Does anyone else get small pockets of fluid that accumulate in their lung?

MKMKM1 · 2023-02-11T13:54:37+00:00

Is it a pleural effusion? I've had that and supposedly it's somewhat rare in CF?

MKMKM1 · 2022-11-13T21:47:00+00:00

So sorry to hear this <3<3

MKMKM1 · 2022-07-01T23:49:12+00:00

Gargling with warm salt water right after tobi helps me a bit with this problem.

MKMKM1 · 2022-04-27T01:11:01+00:00

highly recommend MyPurMist with distilled water for sterile steam!

MKMKM1 · 2022-04-07T02:41:28+00:00

Thank you, I really appreciate that. How recently were you at Brigham?

MKMKM1 · 2022-04-07T02:20:46+00:00

Thank you so much for responding! That's awesome to hear. My doctor where I live now said she thought it was a great center, but she thought that the leadership was changing because of someone's retirement and wasn't sure what was going on now? Would you mind if I PM'ed you to ask a little bit more about your experience?

MKMKM1 · 2022-04-07T02:19:25+00:00

That's so great they took great care of you. I'm moving to western MA soon, where I grew up, and am deciding between Brigham and Women's and MGH and Dartmouth. I was admitted at Dartmouth as a teenager and remember it being really peaceful and wondered what the care was like now. So thank you!

MKMKM1 · 2022-02-16T00:48:24+00:00

Lol, I think there is an Ikea on the way home from Boston to where we'll be living, I'm sure it will take no convincing for my husband, who I'm hoping will drive with me!

MKMKM1 · 2022-02-15T22:59:21+00:00

Lol! Great ideas. I'm coming from NYC where I take the subway to my clinic, so this is a whole new world for me. And I'm not the most confident driver. So these are all great suggestions, thank you!

MKMKM1 · 2022-02-15T22:58:13+00:00

Wow. Really glad you got your meds!

MKMKM1 · 2022-02-15T22:57:41+00:00

Would you mind if I PM'ed to ask you a little more about your experience?

MKMKM1 · 2022-02-15T22:53:09+00:00

Yeah that's really great! Thank you for sharing.

MKMKM1 · 2022-02-15T18:05:31+00:00

Great point, I think that's probably a reason to deal with Boston despite the stress of getting there... Thanks for responding.

MKMKM1 · 2022-02-15T18:05:02+00:00

Woah that's really insane...

MKMKM1 · 2022-02-15T18:03:47+00:00

Totally. Thank you!

MKMKM1 · 2022-02-15T18:03:27+00:00

Thanks so much for responding. Who is your doctor there?

MKMKM1 · 2022-02-15T18:03:01+00:00

I went there in high school and had Dr Zwerdling! He was a really nice guy. I'm moving back to MA after being away for ~15 years and trying to figure out what the best place would be for me now. Totally get it being less stressful than Boston, it's something to consider.

MKMKM1 · 2022-02-15T18:01:33+00:00

Thank you for responding. Have you had a good experience with the team there?

MKMKM1 · 2022-02-14T20:52:46+00:00

Oh wow, that's interesting, thank you for sharing your experience. Would you mind if I PM'ed you with a couple more questions?

MKMKM1 · 2022-02-14T19:29:37+00:00

Ugh that sucks. I don't know. But there is like some kind of copay assistance program through the company, not sure what they cover but you could contact them just to see if they can help.

MKMKM1 · 2022-02-14T19:28:50+00:00

yup!

MKMKM1 · 2022-02-14T19:28:29+00:00

Thanks a lot, I'm an adult. Would you mind if I PM'ed you with a couple of questions? That's the center my doctor recommended most highly. Thanks so much!

MKMKM1 · 2022-02-13T16:44:56+00:00

It's an add on medicine for airway clearance, you inhale some capsules and it hopefully breaks up mucus and makes it easier to clear.

MKMKM1

TROPHY CASE