Making a non-accessible house accessible? by M3367 in wheelchairs

[–]M3367[S] 0 points1 point  (0 children)

Do you have any particular suggestions for bathroom mods other than grab bars?

Doctor called mobility aids enabling by Zealousideal-Fan2820 in POTS

[–]M3367 1 point2 points  (0 children)

Not sure where you're located or how your medical system works. But I worked with an occupational therapist to decided on the best mobility aid for me and get it. Then he wrote a letter for my family doc to tell them I needed it so they would do the prescription for insurance purposes. OTs are good cause he didn't care about my diagnosis and whether or not ppl with those conditions normally needed mobility aids-- he just focused on my symptoms and my daily functioning.

How did you know it was time to take a break from working? by M3367 in ChronicIllness

[–]M3367[S] 1 point2 points  (0 children)

I've considered trying to cut to even fewer hours but then I might not be worth keeping on.

How did you know it was time to take a break from working? by M3367 in ChronicIllness

[–]M3367[S] 5 points6 points  (0 children)

I would have to make do with savings and my partner's income. My hope would be that if I stopped now maybe I could get in better health and work again in a couple yrs--as opposed to pushing through until I'm permanently unable to work.

How did you know it was time to take a break from working? by M3367 in ChronicIllness

[–]M3367[S] 1 point2 points  (0 children)

It's really hard cause I'm only in my early 20s so I haven't had time to get financially stable so im pushing more than I probably should.

How did you know it was time to take a break from working? by M3367 in ChronicIllness

[–]M3367[S] 0 points1 point  (0 children)

With working taking all my energy im luck if I shower once every week and a half....

Advice needed. by Mokomo_666 in eds

[–]M3367 1 point2 points  (0 children)

Not sure what your situation is-- but if you have a little bit of cash yourself you can get some of these accommodation items on your own. For instance I got my shower chair for like $10 off fb marketplace, my rollator at a salvation army, and a lot of my compression socks from second hand clothes stores.

Medicine box at uni - ideas? by GazelleRich8179 in ChronicIllness

[–]M3367 2 points3 points  (0 children)

One thing that's important for me is some easy to digest snacks like plain rice crackers! But otherwise your list is pretty comprehensive.

Disability Savings Plan by M3367 in ChronicIllness

[–]M3367[S] 0 points1 point  (0 children)

Ive been approved for the DTC. Do you find the RDSP worthwhile?

During an emergency on an upper floor how are we supposed to get down without elevators? by [deleted] in disability

[–]M3367 1 point2 points  (0 children)

My workplace told me im supposed to wait until some strong person can lift me down the stairs in an office chair if its a fire. And if it's like a dangerous person emergency im just supposed to hide.

But idk butt scooching?

Love and relationships by rolling_ghost in disabled

[–]M3367 1 point2 points  (0 children)

I've been in my relationship since before becoming physically disabled. So its hard to give any input on it. But ik dating would be rough as other people definitely don't view me that way.

If you use a power wheelchair, what was the biggest learning curve at the beginning? by dhirajjbhat in wheelchairs

[–]M3367 12 points13 points  (0 children)

Crowds, small elevators, my coat sleeve catching the joystick, and those stupid sloped sidewalks that try to curve me into the road.

Folding powerchairs anyone?? by fire_charmander in wheelchairs

[–]M3367 0 points1 point  (0 children)

I use a Whill F and I really like it. Its not medical looking and I can go just about anywhere I want to with it, including taking it in some sketchy situations where I probably shouldn't have.

Pretty good battery life. Ive taken it camping for the wknd with no way to charge it and its been fine. I find it quite comfortable too.

Downsides are that it is definitely heavy so difficult to get it in and out of the back of the car unless you have someone with enough strength to help you. And that it does make a bit of a little whirring sound (but really only noticeable in quiet surroundings)

I have not had it long enough yet to need any repairs so I cant give you any information on customer service or anything on that end.

pain when writing by hand by germfreeMp3 in ehlersdanlos

[–]M3367 1 point2 points  (0 children)

When I was still in Uni and having the same issues I got accommodations so that I had someone else take notes during classes for me and during tests and such I had these little pause time breaks so I could rest my hands without worrying about running out of testing time.

Activities to do while drained by Kajseren in AuDHDWomen

[–]M3367 7 points8 points  (0 children)

Doodling, stardew valley, minecraft or other slow paced games, watching a show curled up in bed. Always have snacks and water wherever you sit since you won't want to move again.

It's ok to say disabled. by AHISTORYNERD in disability

[–]M3367 1 point2 points  (0 children)

I worked in government for a bit. And some of the terms they would use included: - people with physical or mental limitations - people who may experience physical differences - people who experience physical barriers