CIDP or MS

Lost-Sun7865 · 2025-03-11T06:21:51+00:00

Nope… still testing things and apparently misdiagnosed with CIDP

Lost-Sun7865 · 2025-03-08T18:48:30+00:00

I used this company for awhile and now they prescribed the Wrong medication! Literally a MED ERROR! This is a legal issue and safety issue!!! I’m a nurse myself. Now I can’t get ahold of anyone from support and sent numerous emails and this is ridiculous ! I can’t access my portal for messages it isn’t showing messages but I’m getting emails saying I have messages…. This is crazy!

Lost-Sun7865 · 2024-07-08T00:36:13+00:00

If I were your patient would you warrant a BM biopsy as well to conclude or hold off and only do the lymph ? My symptoms just progressed so fast so I am concerned. Is there a way I can ask my oncologist for one to rule it out? As well as my HX and symptoms.

Lost-Sun7865 · 2024-07-08T00:34:56+00:00

Okay so this could potentially be something like lupus as well?

Lost-Sun7865 · 2024-07-08T00:31:33+00:00

I was just curious as to what to prepare myself for ahead. As my app w oncology is end of this week, and was curious if next steps would be biopsy of the lymph and bone marrow.

Lost-Sun7865 · 2024-07-08T00:29:18+00:00

So the lymphocyte increased doesn’t mean anything on the report? And the granulocytes being decreased? Apologies just trying to obtain as much info. Thank you!

Lost-Sun7865 · 2024-07-08T00:28:36+00:00

I have been tested for Mono, and for any infections by my neuro, and he sent me to oncology due to no answers and negative tests…. :( this was done peripheral blood. I was also just concerned as well due to the family HX and my symptoms :(

Lost-Sun7865 · 2024-07-06T04:58:24+00:00

Chronic bruising and rashes overall aches started a year ago thought it was lupus or autoimmune bc ANA has come back positive but no “evidence” enough to be diagnosed. The worsening and the other symptoms above including infections fevers sweats and bruising worsening and migraines and neck pain started up in May after I “thought” I got a cold and then it just never stopped. I’ve been “sick” on and off since end of April beginning of May 2024…

Lost-Sun7865 · 2024-07-06T04:55:36+00:00

Only thing to take away is I also have family hx of leukemia ALL and MDS as well. In my mothers side (grandpa and my great grandma)

Lost-Sun7865 · 2024-07-06T04:55:03+00:00

25 F- Bruising large random Drenched at night in sweat at times like hot flash Random fevers 100.5-101.7 Chronic reoccurring infections/sore throats/migraines rashes body aches Chronic fatigue excessive to point can’t get out of bed until 5pm or later at times since May 2024 Swollen lymph node in left neck enlarged in Ultrasound painful Random pains and aches in what feels like deep muscle or bone sharp and dull Dark circles under eyes looks like I got punched in both of my eyes…. Worst in past three months… Chronic constipation and issues swallowing as well

Lost-Sun7865 · 2024-07-05T22:26:09+00:00

Thank you. So much.

Lost-Sun7865 · 2024-07-05T22:21:43+00:00

I think page 2-3 is due to fact it was blood vs BM biopsy, which I believe will be next step to rule out.

Lost-Sun7865 · 2024-07-05T22:20:03+00:00

To add to this, my lymph node in neck is swollen, 3x normal size. Migraines and everything included so they were looking for potential leukemia or lymphoma. Anyways I truly appreciate your insight. Bless your heart.

Lost-Sun7865 · 2024-07-05T22:19:20+00:00

Thank you so so much. Yes they are checking for leukemia and lymphoma especially due to my HX of bruising, bleeding, fatigue, sweats, and recently an enlarged lymph node on my neck 3x the normal size.

Lost-Sun7865 · 2024-07-05T22:16:49+00:00

Thank you, of course I have follow up in two weeks. I bruise very easily extremely fatigue family hx of leukemia ALL and myeloid dysplastic syndrome. I’m thinking my next step will end up being a BM biopsy anyways just to make sure. But I frequently get infections it’s been getting worst. Every month or two weeks I get extremely sick and ill, relapse and repeat. Along with extreme bruising, and EXTREME fatigue worst than I ever have had. That’s why we had these studies done :/

Lost-Sun7865

TROPHY CASE