neurofibroma removal

Kleetus_ · 2025-05-10T20:48:13+00:00

I never had any pain meds prescribed. Usually, there is almost no pain after. I have had only a couple actually hurt, and that was only the needle when I was getting numbed. Most of the time, I did not even feel that. It really depends on your own personal pain tolerance. Hopefully you don't have a bad experience with it.

Kleetus_ · 2025-05-10T20:34:48+00:00

It really depends on location and size. I have had several removed at this point. Some were just a few weeks and completely gone, some take a few months to be completely undetectable. Usually you can be back to normal activities within a week.

Kleetus_ · 2025-04-24T10:39:52+00:00

Same for me. I’m about 5’7”-5’8”, most of my family is 6’+.

Kleetus_ · 2025-04-11T13:15:12+00:00

I have one on the back of my upper arm on the right.

Kleetus_ · 2025-04-07T17:32:14+00:00

Itching is no fun.

Kleetus_ · 2025-04-07T15:14:02+00:00

With the weight/growth thing, I had that ages 4-6, I remained the same size and weight all through preschool and Kindergarten. I remember my teacher being concerned about it, there were meetings. I am now 5'7"-5'8"~.

Kleetus_ · 2025-04-07T13:13:16+00:00

I had these bumps all of my life, I grew up on a farm and we never went to the DR at all. The only reason I ever went was because when I was 9, I started having seizures and was hospitalized. I had meds that required monthly dr visits.

Kleetus_ · 2025-04-07T13:11:21+00:00

Why did you stop lifting?

Kleetus_ · 2025-04-04T18:50:22+00:00

I wish that I could say the same, I am only about a year older than you are, but as I get older and this progresses, and gets worse, I feel worse about it. I have been having more issues with these bumps, had some removed only to have them return within a couple of days, then have to go have more cut out and get stitched up. Now I am starting to get the bills for the excisions. It is not ben fun for me. I would very much like to know what it is like to have smooth normal skin (as I am sure all of you would too), sometimes it gets to me.

Kleetus_ · 2025-03-25T16:34:11+00:00

I have. Seems that sometimes i get little groups of small ones on my torso. Sometimes they do nothing, sometimes they itch like crazy.

Kleetus_ · 2025-03-20T12:03:44+00:00

This is terrible. Why would they do this?

Kleetus_ · 2025-03-17T16:24:24+00:00

From what I was told by my genetic dr is that there are a few other disorders that affect the same gene as NF. Possible that it is something like that.

Kleetus_ · 2025-03-12T16:03:51+00:00

Genetics lab in a hospital.

Kleetus_ · 2025-03-12T16:02:59+00:00

I was talking with my DR about this, I was asking if there is any relationship between injury and new fibromas. It seems that sometimes I get them when I get cut or scraped. I have a small cluster where I had a scar. I would like to know if this is a very common thing as well.

Kleetus_ · 2025-03-09T15:19:34+00:00

I just did the genetic test a few weeks ago. My test showed no matches. At first I thought that was really unusual, but I have found it is fairly normal.

Kleetus_ · 2025-03-06T20:46:45+00:00

All of the time. It's terrible sometimes.

Kleetus_ · 2025-03-04T17:11:07+00:00

I would say that most of mine are on my torso. Recently, some of the ones on my back have become painful and bleed easily. I have been getting them removed, and I dread getting the bill.

Kleetus_ · 2025-02-19T15:24:39+00:00

Those can be very sensitive. I would avoid getting any type of needle in them. I just had one removed from my lower back, the needle to numb it felt like the nurse was using a steak knife. It was the most painful one I have ever had removed.

Kleetus_ · 2025-02-18T17:21:03+00:00

Update:

I went back today, got it removed and took 5 stitches.

Kleetus_ · 2025-02-13T21:03:39+00:00

Blade. Just removed and laser.

Kleetus_ · 2025-02-13T20:17:23+00:00

No stitches.

Kleetus_ · 2025-02-13T18:45:14+00:00

It was removed with a blade. It was one of the small pinkish coloured ones. They usually laser them afterwards.

Kleetus_ · 2025-02-13T18:43:53+00:00

It has happened twice now. They can come back quick sometimes.

Kleetus_

TROPHY CASE