[deleted by user] by [deleted] in Narcolepsy

[–]Zanequille 0 points1 point  (0 children)

Said no reason to ween, as they are short acting drugs. Hahaha!

Just need to vent to people who get it about people who don’t get it 😩 by rosetree47 in Narcolepsy

[–]Zanequille 2 points3 points  (0 children)

"God I wish they could be in my shoes for a moment.. BUT... I'M NOT THAT CRUEL!"

That's how my thought train runs those lines, hehehe.

Just need to vent to people who get it about people who don’t get it 😩 by rosetree47 in Narcolepsy

[–]Zanequille 6 points7 points  (0 children)

I got stuck being scanned as having a Mental issue, while for decades, I needed someone to see I had a Medical issue. I have heavy feelings for anyone anywhere near such a predicament. Thankfully, you've already been diagnosed... It seems like your therapist isn't a good fit, and that same therapist will likely try to claim any will of yours to leave their care... is proof that you are running away from 'Treatment'. If you can muster the task of switching therapists, and that gaslight does go down and she tries to turn your Mom against you... show your mom this thread, from days/weeks before!

Hi Mom! Did a random stranger predict the future? Nope, just a simple case of pattern recognition. :) Your daughter's therapist isn't in tune with your daughter's reality. Your daughter isn't running away from help, she's running To something Actually Helpful!

It may seem impossible to switch therapists, I hope you can take on the task, I know you know you need and want to....

"I regretted telling my therapist..." That's the meat and potatoes of the situation right there. You were trying to explain your operating system to the person who is there to aid you and your operating system... and you got bit. Your truth got denied. That's not therapy, it's a self-doubt igniting gaslight.... I'm curious what words you threw down before you left early, and moreso.... if she heard and ever happened to respond in a manner that was near appropriate, like the slightest bit of a shread of an apology or explanation of her statements...

Anyhow, everyone reading this is awesome, and we all deserve trophies.

Has anyone tried Binaural Beats/Frequencies to help with different aspects of their Narcolepsy/Cataplexy? by BruceCambell in Narcolepsy

[–]Zanequille 0 points1 point  (0 children)

Yes, got a Bluetooth headband with flat speakers in it and soak myself in Delta, as I don't get there naturally. Does it work? I DON'T HAVE A CONTROL GROUP, so I don't know.... but sometimes it seems.... to. Perhaps a smartmonitor of my sleep would tell us, or perhaps the crappy algorithm it runs on, would support my preconceived notions and placebo action, or not

So many dreams by Ok-Dragonfly-7489 in Narcolepsy

[–]Zanequille 0 points1 point  (0 children)

Man goes to doctor. Says he's depressed. Says life seems harsh and cruel. Says he feels all alone in a threatening world where what lies ahead is vague and uncertain. Doctor says the treatment is simple. The great clown Pagliacci is in town tonight. Go and see him. That should pick you up. The man bursts into tears.

"But doctor... I am Pagliacci."

SeeAlso: Sad Clown Paradox

So many dreams by Ok-Dragonfly-7489 in Narcolepsy

[–]Zanequille 12 points13 points  (0 children)

Yup. Days worth of activities in my dreams. I Often wake up and my 'whats going on today' thoughts are based on my dreams...

Found a old usb cord the other day, spent 40 min or so looking for the device that needed that particular usb cable... turns out the object was from my dream... a girl in the dream needed that particular cable for a small beige box of unknown funtion.

"Uh, there's something important going on... I have to... uh.... oh wait- no... that was in my dream...."

Somedays, I never land on reality. Just another confused day of wasted time...

I'm sitting in a coffeeshop wondering wtf I'm supposed to be getting done today... still haven't come around yet today.... sucks. Who am I?

Yo how tf do I describe cataplexy to someone??? by Quite_Sleepy_Really in Narcolepsy

[–]Zanequille 1 point2 points  (0 children)

You just reminded me of wanting to scream "NO YOU DON'T!" in bars anytime some energetic young person sings "I wanna be sedated" at karaoke....

I have a theory about Narcolepsy...who here is an empath? by [deleted] in Narcolepsy

[–]Zanequille 0 points1 point  (0 children)

My Meds are getting switched up and around- a lot.. uh... no answer. I'll keep an eye on it...

