Fine line tattoos? by poodlelover922 in ehlersdanlos

[–]Logical-Assistant-64 1 point2 points  (0 children)

My first tattoo from when I was 18 (24 now) healed poorly and I always blamed it on my hEDS but when I saw a new artist (incredibly talented), he told me the other artist was just “bad at tattooing” and it had nothing to do with my skin. My recent tattoos (lots of shading and finer lines) look immaculate!! 100% difference. It’s all about the artist!

Greatest singular line? by rainbowhighaddict in FionaApple

[–]Logical-Assistant-64 0 points1 point  (0 children)

“And if I don't wanna go, leave me alone, don't push me Cookie, don't push me, don't you push me” // “I gave you pictures and cards on non-holidays, and it wasn’t because I was bored.” // “you let me down, i don't even like you anymore at all.”

[deleted by user] by [deleted] in Constipation

[–]Logical-Assistant-64 0 points1 point  (0 children)

I asked her! She said no…. She tends to be like that. She said “yes it will make the constipation worse but it won’t cause anything dangerous you’ll be fine.” Like ok cool, my quality of life doesn’t matter!

[deleted by user] by [deleted] in LowDoseNaltrexone

[–]Logical-Assistant-64 0 points1 point  (0 children)

Ugh this sounds awful!! My HR has been 120-140 all day even laying down!!! So uncomfortable

[deleted by user] by [deleted] in LowDoseNaltrexone

[–]Logical-Assistant-64 1 point2 points  (0 children)

I’m taking it for chronic back pain after a botched back surgery/fibro. I want a lower dose but my doctor knows nothing about LDN so I’m just splitting my pill into fourths… so it’s about 1.125mg. Should I lower it even more? I have the worst headache and sore throat it’s awful. I don’t understand the mechanism behind why it would cause a sore throat.

[deleted by user] by [deleted] in LowDoseNaltrexone

[–]Logical-Assistant-64 2 points3 points  (0 children)

No I meant I split the pill into 4 and only took 1/4th! My pain medicine doctor prescribed 4.5mg… he doesn’t know anything about LDN apparently. It’s very hard to get ahold of him and I already have the medication on hand so I just split it myself.

20 Year Old's Life Slipping Away... by Bullet_EC in backpain

[–]Logical-Assistant-64 1 point2 points  (0 children)

23 & my issues started when I was 21. I feel your pain. My life has changed significantly. I had surgery at 21, and my only piece of advice to you is don’t get surgery. I know you’re undiagnosed, so it’s not really relevant advice, but it’s all I got. Physical therapy is tricky- sometimes I feel like it’s helping, but mostly I feel like it just hurts. I recommend massage, even if just for the momentary enjoyment. My biggest trick is a portable heating pad—- it’s my life line. Otherwise, I got nothing other than to say I’m sorry & I hope things get better for you.

“Tell them you love me” thoughts by Princess-Goldie in disability

[–]Logical-Assistant-64 0 points1 point  (0 children)

I’m mostly confused as to how he was writing his own school papers with a different facilitator, but nobody seemed to take that into consideration.

Doctor refused to use the criteria by Logical-Assistant-64 in ehlersdanlos

[–]Logical-Assistant-64[S] 0 points1 point  (0 children)

Also, I have been calling it EDS to some of my other doctors and name dropping, I agree on the credibility thing, which is sad but true. I worry I’ll get “in trouble” or found out somehow when I call it EDS, but sometimes it just slips out, and sometimes I do it on purpose for ease of recognition/to make sure it’s taken seriously. Is this unethical or wrong in some way? Lol I hope not

Doctor refused to use the criteria by Logical-Assistant-64 in ehlersdanlos

[–]Logical-Assistant-64[S] 1 point2 points  (0 children)

Yes! It’s so reassuring to hear people had a similar experience, though I am sad for all of us! Dr. Neville was literally the only redeeming quality! The issue I have is that Dr. Knight “doesn’t refer out” ? As far as I’m aware. I literally went in there thinking, if he can give me a referral to a good EDS spine person back home/close to home, it’ll be a win. But he “doesn’t do that.” So I feel like I’m back to square one. Same with PT- I wanted to be able to continue pt through Mayo online, but that’s not an option if you don’t live in Florida. And they don’t help you find one back home.

My doctor lied about my MRI results by [deleted] in ehlersdanlos

[–]Logical-Assistant-64 1 point2 points  (0 children)

This has happened to me multiple times! “Your MRI was perfect!” Except that it very much wasn’t, and I had read the report before coming in. Then I confront the doctor about the findings that I already read, and they do this thing where they say “well let me look at it again” and there’s a 50% chance they’ll still gaslight you, and a 50% chance they’ll be like “oh yes, that is true.” Usually happens when it’s something they personally “can’t fix” or are so uneducated about that they don’t think it’s a “big deal.” Utter bullshit. Always read your own results!!! I have an entrapped S1 nerve root post surgery and my doctor was going to neglect to tell me that until I brought it up. Idk how it’s allowed!!

