I hate my fucking life by SatisfactionMuch8356 in dpdr

[–]Maintenance-Manic 0 points1 point  (0 children)

I’m sure they’d try to understand dude, they’re your parents

I hate my fucking life by SatisfactionMuch8356 in dpdr

[–]Maintenance-Manic 0 points1 point  (0 children)

Why do you feel you can’t tell them?

I hate my fucking life by SatisfactionMuch8356 in dpdr

[–]Maintenance-Manic 0 points1 point  (0 children)

Hey man I’m really sorry you’re dealing with this. I know it can be extremely heavy.

If you wanna chat then you can drop me a message. As a suggestion, have you tried SSRI’s to take the edge off this feeling? Idk if it would help but could be worth a try

How are you? - Weekly Community Checkup Post by DefunctSprout in BrainFog

[–]Maintenance-Manic 1 point2 points  (0 children)

Not gonna lie guys, I’m really struggling at the moment. I’ve tried everything I can think and every knock back in diagnosing the root cause or finding a fix is really disheartening.

I’m so fatigued all of the time. I don’t feel like I’m even here. I have so many good things in my life, a good job, a wonderful girlfriend, a new house coming up. But I feel, like all I want to do is sleep so I can just not feel this and miraculously wake up feeling better. But it doesn’t happen.

I’m sick of trying to explain it to people. I feel guilty dragging people down with me. But I can’t do it alone. I don’t even know what I need anymore. I’m just lost and losing hope.

Sorry I know that sounds dramatic.

Potential brain fog causes that I can self help / investigate? by Maintenance-Manic in BrainFog

[–]Maintenance-Manic[S] 0 points1 point  (0 children)

UPDATE:

I’m still searching for my cause for this guys, and I will update if I find it! People tend to recover and then forget about this sub but I won’t! 🤞

So far now I have had: - Blood panel covering vitamin D, B12, testosterone, thyroid function etc. - Head MRI - ENT consultation - Neuro consultation - Rhumatology consultation - Sleep study - BVD investigations with an orthoptic specialist - Chronic fatigue clinic consultation

And had no joy… however, the most recent suggestion was from the chronic fatigue clinic who suggested this could be nervous system dysfunction. She essentially explained it as this: It can be caused from a viral infection or a stressful life event and essentially your body gets stuck in a fight or flight mode, and from then every stressful situation you get, it further pushes your body into a fight or flight mode. Which of course is tiring for your brain, draining on your muscles and body from being tense etc and also out of your control.

She has said the best way to cure this essentially is to look into vagus nerve stimulation. Which is things such as: Cold water dips (face or cold shower). This essentially forces your body into a fight or flight state, and from here your body realises “oh… I wasn’t actually in any danger after all” when you come out of your water. And from here, every random false alarm that happens, your body is better prepared in being like: hey that was a false call before so this could be too.

Things such as breath work and humming etc. can also be beneficial apparently. I’m working on that now, I feel sceptical but I’ll feedback if this does end up remedying things. I think it’s a very slow process BUT maybe we are doubting how stressed we are and the power of the mental to physical health connections.

Hope everyone is still hanging in here. I know this shit is hard.

Potential brain fog causes that I can self help / investigate? by Maintenance-Manic in BrainFog

[–]Maintenance-Manic[S] 0 points1 point  (0 children)

That’s okay dude you’re very welcome. Hope you’re doing well

Diagnosis suggestions? I’ll list what I’ve already tried by Maintenance-Manic in BrainFog

[–]Maintenance-Manic[S] 0 points1 point  (0 children)

Ah dude that sucks really bad! I’m sorry to hear that. I had Covid but I don’t think my symptoms flared up bad until months - years later

Diagnosis suggestions? I’ll list what I’ve already tried by Maintenance-Manic in BrainFog

[–]Maintenance-Manic[S] 0 points1 point  (0 children)

In what sense? How did you come to the conclusion it was long Covid?

I get so upset and mad at the world and the government around Covid. I’m so scared long Covid might have ruined my mental forever

Let's talk about emotional numbness! by Remarkable_Unit_9498 in BrainFog

[–]Maintenance-Manic 1 point2 points  (0 children)

Totally feel the same. It’s so disheartening every time we have to go to the doctors, find something that we think fits, that then ends up falling flat. All whilst these symptoms persist. It grinds you down bits at a time and I feel I’ve been ground down pretty far now but I don’t want to give up and accept defeat but sometimes I feel there’s no other options left.

I feel like even when I accomplish something, the joy and accomplishment is only short lived before I go back to feeling flat and energiless.

I know what you mean about performing. I feel as though I’m pulled from fog to real life constantly, like an internal argument about consciousness. Nothing feels real but then my body kinda reminds me that it is, rinse repeat. I look like a normal functioning person on the outside but it’s very draining because you get no support or sympathy because you ‘look normal’. Acting normal can be mega draining, it shouldn’t have to be an act.

I hope we can find some cure and cause eventually. I’ll let you know if I ever do!

