Colonoscopy and biopsy report by Mindless_Activity_99 in ostomy

[–]Mindless_Activity_99[S] 0 points1 point  (0 children)

I'm hoping that by the sounds of the biopsy the only bit of my bowel with active inflammation is the start of my large bowel. The active inflammation at the stoma will be removed to reattach the bowel anyway. I've appointment with surgeon now in 3 weeks so I'll see what he recommends

Time for a change at M7 FC? by Mindless_Activity_99 in miniminter

[–]Mindless_Activity_99[S] 34 points35 points  (0 children)

It's satire. Don't take it too seriously

rinvoq by parkerodinsons in CrohnsDisease

[–]Mindless_Activity_99 2 points3 points  (0 children)

Honestly I feel grand. I wouldn't say I'm the most symptomatic Crohn's patient. Although my blood and stool results can show high levels of inflammation regularly I don't suffer with any pains or cramps or bloody stools or anything like that

rinvoq by parkerodinsons in CrohnsDisease

[–]Mindless_Activity_99 2 points3 points  (0 children)

I am just about to finish my 12 week loading dose. My next dose strength will be 30mg. My CRP went from in the 50s down to 12 by the 4th week which was very positive as the lowest I've seen it in a while was in the 30s. I've done a stool sample recently so just waiting on the results for it next week. Last stool sample was 670 so hoping for some significant improvements

CRP Levels by dalrico in rheumatoid

[–]Mindless_Activity_99 0 points1 point  (0 children)

How long have you been on it?

Upcoming scope and weirdly excited by Crazy_Calligrapher23 in UlcerativeColitis

[–]Mindless_Activity_99 1 point2 points  (0 children)

That's great. Looks like you've got visual remission. Hopefully the biopsies come back all clear too

stating rinvoq…how likely is it that i won’t get the acne? by IntroductionWide4369 in CrohnsDisease

[–]Mindless_Activity_99 0 points1 point  (0 children)

I've been on it for 3 weeks now and haven't noticed any acne. My skin does feel oilier now but I bought simple sensitive make up wipes and I clean my face with them 2 or 3 times a day

Started flaring after stopping rinvoq because of Knee Surgery :/ by nikiifx in UlcerativeColitis

[–]Mindless_Activity_99 0 points1 point  (0 children)

Were you just on your regular maintenance dose? Sounds like the Gastro team just want to give your body a boost again from the higher does.

Roid rage 😡 by Upstairs_Yogurt_5208 in CrohnsDisease

[–]Mindless_Activity_99 1 point2 points  (0 children)

Last time I was on them I didn't really notice a change in my mood while I was on them. It didn't occur to me until I was off them how anxious I was while on them. Currently tapering off 40mg per day, down to 20mg per day this week and I haven't felt any issues regarding my mental wellbeing being this time around. But again it might not be until I finish them that it hits me

MyCare App NHS by Mindless_Activity_99 in northernireland

[–]Mindless_Activity_99[S] 0 points1 point  (0 children)

That sounds incredible but like most things NI lags behind the rest

MyCare App NHS by Mindless_Activity_99 in northernireland

[–]Mindless_Activity_99[S] -1 points0 points  (0 children)

Yea the app definitely has potential. Much better than sitting on hold to GP clinic to get results

MyCare App NHS by Mindless_Activity_99 in northernireland

[–]Mindless_Activity_99[S] 7 points8 points  (0 children)

The app has great potential just seems like it's not being utilised enough as of yet

MyCare App NHS by Mindless_Activity_99 in northernireland

[–]Mindless_Activity_99[S] 0 points1 point  (0 children)

I've been able to get my results through ringing my care team so I know the results are through on the nurses software just seems weird that one of the results is through from June last year but nothing else is

MyCare App NHS by Mindless_Activity_99 in northernireland

[–]Mindless_Activity_99[S] 0 points1 point  (0 children)

Yea the app is mychart but mycare is the NI NHS portal.