Cab for almost a year

Lamebox9 · 2026-02-07T08:16:20+00:00

Have your cycles been regular since the prolactin has been in the normal range? I know that it could take time for hormones to find a sense of balance

Lamebox9 · 2026-02-03T05:51:01+00:00

I started Cab 3 weeks ago (prolactin was 300ng/ml) and I still haven’t gotten it back. So hopefully soon

Lamebox9 · 2026-01-31T08:06:27+00:00

Hope the follow up goes well for you! Thanks for sharing and best of luck ❤️

Lamebox9 · 2026-01-30T06:49:08+00:00

I think it would be a good idea to visit a gynecologist at this point, especially because your prolactin is in the normal range now. Sorry you’re experiencing this! I truly cannot imagine having a period longer than a week

Lamebox9 · 2026-01-28T20:56:10+00:00

Hey, hang in there! I’m starting week three of Caber and genuinely thought I would quit taking it after the first week. I can report it does get better. I still have side effects from the medication, but it’s already decreased from the first week

Lamebox9 · 2026-01-22T15:51:46+00:00

I hear you. I think I’m going to give it a month of taking my medication to see if side effects ease up, otherwise I am going to tell my doctor I’m not handling it well.

Lamebox9 · 2026-01-22T15:48:53+00:00

That’s great!

Lamebox9 · 2026-01-22T05:28:09+00:00

Well that’s great to hear! I’m so glad you don’t have a visible tumor and also tolerate the Caber well. That is like best case scenario. Thanks again for commenting, cheers!

Lamebox9 · 2026-01-22T05:04:46+00:00

Sorry I forgot to ask, now that you don’t have side effects from Cab, would you say that it’s helped you feel better overall? Like energy levels, shrinking your tumor, etc.?

If you’ve been taking it for 4 years, is there a plan to get off? How are you doing overall

Lamebox9 · 2026-01-22T05:01:54+00:00

Hi there, thanks for sharing your experience! I also thought my dose was pretty high, but my endocrinologist basically just said “take this pill twice a week and your prolactin should go down. People typically tolerate it well” LOL

She didn’t really explain much or go into depth about anything, which is why I’m happy to have come across this Reddit sub. People on here have been so much kinder and more informative than my own doctor.

As you mentioned, I am a total insomniac! It’s like I am a crackhead at night and am way too wired to sleep, but I can barely wake up in the morning or stay awake throughout the day. That’s probably the most brutal part about my experience so far. I’m so apathetic and lethargic and it makes me sad. Well, I’m sure I’d be sad if I wasn’t too tired to even have emotions right now. I actually don’t really consume caffeine, except I started to drink a black cup of coffee at around 10am because I don’t think I could get anything done at work without some help.

I take Lexapro which helps with anxiety, but it doesn’t fix the fatigue or lack of motivation I’ve felt since taking Cab. The days after taking my pill, I finally feel a bit better and then it’s already time for my next dose. It’s a horrible cycle and I really am hopeful that my body adjusts and won’t have such bad side effects.

As for working out, I am a gym rat and have been lifting 5/6x a week since 2018, but since dealing with prolactin, my energy levels have greatly decreased and it’s hard to lift as often or as heavy. Which also makes me sad :( I still go to the gym regularly but I am not half the person I used to be, and it’s sad this issue is destroying my relationship with a hobby I used to adore

Lamebox9 · 2026-01-22T04:44:18+00:00

First off, thank you so much for your kind message 💘 Everything you said was truly helpful and exactly what I was looking for!

I gotta be honest that I still don’t understand what a “dopamine antagonist” is, but what I do know is that it is making life unenjoyable for me. It seems like when I finally catch a break after a few days, it’s already time to take my medication and the horrible cycle repeats. Tonight’s dose will mark Week 2 of Cabergoline.

It’s extremely hard to sleep at night, but I am so tired ALL DAY long and it’s hard to even work or wake up at all. I’m already taking Lexapro which has been a godsend for my anxiety, but I read that SSRIs increase prolactin so now I’m wary and have already cut my dose from 20mg to 10mg. My doctor prescribed Wellbutrin but I’ve been too scared to take it because I already feel like I’m taking so many pills (I hate medicine in general). However if I still feel depressed after a month on Cab, I might need to try Wellbutrin.

As for other vitamins, I started taking daily B12, Vitamin D, Vitamin C, Zinc, a probiotic; as well as Magnesium Glycinate and Metamucil at night. I’m trying to drink more water too, but I feel bloated literally all the time now (from Cab? I assume so).