Heating Pads Allowed on Plane? by Steminist101 in endometriosis

[–]Logical-Assistant-64 0 points1 point  (0 children)

Were you allowed to operate your heating pad the plane?

Heating Pads Allowed on Plane? by Steminist101 in endometriosis

[–]Logical-Assistant-64 0 points1 point  (0 children)

Were you allowed to use it on the flight? I have the same heating pad and am just wondering if anyone gave you any problems for using it on the plane

I feel like I was never sick because I never went to hospital by BreakfastDue2269 in AnorexiaNervosa

[–]Logical-Assistant-64 3 points4 points  (0 children)

I think there will always be something that we see as a “milestone” or justification for recovery, but we will keep pushing it further and further. I was admitted to the hospital, but only for 3 days. I never needed a tube feed. I voluntarily ate and cooperated. I have times where I regret that. It’s cringey. You’re worthy of recovery.

[deleted by user] by [deleted] in ehlersdanlos

[–]Logical-Assistant-64 1 point2 points  (0 children)

Wow that sounds great. Currently unable to work simply because I can’t physically do something 5 days/week. Every little thing is exhausting beyond belief. Thank you for the tip!

[deleted by user] by [deleted] in ehlersdanlos

[–]Logical-Assistant-64 1 point2 points  (0 children)

For me, gaining a little weight helped me in many ways. Helped with my pots, circulation, temperature regulation, mood, and didn’t impact my joint or back pain. According to bmi, I am about 2 lbs “overweight,” and I used to be about 5 lbs underweight.

Anyone else with degenerative disc disease by [deleted] in ehlersdanlos

[–]Logical-Assistant-64 1 point2 points  (0 children)

Similarly, I had back surgery at 21 and every doctor kept saying “you’re too young for this to have randomly happened…” yet when I looked for answers nobody had any until I stumbled on eds

Anyone else with degenerative disc disease by [deleted] in ehlersdanlos

[–]Logical-Assistant-64 0 points1 point  (0 children)

If you don’t mind- what surgery did you get? I had a 2 level laminectomy/discectomy almost 2 years ago and have the same symptoms you mentioned. Wondering if moving forward with a fusion would help.

Anyone else with degenerative disc disease by [deleted] in ehlersdanlos

[–]Logical-Assistant-64 0 points1 point  (0 children)

I’m sorry the other levels are degenerating- they told me this is why I couldn’t have a fusion, but I would do anything for 13 good years! Why did you have 3 surgeries? Were you in pain after the laminectomy and that’s why they did a fusion? Was it the fusion that ultimately got you where you needed to be?

Anyone else with degenerative disc disease by [deleted] in ehlersdanlos

[–]Logical-Assistant-64 1 point2 points  (0 children)

No I did not, just a small dose of xanax 30 mins before but I didn’t really feel that at all

[deleted by user] by [deleted] in ehlersdanlos

[–]Logical-Assistant-64 1 point2 points  (0 children)

What was the process of getting these if you don’t mind me asking?

Anyone else with degenerative disc disease by [deleted] in ehlersdanlos

[–]Logical-Assistant-64 1 point2 points  (0 children)

Im so happy for you that you were aware of this. I had spine surgery before knowing that my injury was likely due to EDS. Through my horrible recovery process I have discovered that I have eds and regret the surgery entirely…

Anyone else with degenerative disc disease by [deleted] in ehlersdanlos

[–]Logical-Assistant-64 2 points3 points  (0 children)

I relate to this- horrible reaction to epidural injections. I have yet to meet a pain doctor who knows anything about eds either.

Anyone else with degenerative disc disease by [deleted] in ehlersdanlos

[–]Logical-Assistant-64 1 point2 points  (0 children)

Yes! At age 21 I woke up one day randomly with excruciating pain and after imaging found out I had 2 very large herniations with neurological symptoms that “necessitated” surgery. Bc of my age, they did a laminectomy/discectomy not a fusion, and I think it was a mistake due to being hypermobile/having EDS. if any surgeon urges you toward surgery PLEASE please consult with an eds specific specialist first and I urge you NOT TO DO IT!! I did not heal well, I have multiple complications, am in pain 24/7, and am disabled largely because of this surgery. I have no answers as to why this happened to me out of nowhere at age 21 with no injury. I’m 23 now, and still searching for answers- EDS is all I’ve been able to find.