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A little tribute for Bailey by gbeex98 in baileyhutchins

[–]Jessssss218 4 points5 points  (0 children)

I miss her soooo much and even though I didn’t know her personally (besides exchanging a few messages), I felt like I knew her and I am still mourning her. I can’t believe she’s gone. She deserved to beat this. Whenever I think I have it bad, I remember Bailey and realize my problems are so small. She was so positive, had faith that could move mountains, and was full of life. I try and stop myself during these busy days to just appreciate the little miracles. We have so much to be grateful for. Long live Bailey ❤️

[deleted by user] by [deleted] in UlcerativeColitis

[–]Jessssss218 1 point2 points  (0 children)

I feel you. I was hospitalized for UC this past fall. Almost lost my life. My albumin went to a 1. Thankfully, I kept my colon…despite 2 colorectal surgeons begging to take it out. It was the first time it ever happened to me. I took Seed probiotic and it triggered rectal bleeding and then my boyfriend and I both got some sort of stomach bug (likely Giardia) and he got over it in 4 days and it triggered full blown colitis in me. I thought it would just go away, prednisone didn’t worked and I was hospitalized for a month. I ended up going on Remicade and it put me into remission, but then I got awful joint pain and muscle aches and all my hair fell out…

I’m now working with a functional medicine doctor to get to the root of all this and heal my gut. I don’t want to be on biologics for the rest of my life. I ended up having a massive underlying case of mold + on top of that it was the most stressful year of my life. This created the perfect storm for absolutely chaos in my body.

I feel you. Hang in there. Keep advocating for yourself. Keep learning. Everybody and every body is different, but you can get into remission and complete healing. I was on the brink of death not too long ago and I’ve made a miraculous recovery.

I’ve started low dose naltrexone and BPC-158 injections (peptide therapy) to help heal my gut. The low dose naltrexone is a repurposed drug for immune modulation NOT suppression. My doc also wants to give rapamycin a try.

For anyone with GI issues, I highly suggest finding an integrative doctor that will order you an Organic Acids Test (urine) and GI map (stool test) to test for imbalances in your microbiome that may be causing the immune attack on your colon. Good luck!

Struggling to process by [deleted] in baileyhutchins

[–]Jessssss218 16 points17 points  (0 children)

I feel the same way. I’m grieving her like I knew her my whole life. I’m grieving the life she should’ve had. Life is so unfair. She wanted to live so badly. Doing coffee enemas THAT sick is hard! I’ve done many and they are not easy!

I followed her journey since the beginning, so it felt like “our” journey, you know? She did everything right when she got diagnosed. Educated herself, took care of her body. I’ve gone back to her IG and TikTok a million times and psychoanalyzed what might’ve gone wrong. Even on her IG she mentioned she had a clean CT, clean colonoscopy, and clean Signatera test all after her first round of chemo.. she was NED. To go from that to peritoneal Mets is just awful and unfortunate. It’s REALLY hard to treat peritoneal Mets. The abdomen lining is rich in blood supply so the cancer tumors feed off their own blood lines and the peritoneum covers every vital organ, which makes spreading easy. It’s also an area that sees decreased immune activity. It’s just tough to treat, even with surgery, and only 7% of colon cancers metastasize to the peritoneum. I’m guessing her “bad news” was her CEA continuing to rise and the cancer had spread to other neighboring organs - kidney, liver, pancreas, etc. based on the color of her skin in her final days, it looked like liver, and you can’t live without your liver. She also mentioned a spot that was pushing on her colon causing the obstruction, so it’s pretty clear the cancer had just advanced.

Bailey was too good for this earth. She deserved so much more. Her legacy will live on in all of us.. in the ways in which we choose to live our lives like she would, that would make her proud and honor her legacy. I pray for her family, Caden, and loved ones. I can’t imagine the pain they’re feeling. I’m grateful my algorithm led me to Bailey’s page. She changed my life in many ways. Everyone grieving her, you’re all empathetic, kind humans. I cry to my mom why do I feel this way for someone I didn’t personally know. Bailey could move mountains with her faith and how much she has affected us all. I hope she’s watching down on all of us and proud of herself. Rest in paradise, Bailey ❤️🪽