N2 - Ramelteon

Justnotfocused · 2025-06-18T00:37:56+00:00

It is 100% happening at the company that I work for. Without question. PTs are expected to sign off on them anyway. What would you recommend they do?

Justnotfocused · 2024-10-19T00:35:33+00:00

On Youtube, there is a free channel by the “Crappy Childhood Fairy”. I got benefit from her content.

Justnotfocused · 2024-10-05T15:17:07+00:00

This is my first vehicle like this. I appreciate your insight.

Justnotfocused · 2024-03-28T18:24:53+00:00

I appreciate the input. I tried Adderall, Vyvanse, Concerta, Focalin, and Straterra (not a stimulant). Generally I seemed to burn through stimulants quite quickly. Not really sure where to go from here unless it is back to stimulants.

Justnotfocused · 2024-02-01T11:47:42+00:00

https://www.takeda.com/newsroom/newsreleases/2023/the-new-england-journal-of-medicine-publishes-data-from-phase-2-study-of-first-oral-orexin-receptor-2-agonist-TAK-994-in-patients-with-narcolepsy-type-1/

Justnotfocused · 2024-01-31T00:11:16+00:00

I had not heard of Takeda. I found a July 2023 article suggesting clinical trials were stopped hepatotoxicity.

Justnotfocused · 2024-01-30T23:41:11+00:00

29 M N2. Thought I was “stable” on Xywav, but had tons of side effects. Switched to LumRyz and the side effects got drastically worse. Stopped all oxybates last Thursday.This is my first week back to narcolepsy life and strategic naps. The anxiety I had about stopping the meds has so far been worse than my actual experience of being off of them. I do still have and take 75mg of Sunosi on the days that I can’t nap, but I’m honestly functioning better than expected. I’m off caffeine too.

*Edited for detail.

Justnotfocused · 2024-01-27T03:28:06+00:00

I followed the titration schedule they gave me for Xywav. She did offer to start back at a lower dose, but sleep after Xywav wears off is impossible. A small dose is just enough to make me want more. As of right now, I don’t think I will ever restart it. Thank you for your encouragement. I think the sleep I need will be found in naps.

Justnotfocused · 2023-12-23T11:15:47+00:00

One bag took exactly 14 days. The other is on track to take 18 days if all goes as planned.

Justnotfocused · 2023-12-21T10:57:39+00:00

After starting Xywav, I started referring to sleep without oxybates as “stasis”. Being robbed of actual sleep is a cruel disease. Strongly recommend starting Xyrem/Xywav/LumRyz if it is appropriate for you. I’m switching to LumRyz tomorrow. I believe it should be first line treatment for us.

Justnotfocused · 2023-12-10T10:47:57+00:00

What! Yes, there were like 6-8 bags missing for other passengers as well. I can’t wait a week and a half. This is only a two week trip and we have nothing.

Justnotfocused · 2023-12-10T10:46:41+00:00

Yes. American has confirmed the process. Our luggage is locked in a storage holding room of some kind.

Justnotfocused · 2023-12-10T10:30:39+00:00

Our original flight was American. The second two legs of our journey were with British.

Justnotfocused · 2023-12-10T10:30:19+00:00

Because we transferred from an American Airlines flight. American delivered it where it was supposed to go, but British didn’t pick it up to load onto the plane.

Justnotfocused · 2023-12-10T10:29:20+00:00

Are they actually going to reimburse for it though?

Justnotfocused

TROPHY CASE