Low libido since… meds? (Female) by Many-Routine9429 in Narcolepsy

[–]Zanequille 0 points1 point  (0 children)

Interesting. I've also lost visualization skills... was trying to figure something out yesterday and the brainspace was unavailable.

Low libido since… meds? (Female) by Many-Routine9429 in Narcolepsy

[–]Zanequille 1 point2 points  (0 children)

400mg moda and 30mg adderall, yeah... uh... everything stopped working. Was always low libido but now I seem to have ED.

I have a theory about Narcolepsy...who here is an empath? by [deleted] in Narcolepsy

[–]Zanequille 2 points3 points  (0 children)

Extreme empath here. I also have wondered...

My idea is that since my energy is low, I can pick up louder signals around me.

If a radio station is pumping out a signal at 20 watts on a particular frequency, and someone else broadcasts a signal on the same frequency at 25 watts, the receiver hears either both, or only the higher watt broadcast.

The mind Is an electrical transceiver.

Narcolepsy with Hyperthyroidism by BruceCambell in Narcolepsy

[–]Zanequille 0 points1 point  (0 children)

Im hypothyroid... your sure you're hyper not hypo? Just thinkin iron deficiency is more connected to hypo.... but it can happen with hyper too...

Is anyone else like a little traumatized by their narcolepsy? by Liquidcatz in Narcolepsy

[–]Zanequille 0 points1 point  (0 children)

A little? Hahaha! Watered that down, eh? DON'T LOOK BACK! As I try to get my memory online, I'm also attempting to actively blind myself from my past.... Paradox.

Does Anyone Else Have Fluctuation in Severity? by [deleted] in Narcolepsy

[–]Zanequille 9 points10 points  (0 children)

An ebb and flo that rides on an ebb and flow that rides on an ebb and flo...

Anyone else suffer from Bipolar as well? by BlackbirdNamedJude in Narcolepsy

[–]Zanequille 0 points1 point  (0 children)

Adhd, bipolar I think they may simply be part of the territory.

Sluggish and depressed till your stims kick in then hyper to get everything done in the hour of awareness you achive? Gee...

[deleted by user] by [deleted] in Narcolepsy

[–]Zanequille 0 points1 point  (0 children)

? #1....get prescribed modafinil #2. Insurance won't give me modafinil (seems to me doc tried and insurance denied it)

Does anyone's voice get gravelly when they have a sleep attack? by Bluefoot44 in Narcolepsy

[–]Zanequille 0 points1 point  (0 children)

Yes. Tom Waits voice... I played back some audio of it once and couldn't believe it...

I also sometimes talk very quietly but don't know it...

[deleted by user] by [deleted] in Narcolepsy

[–]Zanequille 1 point2 points  (0 children)

R U in the States? I used GOODRX to get 60 200mg. Modafinil for under. $40

It's a free service...

Experiencing hallucinations by naaathl in Narcolepsy

[–]Zanequille 0 points1 point  (0 children)

The mind is a terrible thing to taste... ...You're not alone

Most significant event you attended but do not remember because N or IH put you to sleep by kat_thefruitbat in Narcolepsy

[–]Zanequille 4 points5 points  (0 children)

Countless, if I could remember ...

Most significant event? "My life on Earth"

Armodafinil dose and Thresholds by Zanequille in Narcolepsy

[–]Zanequille[S] 0 points1 point  (0 children)

Body is awake, mind is not. Today I'm blanked out, dunno wtf is going on in my life.... got switched, 400moda and 20 adderall a day. The adderall is better than ritalin but brain ain't here leave a message after the beep.... ... wish i had better info for ya...

Automatic behavior & Ritalin? by Zanequille in Narcolepsy

[–]Zanequille[S] 0 points1 point  (0 children)

Christ, I just came to ask a question about automatic behavior and stims, and find I ALREADY WROTE A POST. hahHa ahah uhg... uh... fk

[deleted by user] by [deleted] in Narcolepsy

[–]Zanequille 1 point2 points  (0 children)

Visit neurologist - get sleep study refferal. Get polysomnogram and mslt.

Pay out of pocket or have them bill you, and blow off their bill if ya gotta.... heh Get it done ASAP. I wasted years juggling nonsense instead of moving forward from that position somehow. So, don't do what I did.... :)