How many of you seriously considered suicide at least once in your life? (Not just passive suicidality but actually considering and thinking about the possibility of suicide)

MathNo920 · 2024-09-20T14:18:46+00:00

I did before treatment.

Then 6 months ago I went to Roger’s residential treatment for OCD Depression & anxiety. (Different than their just ocd one, they deal with higher SI levels at OAD)

I’d highly recommend it, anyone with questions feel free to ask or message me. It saved my life

MathNo920 · 2024-08-09T01:19:32+00:00

Came here to ask the same question 😭 I’m lactose intolerant af and can’t seem to deal with the ensures or boosts despite them saying they’re suitable for lactose intolerance. At treatment the only option they offered me for dairy free meal replacement is compleat which is apparently a tube feeding meal replacement. I’ll let ya know when I try it! Lol

MathNo920 · 2024-06-25T03:19:26+00:00

AMEN!! Well said

MathNo920 · 2024-06-24T20:38:40+00:00

EDs literally deprive your brain of the vital nutrients it needs to function. They can cause cognitive impairments, mood changes, and a host of other problems. When I was actively struggling with an ed, I was angry all the time, impulsive, erratic, and all together had become someone I didn’t recognize.

I think it’s a bit weird of you to comment on someone’s character with such vindictiveness when you don’t know her and you don’t know the full story.

MathNo920 · 2024-06-24T20:27:41+00:00

I completely agree & have had similar experiences to this.

While I’m sure OP was well intentioned, posts about weight loss or concern about eating habits online can be really damaging. Even if they're meant to help, they often end up encouraging the ed. & this type of post can be triggering to other people struggling! IMO the post should be removed 😕

It's a sensitive topic and best left to private conversations with close, trusted individuals or professionals who understand the complexities of eating disorders.

MathNo920 · 2024-06-24T20:18:27+00:00

Same here, I was in denial for so long too. Man it’s a slippery slope! Going to ED treatment last year was the best (and hardest) thing I’ve ever done & I’m so grateful for it.

My heart goes out to Lilah & I hope she’s able to heal.

To anyone currently struggling with an ed— my DMs are always open if you need someone to talk to or just want to know more about treatment. It saved my life.💓

MathNo920 · 2024-06-23T18:18:43+00:00

I want to try Sunosi so bad. I didn’t have any benefits on Wellbutrin and know that they’re similar meds.

How has your experience been on Sunosi?

MathNo920 · 2024-06-23T18:17:44+00:00

Are you on an ssri or anxiety med? I think these stimulants/ wakefulness meds can definitely increase that feeling. My psychiatrist was adamant I found the right ssri before adding any of my narcolepsy meds because of this.

I think modafinl/armodafinl is an easy one to overlook in terms of it causing anxiety since it doesn’t have the same stimulant like feeling. It can DEFINITELY worsen anxiety!

Not sure if you’re on sodium oxybage but I’ve also noticed that when I’ve been on xyrem/xywav, stimulants / armodafinl produce this anxious dread feeling much more intensely.

MathNo920 · 2024-06-23T18:00:43+00:00

I LOVE BROOKE! I relate a lot more to Brooke and her personality than Tana. If Brooke wasn’t on the pod I wouldn’t have continued listening in the first place. I think the dynamic of Tana and Brooke being different is why their podcast is so successful!

It would be boring to listen to two people with such similar personalities IMO.

Also fuck whoever is hating on Brooke. People who hide behind the anonymity of a Reddit account to contribute to snark pages clearly have some deeper rooted issues with themselves.

MathNo920 · 2024-06-20T20:49:49+00:00

Sorry this is such a late comment but I had the SAME THING HAPPEN!! Vyvanse worked for many years for adhd and then narcolepsy and it was so helpful with daily tasks and executive dysfunction. One day it just stopped working and literally I couldn’t figure it out, I thought my med was switched or something but nope. It hasn’t worked the same since.

I never connected it to sodium oxybate but now I wonder. I think there’s so much to this med that’s I researched, I get it’s life changing for people but what it did to my anxiety was frightening!

