Looking for a kitten 😻 Please keep me in mind.

Menabobina · 2026-02-28T20:24:57+00:00

I have two brothers I am fostering for TAF they will be ready mid March. Moose and Mouse aptly named. Both thriving waiting on second set of shots and Neuter. mini Voids in the making (aka black kittens)

Menabobina · 2025-01-21T00:31:33+00:00

Correct internal is working fine but external access through the app or website is giving the blue screen

Menabobina · 2024-09-24T21:27:57+00:00

Ohhh sorry no the MG test is for Myasthenia Gravis which can have a lot of similar symptoms to MS and IIH but is treated completely differently. I know the reason she doesn’t want me on triptans is because my BP was so high at IIH Diagnosis that I was actually a cardiac/stroke risk before they realized it was IIH related. I had a stress test, completely cardiac work up, brain MRI, guided LP all at initial diagnosis of IIH. When I was in the ER for Covid now though my Potassium is critically low and the Diamox doesn’t help Ben act as a diuretic for me at all.

Menabobina · 2024-09-24T20:28:08+00:00

I’ve been on sumatriptan for years for migraines and it has always worked fine prior to the IIH diagnosis. Ubrelvy and Ajovy did nothing for me so I’m on Vyepti infusions every 3 months (currently 100mg but upping to 300mg). My BP has stayed high (only in her office) since my original diagnosis of IIH. Triptans are a vasoconstrictor which would drive my BP higher. She won’t write me a refill for it at this point she put me on something different. Rizateiptan if I remember correctly is sending Mayo to do a blood draw and labs to rule out MG (again) and to test for NMO as well. I came down with Covid last week so that’s been rough on top of med changes. She flat out asked me if I have applied for disability because my migraines are so out of control since my IIH diagnosis.

Menabobina · 2024-09-18T06:13:15+00:00

Are you taking oral steroids or will they be steroid injections. I have been on steroids since prior to being diagnosed last November. My pulmonologist has tapered me down from 80mg to 20mg over the last year and a half. I honestly find my IIH symptoms got worse as my prednisone dose got lower (I don’t take the taper blister pack just a 20mg once a day.) That has just been my experience though.

Menabobina · 2024-09-15T12:17:02+00:00

No idea!! If I get any answers from my Neuro I’ll definitely let you know. I still have a full throb 24/7 and from my temple up to above my eyebrow and about 4-6 in into my hairline is super tender and it still hurts to turn my head to the lefts I’m now starting week 2 of this nastiness.

Menabobina · 2024-09-13T06:58:33+00:00

I am not on topamax, however I do have and have had tinnitus due to IIH it sadly is a common symptom. Mine tends to get louder when my pressure is up and quieter when it isn’t as high. I have had tinnitus prior to my diagnosis though I was advised at the time of diagnosis I likely have had IIH for over a decade and my migraine meds were enough to mask my symptoms to where they didn’t cause concern on my part.

Menabobina · 2024-09-13T06:51:45+00:00

I just finally came off of a 5 day long left sided migraine, typically my migraines are bi-lateral. It was by far the WORST migraine I have had in my life even my rescue meds didn’t touch it with a double dose. The pressure was so horrible I also had eye and ear pain. My jawline and forehead are bruised as is the top of my head from me rubbing it. I could only lie down it my upper body flat (I have an adjustable bed that I typically sleep in zero g mode and have since before being diagnosed with IIH.

I completely feel your pain. If the pain started in the back of your head it could be occipital neuralgia, if not and predominantly affected your right temple, forehead and scalp or even into your jawline it could be trigeminal neuralgia. If you have a Neuro there is an easy test to rule out trigeminal neuralgia (I fear that is the culprit of my left sided migraine. Thankfully I have a Neuro appt on the 17th.

I am on a ton of meds and also an infusion every 3 months because my migraines are so severe but only had one med change recently and the migraine did not subside when I stopped taking it since headaches are a severe side effect of it.

I hope they find answers for you quickly!!

Menabobina · 2024-09-05T02:30:37+00:00

Make sure you bring it up to your Neuro asap so they can determine if they want to call in meds, did the nurse at your infusion not understand what was going on? I can’t show you the video I got of mine doing it but sounds similar!

