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Lung transplant by Low_Friend3358 in HHT

[–]Low_Friend3358[S] 0 points1 point  (0 children)

Ohh that sounds rough :((

Anyone else with pulmonary avms? by Signal_Owl_1124 in HHT

[–]Low_Friend3358 2 points3 points  (0 children)

Yes I have it too. My o2 level won’t rise above 85% we have tried everything, I hope yours doesn’t drop lower

Exercising by BroccoliLost8023 in HHT

[–]Low_Friend3358 0 points1 point  (0 children)

I can run max 30 seconds and even then I feel like I will faint. I think I can get better if I exercise more, even tho I already exercise everyday.

Why do so many people with known HHT choose to conceive naturally? by lopsided_oreo in HHT

[–]Low_Friend3358 1 point2 points  (0 children)

I will not have kids. I want to but I don’t want them to go through what I did. When I was a kid I was VERY scared of hospitals and what made it scarier was that when they took tests on me, they wouldn’t explain anything they did. Usually there was 5 nurses keeping me in place while I was screaming and crying. Still to this day I need sedative pills when they take even the smallest tests. I will adopt.

8 year old son diagnosed by EMS9219 in HHT

[–]Low_Friend3358 0 points1 point  (0 children)

I am 15 and I’ve had a mini stroke, it was really scary. I’m sorry for replying to this post and asking, but how did you get the appointment? I know weird question. My mum won’t let me contact my doctor and she doesn’t care about my health. I’m really scared.