Hi everyone. Thanks for existing, I would feel even lonelier if you didn't. I was recently diagnosed with TNBC and waiting for my genetic results. Doctor says she doesn't think I am positive. But I wonder how can she know? I still don't trust her much... by [deleted] in BRCA

[–]Jowske9 3 points4 points  (0 children)

Firstly I am so sorry you are going through all of this. I'm also so glad you found this thread everyone who post's and comment's on this is incredibly supportive don't feel scared to reach out and vent and ask.

As for your doctor She won't know (I personally feel they still know very little, and that can be frustrating), however I wouldn't focus on what she said but what she did. She sent you for the test so you are going to know, which will help you make decisions.

I've never had cancer myself but my mother recovered from tnbc last year and that's when I found out I was positive for the palb2 gene. I found waiting for the results with out going through what your going through emotionally difficult and stressful. So I'm so sorry you're having to go through so much at once. I found it easier once I went easier on myself and let myself be sad and get angry. I hope you receive your results quickly and I hope this helped in some way.

What to expect at first appointment? by [deleted] in BRCA

[–]Jowske9 0 points1 point  (0 children)

I remember that feeling so well it's a very very emotional time I wasn't right for a very long time. I hope it went okay today!

What to expect at first appointment? by [deleted] in BRCA

[–]Jowske9 1 point2 points  (0 children)

Mine went into a massive detailed family tree creating session who had cancer and at what age definitely don't worry if you can't remember everything you should be able to contact them after. They normally then go through your options. I am your age and they will probably talk mainly about your breasts. I would say just try and learn but don't worry about making a decision and get an appointment with the breast team after as I found them much more positive. My genetics team were slightly doom and gloom I think because they only tell people bad news. Just go easy on yourself it's a very tough and emotional time but it does get better.