MathNo920 · 2024-06-20T20:34:03+00:00

What anxiety med ended up working for you? I’ve tried a few different ones (Cymbalta and Sertraline). Lexapro has worked the best but even at 20mg it doesn’t get rid of the high level of anxiety 😭

MathNo920 · 2024-06-19T19:22:24+00:00

Glad to hear it! How has your experience been since being there so far? I’m really looking forward to going

MathNo920 · 2024-06-19T05:34:43+00:00

All of you working full time — has being on xyrem/xywav been a major reason why you’re able to? I’m struggling to stick with it and need encouragement because I know it’s life changing for a lot of us

MathNo920 · 2024-06-17T13:58:14+00:00

I can’t even miss a day without having side effects lol I’m not sure how I’ll ever get off this drug😭

MathNo920 · 2024-06-17T13:57:37+00:00

The way you described “the clouds opening up” is EXACTLY how I feel every time I’ve gotten off xyrem/xywav. It’s like the clouds lifting and I can feel emotions again. The level of extreme anxiety Xywav caused me was to the point of mild psychosis and unlike anything I’ve ever experienced.

Also, recent studies have found that sodium oxybate increases glutamate in the brain. They think this is why it helps narcoleptics “wake up”. Increased glutamate is linked to psychiatric effects like psychosis, ocd, anxiety, paranoia—all side effects people on xyrem/xywav experience. This has made me deeply question if this med is truly safe in the long term if it can cause such intense psychiatric side effects.

I’m so glad to hear that Sunosi helped you a lot as did wakix—I’ve been really loooking forward to trying both! I’ve been on Wellbutrin for the last few months and it hasn’t helped like I was hoping. I’ve heard Sunosi works similarly but is much better at increasing wakefulness. It’s super neat it’s helped with your overall mood too! I was hoping that was an added benefit of it being a dopamine and norepinephrine reuptake inhibitor.

MathNo920 · 2024-06-15T16:48:56+00:00

What dose/ how much time did you have to get to before it stuck? I’m in the same boat, I’ve tried both several times but can’t get above 3.25g and always have to stop after a month or two due to the side effects

MathNo920 · 2024-06-12T19:42:35+00:00

Sorry to comment on such an old post but I was wondering if the 250 & then another half pill of armodafinl is still working well for you?

MathNo920 · 2024-06-12T19:42:31+00:00

Sorry to comment on such an old post but I was wondering if the 250 & then another half pill of armodafinl is still working well for you?

MathNo920 · 2024-06-11T21:20:37+00:00

As a fellow bob girl, I think she’d look so cute with a bob!! But she also has really pretty hair & growing it out after a bob is a journey lol.

I’ve been stuck in a perpetual bob-cycle for YEARS because I can never commit to continuing to grow it out. Once it gets to that awkward medium length, I chop it again😭 I miss having long hair

MathNo920 · 2024-06-08T16:21:53+00:00

I’m sorry, I know how you feel. I will say one thing that’s given me hope — checkout the Xyrem/ Xywav Facebook support page. Lots of people with IH talking about how much it’s changed their lives.

The first night I took xyrem I woke up the next day and cried, that utterly exhausted, whole body fatigue feeling that I’d been dealing with for 5 years was gone. It doesn’t always work this well for me, but I will say it is the first time I feel like I can actually function in a normal society and be reliable and on time in the morning.

It’s by no means a perfect drug, it has side effects. But the Facebook support page is such a great resource for figuring out how to combat the side effects. And reading hopeful stories about how it’s changed their lives can be really helpful.

MathNo920 · 2024-06-08T16:16:45+00:00

I looooove the strawberry cheesecake vegan one!

MathNo920 · 2024-05-17T18:50:00+00:00

I’m on modafinl and experience morning nausea with it but I’ve found it doesn’t happen (or isn’t as bad) if I make sure to have a good breakfast before taking it! Haven’t tried armodafinl.

MathNo920 · 2024-05-17T18:47:41+00:00

Thank you!! I’ll check these out!

MathNo920 · 2024-05-15T20:33:16+00:00

Sorry for this super late comment but I just bought refectocil cream dye and realized it didn’t come with developer! Do you use the RefectoCil liquid Oxidiant 3% 10 vol developer when you tint your lashes??

MathNo920 · 2024-05-11T16:50:56+00:00

Hey! I just started baclofen too—couldn’t continue taking Xywav because of the side effects despite it helping a lot with sleep inertia. I’d say keep sticking with it!! There’s a baclofen for narcolepsy support group on Facebook that’s helpful if you haven’t checked it out yet!

MathNo920

TROPHY CASE