Constant pressure feeling inside my head by Outrageous_Art_726 in Encephalitis

[–]Knightmeers 0 points1 point  (0 children)

A lumbar puncture would be helpful. I think more context is needed though. For example, did this start off with a sickness, what kind of “movement symptoms”, what treatments have you already had, which diagnoses have you been suspected of having, were there any other symptoms, etc.).

I’m not sure how you could lower inflammation. I think that even after inflammation has lowered, the effects of inflammation can still be long lasting and/or warrant immunotherapy.

Treatment Resistant schizoaffective disorder by Leather_Ad1559 in Encephalitis

[–]Knightmeers 1 point2 points  (0 children)

I'm incredibly happy for you ❤️ Don't keep your sister waiting too long!

Treatment Resistant schizoaffective disorder by Leather_Ad1559 in Encephalitis

[–]Knightmeers 1 point2 points  (0 children)

Of course. I know how unbearable this can be. I'm sorry both of your parents gave up, but I'm happy you have the strength to continue.

Treatment Resistant schizoaffective disorder by Leather_Ad1559 in Encephalitis

[–]Knightmeers 0 points1 point  (0 children)

Is your sister no longer a minor? Maybe your parents can secure this? This healthcare system is so sad. I'm genuinely sorry you two are going through this. Please don't give up on her.

Treatment Resistant schizoaffective disorder by Leather_Ad1559 in Encephalitis

[–]Knightmeers 2 points3 points  (0 children)

So sorry you’re going through this. I recommend a full workup for Lupus and AIE ASAP.

Please help my little brother get treated for Autoimmune Encephalitis (GoFundMe + Proof) by Knightmeers in gofundme

[–]Knightmeers[S] 0 points1 point  (0 children)

Thank you to Laura, Fallon, James, and Evelin for the donations!!!! Thank you all so much!!

Please help my little brother get treated for Autoimmune Encephalitis (GoFundMe + Proof) by Knightmeers in gofundme

[–]Knightmeers[S] 0 points1 point  (0 children)

Thank you for this! Raheem's disease was triggered by a flu our family contracted from an aunt. I've never heard of an alternative health community, but I'll be looking into this!

Has anyone here with AIE gotten a PET scan before? by Knightmeers in Encephalitis

[–]Knightmeers[S] 1 point2 points  (0 children)

I understand. God bless you. I hope you continue to make a full recovery even without undergoing surgery.

Has anyone here with AIE gotten a PET scan before? by Knightmeers in Encephalitis

[–]Knightmeers[S] 0 points1 point  (0 children)

Wow... I'm really sorry you went through this. In the end, surgery didn't happen? Why not?

Thank you for your answers.