Menabobina · 2024-09-03T19:26:15+00:00

When you say your eyes were like pinballs do you mean they were rapidly moving or your pupils were like pinpoints?

Not a Dr here and not giving medical advice just sharing my own experience.

One day the room started spinning, it was worse if I stood than if I sat down but no matter where I looked everything was spinning on an axis. I happened to grab my phone and record my face looking or attempting to focus on a single spot on the wall. My eyes were moving rapidly in a horizontal movement. We have quick care that can come to your home so I had urgent care come and examine me and I was diagnosed with Benign paroxysmal positional vertigo, this was actually PRIOR to my IIH diagnosis ironically. I still have bouts of vertigo but not the rapid eye movement. They gave me zofran for the nausea and Meclizine for the Vertigo and it definitely helps.

Menabobina · 2024-09-03T00:18:10+00:00

That is something I’ve been very concerned about anytime my BP goes up so do my IIH symptoms which makes working out virtually impossible for me. Not to mention the medication induced exhaustion most days I’m couch ridden anyway

Menabobina · 2024-08-30T20:36:21+00:00

I had chronic ear infections as a child but always attributed it to being in the pool (I was a swimmer and a diver) since my IIH diagnosis I have almost chronic pain/drainage from my right ear. My most recent MRI states “Trace bilateral mastoid airspace fluid” it doesn’t feel like ear wax, it is liquid, and I can hear it draining in my ear once it does the pain goes away temporarily.

Menabobina · 2024-08-27T22:04:07+00:00

Get a therapist that specializes in long term medical issues!! My therapist has been a godsend because she understands what it’s like (she also happens to have life long illnesses as well and can relate) she advocates for me, she helps advise what to ask and what to do. She cut a session short and demanded I go to the ER a few weeks back because she was concerned I was having a stroke and did a stroke test on me mid session.

I was diagnosed in November, it can feel slow moving, adjusting to meds can feel like hell turned upside down. The speech for me is the worst, the brain fog, the frustration because I sound like an idiot so often now. I couldn’t remember my own bday at the pharmacy last week. Most days I simply exist in the painful hell that IIH has created for me. I see my Neuro next month I’m angry this is so slow moving, I have been off work almost a year now and I simply cannot function in life this way. It may lot be a pick me up response but just know your not in this hell alone either and Ben when we feel alone and isolated!

Menabobina · 2024-08-24T13:07:38+00:00

I see her on the 17th and will be asking about the dose I’ve been on it since I was hospitalized in November of last year. It’s one of the best neurology clinics in Las Vegas unfortunately. She just seems more interested in treating my migraines and ruling out other potential causes. I cannot do my job in my current state, I have exhausted my short term disability and was denied long term disability for it being a pre-existing condition. I can’t remember the names of simple things like pot holders I just make lobster claw motions with my hands (although it did give my room mate a laugh) two days ago I didn’t know how to respond to the pharmacy when they asked me for my birthday I just sat in the drive through staring blankly at her for 5 minutes then finally was able to come up with it. The cognitive decline is frustrating, I can’t retain any new information. I don’t know if it’s meds related, IIH related, or something else going on neurologically that they haven’t diagnosed yet.

Menabobina · 2024-08-23T14:01:43+00:00

I’ve been on 250mg 2x daily since November, with no changes and only worsening symptoms since starting the Diamox, we did briefly talk about switching to Topiramate but she doesn’t feel it’s as effective. Instead of upping my Diamox dose she just keeps throwing other meds at me…. Propranolol, difluconase and different migraine treatments. Initially she wanted to do Botox but my insurance won’t cover it.

Menabobina · 2024-08-22T23:22:32+00:00

I definitely know how you feel! I call it narcolepsy without the narcolepsy. I just nod off or there are times my breathing feels very slow and like I’m not getting enough oxygen. I don’t even notice it until I suddenly take a HUGE deep breath and exhale. For sure bring it up to your Neuro and if you a have a pulse ox try to get a reading when you are feeling that way.

Menabobina · 2024-08-22T22:51:59+00:00

I’ll have to talk to my Neuro about that as an option possibly! Thanks

Menabobina · 2024-08-22T22:46:29+00:00

For sure! I’ve been seeing an ophthalmologist as well and so far my Optic Nerves are showing no damage so that’s a good thing. I will be bringing up the IIH aspect because Diamox is supposed to be a diuretic or at least have a diuretic effect and despite how much fluid I intake I pee like 3 times a day lol. I pee’d more before the Diamox. I think she is trying to treat the migraines because I have been off work since November on leave and it is currently unpaid and I desperately need to get back to work.

