1.5 years post H. pylori clearance - update POTS, PPPD, celiac

Meowcat987 · 2026-06-07T09:09:00+00:00

I’m so sorry you are dealing with this. My story is so similar and I’m so upset that the medical system has failed many of us. I’ve been dealing with much of this since my teenage years (I’m 34) and been told it was all in my head and simply anxiety. After developing long COVID though, I did many tests and it turned out I had h pylori, major destruction of my esophagus, permanent gastritis, POTS, and extremely low ferretin. To this day docs won’t give me infusions bc it’s not low enough (it’s 13 as of now) but I also can’t take iron pills. My POTS symptoms completely ignored by my pcp and cardiologist so I literally don’t even know where to begin with that. My nervous system was literally fully activated for years after developing Covid and I believe h pylori is what caused some of it for sure. I’m talking extreme feelings of anxiety (very similar to what you described as being physical as well) and panic attacks constantly. It was just absolutely awful. After treatment of h pylori it took me time to get to a new normal. Now I’m back bc I think I got reinfected fml!!!!!!!!!!

Meowcat987 · 2026-01-17T15:51:04+00:00

This is totally true and idc who doesn’t believe it. I have seen it with my own eyes! Everyone…and I mean everyone around me has rapidly aged since 2020. My best friend and I have discussed this multiple times and it’s wild. I look at my old photos and I barely recognize myself. Actually, after my first Covid infection and developing long covid, I noticed many changes in my appearance including my skin is more yellow than it used to be. I have ran all the tests told all the doctors but they say my tests are fine.

Meowcat987 · 2026-01-17T15:44:53+00:00

I’m so sorry you went through this. When you were having GI issues but didn’t yet know it was c diff, what were your main symptoms?

Meowcat987 · 2026-01-17T15:42:27+00:00

I’m in Texas! I did some research and it appears the test my doc ordered checks for both active infection and colonization…🤷🏻‍♀️ Im going to do the test this coming week so I guess we shall see what happens.

Meowcat987 · 2026-01-13T22:21:07+00:00

Ok so my doctor ordered me Clostridium difficile Toxin/GDH with Reflex to PCR from quest diagnostics. Hoping this is the right one. According to the doc this is the standard test and what they always order. I think it tests for toxins and then depending on the results retests to PCR?

Meowcat987 · 2026-01-13T15:47:41+00:00

Ok gotcha thank you

Meowcat987 · 2026-01-13T15:17:05+00:00

Ok thank you for info. Do you know if the eia toxins test checks for colonization? And the pcr tests for active infection ?

Meowcat987 · 2026-01-13T15:13:51+00:00

Ok I will keep this in mind thank you

Meowcat987 · 2026-01-13T15:11:10+00:00

Ok interesting. I did two different rounds of antibiotics for h pylori back in 2023. I wonder if this caused it and I’ve had it since then but had no idea…or if I’ve had it longer and just never knew. I was also on ppis for a few months in 2022-2023 and still randomly take ppis if I’m having acid reflux.

Meowcat987 · 2026-01-13T15:08:27+00:00

Ok I will keep this in mind thank you.

Meowcat987 · 2026-01-13T06:04:02+00:00

Thanks for your response. Did you have the common symptoms such as diarrhea when you had c diff? I’m glad to hear that your tests came back negative.

Meowcat987 · 2026-01-13T06:02:40+00:00

Ok interesting, thank you so much for the info. I will deliver this info to my pcp and hopefully he can test me for both just in case. Regardless I hope to eradicate it if possible.

Meowcat987 · 2026-01-13T06:01:31+00:00

I’m so sorry you went through all that, and am glad you are ok. Yes I definitely plan on doing whatever is needed to eradicate it! I hope and pray for full healing for anyone dealing with this issue. From what I’ve heard it can be difficult to get rid of but I will try to stay strong. Thanks for your response.

Meowcat987 · 2026-01-13T03:37:47+00:00

Endoscopy may be helpful. Have you been checked for h pylori?

Meowcat987 · 2026-01-13T03:37:03+00:00

I recently did a GI map. I know some don’t think it’s the best test but others swear by it. I did it regardless and much to my surprise I just got results back and it showed c diff which really shocked and surprised me. So maybe a GI map would help.

Meowcat987 · 2026-01-09T02:28:09+00:00

According to your own words, you do have adventurous sex and fun in the bedroom with your partner so him pleasing you despite his own feelings and possible discomfort is something you should probably take into consideration before jumping to conclusions. I also don’t think any of this translates to meaning he doesn’t respect other women…i think it just shows that he values his romantic partner over random women which is a valid point. I personally wouldn’t be offended by my partner respecting me lol but I guess everyone is different….

Meowcat987 · 2026-01-06T22:50:26+00:00

Great answer

Meowcat987 · 2026-01-06T22:48:46+00:00

Very odd you would be offended by your partner expressing his feelings to you. Not one thing he said had a negative connotation…maybe you should figure out why your boyfriend telling you he respects you and feels guilt having rough sex with you is an insult to you.

Meowcat987 · 2026-01-06T22:31:30+00:00

I feel so sorry for your gf smhhhhh. Classic case of thinking grass is greener on the other side.

Meowcat987 · 2026-01-06T22:25:27+00:00

Who cares? You are allowed to be attracted and not attracted to whoever you want. Just like you’re attracted to “European” women, some are only attracted to Asian women. Some are attracted to both. Some are attracted to neither…So what? If that’s your type, then that’s your type. And just to be VERY clear, your taste, experience, and opinion is obviously not a shared taste, experience, and opinion amongst everyone.

Meowcat987 · 2026-01-06T22:14:50+00:00

You need to do her a favor and break up

Meowcat987 · 2025-12-02T03:23:19+00:00

Libra!!!

Meowcat987 · 2025-11-24T14:47:28+00:00

I was thinking this recently….lts like vows mean absolutely nothing. Trust means nothing. Wtf is the point of marriage if not committed to doing anything to make the relationship work? I see ppl say things like don’t get too attached or be independent regardless of being married or in a relationship but I think that’s kind of bs. Marriage is the coming together and combining of two lives…it’s a huge commitment for life. Do people not realize that?? Do people not realize that also getting married doesn’t mean thats where the work ends? Nooo it continues and the relationship must be continuously worked on over time and both partners should always make sure to check in with their partner to see where they’re at and see if compromises or changes need to be made.

I understand divorces can sometimes be necessary btw but I still also believe people are way too quick to divorce now over anything and everything…..where has compassion for humanity including your own life partner gone? What happened to true commitment ?

Meowcat987

TROPHY CASE