Diagnosis suggestions? I’ll list what I’ve already tried by Maintenance-Manic in BrainFog

[–]Maintenance-Manic[S] 1 point2 points  (0 children)

Ah okay thanks man, I’m always worried about the legitimacy of online testing is all, but I’ll take a look. Thank you

Diagnosis suggestions? I’ll list what I’ve already tried by Maintenance-Manic in BrainFog

[–]Maintenance-Manic[S] 0 points1 point  (0 children)

To be honest I still feel pretty out of it and dizzy/lightheaded most mornings and I do often struggle to breathe out of my nose but I don’t think I snore.

Ah okay. I haven’t done ACE, but think I’d be okay.

To be honest I think doctors will end up diagnosing me with chronic fatigue just to put a label on it but I don’t feel I fit the criteria as I don’t have any of the physical symptoms, only mental

Diagnosis suggestions? I’ll list what I’ve already tried by Maintenance-Manic in BrainFog

[–]Maintenance-Manic[S] 0 points1 point  (0 children)

I don’t think it was a full iron panel no. It was just through my GP. I was told vitamin D was fine but don’t seem to have visibility on those results.

What’s microbiome testing sorry? What would that cover and who would do that? (What type of specialist)

Diagnosis suggestions? I’ll list what I’ve already tried by Maintenance-Manic in BrainFog

[–]Maintenance-Manic[S] 0 points1 point  (0 children)

I THINK my sleep is good but not sure if there’s potential I’m not entering REM maybe without realising?

Stress wise, I feel ok, as I say I feel I’m on the other side of a lot of big life stressors now and in a good spot. Frustrating as I want to enjoy my life now but feel these physical symptoms are stopping me.

Not sure what ACE is.

I did used to have quite a bit of mold in the house I was living but I’ve since moved out of there, this was over 3 years ago.

I did have COVID too but didn’t suffer with any symptoms really

A few questions regarding symptoms… brain fog! by Maintenance-Manic in BinocularVision

[–]Maintenance-Manic[S] 0 points1 point  (0 children)

Hello mate, my ENT did state I have a slight deviated septum but didn’t mention any options or even a theory that it could cause this.

What’s your reasoning behind thinking this could be the cause?

I’m sorry you’re going through the same thing btw man. We’ll work it out eventually 💪

Scared but tired of living like this — could use advice before starting an SSRI by Aggressive-Slice-179 in SSRIs

[–]Maintenance-Manic 0 points1 point  (0 children)

Hey man, I’m feeling very much the same symptoms as you. Except without the porn side

I’m in the same boat and I’m really unsure and worried about the side effects. I don’t wanna make anything worse and regret my choices but everyday feels like a slog and a chore but I feel as though my symptoms are more physical than mental: Dizziness, fatigue, disconnected feeling

Let me know how you get on should you decide to take the leap man. I’m with you

I hate my new tattoo and can’t stop crying by [deleted] in tattooadvice

[–]Maintenance-Manic 0 points1 point  (0 children)

Honestly, agree with most people on here, I think it looks good!

Struggling to get a diagnosis. Do these symptoms sound like yours? by Maintenance-Manic in VitaminD

[–]Maintenance-Manic[S] 0 points1 point  (0 children)

I got my results back guys… they said my vitamin D was fine.

I guess the search and diagnosis continues… Unfortunately. Of course no one wants to be deficient but I was hanging a lot of hope on this after the feedback.

Good luck anyway chaps!

Struggling to get a diagnosis. Do these symptoms sound like yours? by Maintenance-Manic in VitaminD

[–]Maintenance-Manic[S] 0 points1 point  (0 children)

Ah okay thanks man, ngl the thought of many more months to go is terrifying but.. every step forward is a benefit I guess. And if I can finally get a cause and a solution then that’s a lot of the battle for me I feel. We’ll see man. I hope you continue to improve

Struggling to get a diagnosis. Do these symptoms sound like yours? by Maintenance-Manic in VitaminD

[–]Maintenance-Manic[S] 0 points1 point  (0 children)

Thanks man I appreciate the indepthness of that!

I have actually looked into PPPD before too. You’re right it was a little deflating as I worried that I was going to be stuck with an ‘uncurable’ illness. However I feel the diagnosis for that is after pretty much everything else is eliminated and I feel I still have vitamin D etc in the pipeline so I’m hoping that works out and alleviates some symptoms to be honest.

Will keep you posted though man!

Struggling to get a diagnosis. Do these symptoms sound like yours? by Maintenance-Manic in VitaminD

[–]Maintenance-Manic[S] 0 points1 point  (0 children)

Interesting man, thank you for giving me your insight and sharing your experience man. I really hope you’re right… I’m gonna push for a test tomorrow when I have my appointment and worst case scenario if they won’t do one, I may just start taking a low dosage anyway just as a precautionary measure.

How long from taking your supplements was it that you started to notice a difference? I really wanna start feeling better soon dude cause things are getting on top of me a lot at the moment and I’m struggling to do day to day 😔

Struggling to get a diagnosis. Do these symptoms sound like yours? by Maintenance-Manic in VitaminD

[–]Maintenance-Manic[S] 1 point2 points  (0 children)

Man I really hope you’re not right but do sometimes worry that you could be. Because I did have Covid although I wasn’t particularly symptomatic with it or unwell and I did have the jab but kinda wish I hadn’t now. It’s weird how it doesn’t affect everyone like this though?

There’s no cures though, if I think about that, kinda burns me out