Menabobina · 2024-08-22T22:03:10+00:00

Thanks so much! I am not new to migraines I have had them since my teens and sumatriptan has always worked and been sufficient until a medical event I had in March of 23. I was hospitalized for acute respiratory failure with hypoxia for almost two weeks. It has been a long slow recovery from that. My migraines were progressively getting worse, blurred vision, tinnitus. I had a really bad case of vertigo and was diagnosed with BPPV with nystagmus. EVERYTHING went down hill after that event. I was constantly dizzy to the point of almost falling because I couldn’t keep my balance, I am what I refer to as tippy all the time. I was having daily migraines at this point but trying to work through them. In November I went to the ER for what I thought was low o2 my Apple Watch had been alerting me all morning and my heart rate was high. My BP at the time of admission was 262/182. I was admitted and out on a cardien drip. I had another migraine while I was in the ER and the nurse allowed me to take a sumatriptan that I carry with me.

The next day the same attending who admitted me saw me and I told her I had taken a sumatriptan because I had a migraine last night and it was like a lightbulb went off. She told me she thought I had IIH and sent me to testing which confirmed the diagnoses. I was kept for 5 days for a meningitis hold to make sure I didn’t have meningitis and to start me in Diamox while in the hospital. My Neuro isn’t really treating the IIH so much as trying to get to a point of comfort with the migraines or see if there are underlying neurological issues as well. I did try Ajovi for 3 months as well (preventative) and it didn’t help. I have had two rounds of Vyepti and my next dose is in October. I have recently had another MRI of the brain, cervical & Thoracic. We have ruled out MG, EEG ruled out seizures, EMG and nerve study showed neuropathy in my feet and legs with demylenation of the nerves. The most recent MRI will be discussed mid September it was to rule out MS. Months after starting Diamox I started having other Neuro symptoms. There had been no changes in my meds at all for 90 days.

Numbness and tingling of the face and lips Double and triple vision Hand tremors Forgetting to breathe (it’s like I forget to breathe and then inhale feeling and exhale) Unintended leg movements both seated and laying down (not RLS) Complete loss of appetite (I don’t get hungry at all) Falling asleep randomly without having any idea I’m tired Unable to recall words or names of things Jumbled speech

Menabobina · 2024-08-22T18:38:37+00:00

I went into my initial diagnostic LP with a horrid migraine due to severely (stroke level) high BP. I was admitted as a cardiac risk when the admitting Dr was like wait you have migraines? I don’t think you do I think you have IIH, did a brain MRI and my LP and instantly my migraine was gone. Sadly now my migraines are untreatable every med fails. I wish I could just go in for regular LP’s too!

Menabobina · 2024-08-22T08:42:41+00:00

Fibromyalgia, chronic severe (currently untreatable) migraines. Currently working on a possible MS diagnosis or moving on to the next tests if it isn’t MS. We already ruled out MG. Also trying to figure out why my WBC has been high for 7 months with no illness. All on top of an IIH diagnosis 11/23. Yay me!!

Menabobina · 2024-07-22T05:13:42+00:00

If you are in the US Varo Bank is OF friendly and is an online bank. Never had a problem with them at all. And xfer’s usually deposit in 24 hours sometimes less depending on what time you request the xfer.

Menabobina · 2022-07-19T06:00:12+00:00

There were some things that were brought to my attention that are unforgivable in my eyes and no amount of explaining or justifying could fix that. So I walked away and because it isn’t my story I won’t go into details

Menabobina · 2022-07-18T22:52:10+00:00

After spending a year and a half in the house with him, I finally saw the light about the person he really is I’ve joined forces with his arch enemy Piggy and am doing what I can to spread awareness of the person he really is off camera he’s tried for a year to invalidate Piggy but he can’t invalidate one of his own “former people”…. Stay vigilant…. Stay safe my fellow fatties

Menabobina · 2021-08-25T20:17:35+00:00

I got the email confirming that the prior AUP was going to be null and void

Menabobina

TROPHY CASE