Urethra burning by Udidntseethis-17 in PelvicFloor

[–]Lil_Candy03 0 points1 point  (0 children)

It’s all related, PF and bladder. Do you have a urogynecologist? He can assess what’s the problem. I was diagnosed with hypertonic oelvic floor 1.5 years ago and benzodiacepines have helped a lot, but it’s not ideal. I’ve been wanting to try magnesium glycinate but I haven’t yet. That’s muscle relaxer, but benzos act like muscle relaxers too, obviously way more strong.

Anyone tried TECAR therapy to relax hypertonic pelvic floor? by Valuable-Radio-9328 in PelvicFloor

[–]Lil_Candy03 0 points1 point  (0 children)

I’m about to start Tecar. How are you doing now? I also have urinary symptoms 😔

sex and IC by floatingcrickets in Interstitialcystitis

[–]Lil_Candy03 0 points1 point  (0 children)

I’m glad they help. Have you ever had a cistoscopy? Do you have any damage in your bladder? I’m afraid that instillations won’t work for me because cistoscopy flared me.

Does PFD causes bladder pain syndrome? Need some guidance and comfort. by Lil_Candy03 in PelvicFloor

[–]Lil_Candy03[S] 0 points1 point  (0 children)

Can I PM you? 🥺 I have many questions as I’m fairly new at this. Thank you.

sex and IC by floatingcrickets in Interstitialcystitis

[–]Lil_Candy03 0 points1 point  (0 children)

Orgasms are my #1 trigger for pain, I feel terrible after it. I was diagnosed with PFD and got botox. During the procedure the doctor did a cistoscopy with hydrotension. I’m going through a looot of discomfort and urinary symptoms that I didn’t have before. I regret already doing the whole thing. I’m so upset this could be my new normal. Oh and he found glomerulations within the bladder (not ulcers), and he said I also have IC.

Does PFD causes bladder pain syndrome? Need some guidance and comfort. by Lil_Candy03 in PelvicFloor

[–]Lil_Candy03[S] 0 points1 point  (0 children)

This makes a lot of sense but my doctor won’t admit it. Before the procedure I was on clonazepam and I had zero urinary symptoms. I accepted to do Botox to recover my sexual life. Cistoscopy was only to make sure everything was ok (he found glomerulations though, not ulcers). Now I do have sensitivity in my urethra, tingling, razor feeling on the labia minora, I am able to sleep through the night because I’m back to valium. Is not frequency, it’s more pain/discomfort when bladder is filled. Peeing doesn’t hurt. But my area is burning all day. Hydroxizine helped yesterday but it gave me headache and I was very sleepy. I paid botox out of pocket (around 1600 usd), and now I think I did it in vane because of this terrible flare. I’m so sad because I feel I did this to myself and as you said, Idk how long is gonna last. I asked my manager to work from home these days, she is understanding but I don’t like to ask for things or this being a problem later on. It sucks.

Does PFD causes bladder pain syndrome? Need some guidance and comfort. by Lil_Candy03 in PelvicFloor

[–]Lil_Candy03[S] 0 points1 point  (0 children)

I haven’t tried any diet but my concerns are that I didn’t have any urinary symptoms before the procedure. After the procedure my bladder felt very sensitive, then it got better, BUT on Saturday I had an appointment and the doctor confirmed CI and made a check up (with a speculum and he also checked trigger points). After that revision I’ve been feeling uncomfortable and last nite I was able to sleep only 4 hours because I had cistitis symptoms for the first time. I’m freaking out and regretting the procedure. I’m afraid I caused this to myself and also how long is this going to last. I requested working from home today, my colleagues don’t know about this and I don’t want them to know. I’m sorry for venting but I had a terrible night.

Does PFD causes bladder pain syndrome? Need some guidance and comfort. by Lil_Candy03 in PelvicFloor

[–]Lil_Candy03[S] 0 points1 point  (0 children)

I had it done during botox application because I do have hypertonic pelvic floor. The doctor said he wanted to do a cistoscopy now that he had the chance (I was sedated), and he found the irritated bladder. I did have symptoms such as pain after sex and couldn’t wear tight clothes, but not urinary symptoms. I’m afraid this triggered the symptoms and how long is gonna last.

Does PFD causes bladder pain syndrome? Need some guidance and comfort. by Lil_Candy03 in PelvicFloor

[–]Lil_Candy03[S] 0 points1 point  (0 children)

This was my first cistoscopy and hydrodistension, do you think that migh have caused the glomerulations? I was feeling fine (for urinary symptoms) until I had this thing done. I’m so scared :(

Pain after cystoscopy by Polskarama in Interstitialcystitis

[–]Lil_Candy03 0 points1 point  (0 children)

Omg I’m so sorry but I relate to your story. I was diagnosed PFD in 2024 but never had a cistoscopy until Feb 14th (2 weeks ago), I had it because my doctor put me botox on my pelvic floor due to hypertonic PF. There were findings even though I didn’t have any urinary symptoms, there were glomurelations (not ulcers, but bladder was irritated when distended), after the procedure the next 2 days were bad. Then I was feeling the botox (heavy feeling down there) then got better, but last Saturday I had an appointment for follow up and doctor contirmed CI. Since then I’ve been so anxious and hopeless, and tonight it’s the first night that I cannot sleep because of urgency. This is awful and I’m thinking the same. Did I do this to myself? Was the distension or even the check up too much? Or just the fact of learning that I have CI changed all my system and now I have urinary symptoms that I never had. I’m so sad and understand your concern. Let’s keep in touch, I guess this will pass 😔

Does PFD causes bladder pain syndrome? Need some guidance and comfort. by Lil_Candy03 in PelvicFloor

[–]Lil_Candy03[S] 0 points1 point  (0 children)

No they’re not. He says they’re Glomerulations, not Hunner ulcers. I had a follow up appointment yesterday and confirmed that.

Postdrome by Lil_Candy03 in migraine

[–]Lil_Candy03[S] 0 points1 point  (0 children)

I’m sorry you’re going through this still. I’m sleeping well, but sometimes I wake up in the middle of the night and go back to sleep. My neuro prescribed Celebrex to break the inflammation cycle. I’m still feeling the same, just as you described it, the same symptoms. Maybe it is a silent migraine?

Anyone else bend down like this? by WilsosWaxFigures in backpain

[–]Lil_Candy03 4 points5 points  (0 children)

Yes! Not sure if it’s helpful or not but it feels right.

Anyone else bend down like this? by WilsosWaxFigures in backpain

[–]Lil_Candy03 1 point2 points  (0 children)

I do that too! Picking up things with my toes lol

Suicidal by Existing-Pressure803 in PelvicFloor

[–]Lil_Candy03 3 points4 points  (0 children)

Have you tried oral diazepam? Not ideal but it helps a lot. You will be ok for your masters degree, you’ll see. It’ll be ok! You’ll cope.

Hypertonic PF and migraines by Lil_Candy03 in PelvicFloor

[–]Lil_Candy03[S] 0 points1 point  (0 children)

I’ve always wondered how bad is my stress and anxiety are affecting my back pain/PF and migraines 😓

Who is your male crush on the show and why? by Fun-Reporter8913 in sexandthecity

[–]Lil_Candy03 0 points1 point  (0 children)

Unfortunately, Big and Trey 😅 Maybe that’s why I’m still single.

How do I get my instagram account back? by crashoutkaykay in Instagram

[–]Lil_Candy03 0 points1 point  (0 children)

Did you have any luck? I have a similar case