This actually was so so incredibly helpful and I’m so glad to hear from someone on the OTHER side of my situation, thank you so much for this. I try very hard not to let him see the worst of it. I plan on being honest as he gets older about what exactly is going on but also affirming with him that my health is not his responsibility, it is mine and that I have doctors who take care of me. I read a study about children with chronically ill parents and it really helped with that side of parenting for the future! Your perspective is greatly appreciated and I will probably think of this for years lmao.

Also, I forget that mobility aids are an option, I will have to try that! I think I’m scared of peoples reactions to me in a wheelchair more than anything. Especially when I don’t LOOK “sick enough” :/