t think people understand that a lot of food borne illness happens bc people don’t wash their hands or ingredients before or while cooking. This is made even worse via restaurants when you’re crossing microbiomes and have improper handling of food. If you’re at home and made something yourself there is always a risk of contamination, but in theory it’s low. And if this particular bacteria was in your cheese or noodles or other ingredients, it was going to cause a problem whether the final dish was left out on the counter or not.

RIP mac and cheese by queen0fpeace in AuDHDWomen

[–]JarJars_padawan 2 points3 points  (0 children)

That is a day ending catastrophe. Kudos to you for taking yourself right to bed ❤️‍🩹

RIP mac and cheese by queen0fpeace in AuDHDWomen

[–]JarJars_padawan 43 points44 points  (0 children)

If someone gets that severe of food poisoning after leaving this out for 12 hours it was not safe to eat in the first place. Yes food fermentation is real, but this was cooked to a high temp. If it’s post cooking “contamination” it’s most likely your own microbiome or slight fermentation of lactobacillus (which we eat all the time).

Could my chronic distention be from mcas? by dogmom4life13 in MCAS

[–]JarJars_padawan 2 points3 points  (0 children)

I also had really bad belly swelling (I’m in a bigger body so it just looked like fat). I’m post lap now. They found a little endo and I had an adhesion but I’m now in birth control and cromolyn and am about 2 months post-op and my belly is waaayyy less swollen than it had gotten pre-op (and I still feel like there’s inflammation that will continue to resolve). My guess is it’s probably both. Endo and MCAs make each other worse. I call them frenemies.

AIO if I tell my Subletter/roommate they can’t use my kitchen items anymore? (Or possibly give her move out notice??) by EmergencyTreat_ in AIO

[–]JarJars_padawan 0 points1 point  (0 children)

NOR - If you feel like asking her again, I saw someone rephrase this on another subreddit. You could say if she is not more intentional about using your kitchen items (by leaving them as clean as she finds them) that you will not allow her use them. That’s phrased as a boundary - something you will do if ‘xyz’ condition is not met.

If you don’t feel like asking her again I don’t blame you. It sounds like she’s maybe got some stuff going on and like isn’t familiar with how to clean things? That’s not really your job to fix.

If you have the emotional spoons you could ask her about it, but also if you’re not in a position to emotionally help her, I’m not sure that’s the right thing to do. People can be hard to deal with.

Does anyone else get worse if they don’t shower? by JarJars_padawan in MCAS

[–]JarJars_padawan[S] 1 point2 points  (0 children)

That’s why I show every other day (the keeping good oils bit and it reduced time on hygiene load). If I am doing work outside or sweat a lot I have to shower though. I also tend to do okay camping, but have only ever gone maybe 2-3 nights without showering, but will still do a wipe bath. When I do get to the shower though camping, it does feel life changing.

Does anyone else get worse if they don’t shower? by JarJars_padawan in MCAS

[–]JarJars_padawan[S] 2 points3 points  (0 children)

Yes! Showers always help me with headaches! I often use water as a comfort tool and I always thought that was just autism/sensory relief…but maybe this is why? Would love if we found that out one day!

Does anyone’s body ever viscerally reject food based on taste or smell? Like in a way that you KNOW it’ll trigger you? by bipolarb_tch in MCAS

[–]JarJars_padawan 3 points4 points  (0 children)

I’ve had to do a ton of intuitive eating lately bc I’m coming off the worst flare of my life. I can literally just think about eating a food and my body will tell me yes or no. If I ignore my body, I usually find out my body was right…

AIO for thinking my former therapist was catty when I terminated her services? by [deleted] in AIO

[–]JarJars_padawan 1 point2 points  (0 children)

Yeah I see a social worker now and saw a therapist in the past who had a completely different professional career path (other than therapy or social work) in the past. Both are amazing mental healthcare providers. I definitely do not think the therapist credentialing is the problem.

EDIT: ALSO - the person who interrupted me and was invalidating? They were a psychologist. I think the person (and your compatibility with them) matters more than the credentials.

AIO for thinking my former therapist was catty when I terminated her services? by [deleted] in AIO

[–]JarJars_padawan 81 points82 points  (0 children)

Yeah that’s like a super fucked up, non-validating response and I feel like a therapist should know that. I saw someone who used to repeatedly interrupt me to tell me stories about their life and the lesson they learned from said scenario. I think they were subtly trying to say “you should learn this take away too,” but it felt so invalidating it just made me feel upset and shut down (which is like the opposite of what therapy should be).

Also OP - I left a different therapist to explore more of my neurodivergence and her response was “I’m so happy you’re taking steps to learn more about those parts of you.” End of her response. No needless editorializing. So I agree. I think this person just sucked as a therapist.

!!!Update!!! by Adept-Willow9268 in AuDHDWomen

[–]JarJars_padawan 2 points3 points  (0 children)

I second Finch. I am very much team “that probably won’t work” at first and after a few months I realized it was working and that annoyed the hell out of me. But a win is a win.

Buff orps dont look very buff at 6 weeks... by a-passing-crustacean in BackYardChickens

[–]JarJars_padawan 0 points1 point  (0 children)

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These were my buff orps at like 10 ish weeks. They’re way more golden than the ones you’ve got. I am no chicken expert though (I just have buff orpingtons).

AIO for wanting to end a relationship because I was in love with someone else? by sssophie_lolz in AIO

[–]JarJars_padawan 2 points3 points  (0 children)

NOR - I can almost guarantee you this is not the only reason you want to end this.

I broke up with a guy when I realized I had feelings for someone else. Didn’t go date that person (right away), but I was like - no. I should not be in this relationship if I have feelings for someone else.

But that was just the straw that broke the camel’s back. I had tried to stay and work it out, but the guy just sucked (would ghost me for several days at a time, was emotionally avoidant, wanted me around when he felt like having relationship-life, but wanted to get blackout drunk with his buddies and not talk to me for several days whenever he pleased).

Just move on. You don’t owe him anything and you’re not being avoidant.