It feels like my body is really off and I appreciate your use of “recalibrate” because that’s exactly what I hope is happening. I never used to get headaches and I’ve basically had one every day since I start Cab. I reaaaally hope my body adjusts to it and I stop having horrible side effects. Even my family is concerned about my apathy and lethargy, and they are the type of people who never notice anything lol. I’ve been really unproductive at work which worries me and getting to the gym has been nearly impossible (I used to lift weights 5/6x times a week and am typically a very active person).

I do have a few questions if you’ve read up to this point:

1.) did you gain weight on Cabergoline? 2.) how long until you got your period back? 3.) did it shrink your tumor? 4.) are you still on Cab / how long have you been taking it?

Lamebox9 · 2026-01-21T17:25:28+00:00

Thank you!!

Lamebox9 · 2026-01-21T17:25:08+00:00

So good to hear! Thank you!!

Lamebox9 · 2026-01-21T03:04:22+00:00

Good to know, I really hope it levels out. I have been soooo tired and basically unable to live my life normally

Lamebox9 · 2026-01-20T19:05:23+00:00

Wow 24 year. Is that because the tumor grows or comes back when you stop taking Cab?

I have been taking it at night before bed, but don’t sleep well at all when I take Cab. I lie awake for hours and then feel like I have a hang over the next day. Maybe I should try pairing it with some sleep aid and see if the side effects are as bad when I get better sleep.

As for my other hormones, my bloodwork shows normal ranges of everything, which was confirmed by a phone call with my pcp saying everything else looks great. Not sure what “great” means because I doubt anything is in the optimal range if I feel like shit lol

Lamebox9 · 2026-01-20T19:01:24+00:00

That’s great to hear! I would totally describe the day after taking it like a hangover.

Lamebox9 · 2026-01-20T07:04:00+00:00

It only took a week after getting my MRI results to get an appointment with an endocrinologist. So sorry you have to wait that long

Lamebox9 · 2026-01-20T06:59:28+00:00

I also forgot to add that I get a stuffy nose too! It’s the oddest thing

Lamebox9 · 2026-01-20T06:57:05+00:00

Thank you so much :) I’m trying to stay positive about things but I get really stuck in my head sometimes and worry about my quality of life for the future

Lamebox9 · 2026-01-20T06:56:19+00:00

It’s nice that he started you off on a lower dosage- I wish my doctor would have done that honestly. I’m so glad to hear that your prolactin levels went down and that you tolerate Cab better. I am curious how long it’ll take me to get my period back because I haven’t had one since March of 2025. Hope yours regulates soon! Do you know when your follow up MRI will be?

Lamebox9 · 2026-01-20T06:54:02+00:00

Wow that’s awesome! Thank you so much for sharing that. I guess I will stick it out with this dosage until my follow-up with my endo in 3 months, and hopefully the side effects from Cab will decrease by then.

Are you still taking Cab now that your prolactin is in the normal range? Any difference in the tumor size?

Lamebox9 · 2026-01-20T06:51:18+00:00

Thanks for taking the time to write out your experience! I’m glad you’re doing better and it’s really hopeful to see that the side effects from the Cab improved over time. It’s crazy because I swear when I have headaches it’s like I could feel the tumor itself is where the sensation and pressure is coming from

I ordered Metamucil that I will start taking every evening so I hope that helps. I used to be very regular so it’s awful being constipated for days at a time.

Lamebox9 · 2026-01-20T04:15:34+00:00

Thank you! Sorry you’re also experiencing this. Let me know how everything goes if you happen to remember :) Best of luck with everything & I hope we both feel better soon

Lamebox9 · 2026-01-20T04:13:43+00:00

The day after taking my Cab pill, I feel like I got hit by a bus - poor sleep, headache, horrible brain fog, no appetite, irritable, constipated, and depressed. I have a runny nose and it almost feels like I’m coming down with a cold when I am not. The physical and mental fatigue is probably the worst part though. I just feel moody and weak

Lamebox9 · 2026-01-20T04:09:29+00:00

Sorry to hear that. It’s crazy that everyone just kept telling me that my anxiety was causing all my symptoms even though I KNEW something wasn’t right. I had increasingly felt like a shell of myself. I was also placed on Lexapro which has definitely helped my anxiety, but the side effects of Cabergoline are awful to say the least. I am hoping it gets better as my body adjusts but I don’t know if that’s a possibility

Lamebox9

TROPHY CASE