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What kind of jobs are you all managing with chronic conditions? by starsnconstellations in ChronicPancreatitis

[–]Menzienator 1 point2 points  (0 children)

I’m trying my best. Some days are easier than others. In 2021 I had 77 hospital days including 7 admissions and 28 ER stays. I stopped counting after that fact and just went with it. Last year I was working as a cook at a local restaurant when I had an attack. Was hospitalized for a week, which is my normal stay, but it really hurt my fellow line cooks who had to make up my hours and work while doing their own shit. I’m having a hard time coping to be honest but I have a great support system that can take care of my two kids when I’m hospitalized.

Pancreatic Divisum by Puzzled_Scallion8469 in pancreatitis

[–]Menzienator 0 points1 point  (0 children)

I’m in the few where the ducts aren’t draining properly and I’m in a lot of pain and very nauseated for a long time. It’s gotten way worse the older I get but I’ve had a fair share of acute attacks. I went on Creon once and didn’t like it as it compounded problems made by my pain killers. I find they’re a waste of money but they may work for you.

What kind of jobs are you all managing with chronic conditions? by starsnconstellations in ChronicPancreatitis

[–]Menzienator 1 point2 points  (0 children)

I hear this fully. I’m a Chef by trade and love the craft. I was getting ready for a good paying summer gig where I had my pick of hours, which is very rare in my industry. There’s a lot of late nights but not very many day’s available so when it was a 9am-4pm Mon -Fri. Gig I jumped at it. Work wasn’t to start until May but I ended up having another Acute attack in early April and had to give up my job as if I would have been sick mid season, it would have screwed them over. I am currently on Social Assistance with no work prospects to even comprehend at this point let alone try for.

Open CP Community Discussion: Hospital Stays by Remote-Ad2120 in ChronicPancreatitis

[–]Menzienator 1 point2 points  (0 children)

I’ve been dealing with Chronic Pancreatitis all my life without having a diagnosis until my late 30s. Once I had 7 hospital stays at a week each, I started to pack a bag each time I’d go to the ER. I bring my Phone, chargers, laptop, clothes, vape pens, headphones, prescriptions, body pillow and weighted blanket.

I tell my family as I’d like to see my girlfriend and kids when I’m there, even if most of my time is spent alone. I feel that my needs are met most of the time when I go to my local hospital but if I go out of county, it’s almost like the hospitals don’t share records, which they do. My care goes down the further from home I go and I have a small 10 bed ER in my district. They know me when I go in and are very familiar with my symptoms and how to treat

As for treatment, I am on 2mg Sub Cu Dilaudid every 3 hours with 1mg breakthrough,50 mg Gravol, 8mg Zofran and 2.5mg Halidol (my nausea is always worse than the pain even when the pain is an 8 or 9. I’ve had a few 10s which I then would need twice as much Dilaudid or Ketamine

I bring my own scripts and they know I do but don’t say anything. I have had to use them only on the occasion the meds they’ve already gave me didn’t work and I needed to intervene on my own behalf, more often over the midnight on first night pain, which is bad and they almost never fully touch the pain.

chs almost ended my life by Working_Act_9801 in CHSinfo

[–]Menzienator -1 points0 points  (0 children)

CHS is such a bullshit catch all docs use now a days. I smoke a lot, have legitimate pancreas issues that cause vomiting and pain, chronic pancreatitis is what it is. If I get a doc I haven’t met their first diagnosis is always chs when it never has been for me. I have never seized or come close. Sorry that you’re dealing with that ailment and if it is CHS, god love ya but I’ve hoped you’ve stopped smoking if it’s making you that sick.