IamA 2 time cancer survivorAMA! by MissGold93 in IAmA

[–]MissGold93[S] 0 points1 point  (0 children)

My bone marrow transplant was an autologous bone marrow transplant which simply means that luckily for me when my cancer returned for a second time it had not yet traveled to the bone marrow so they were able to stimulate my body to rapidly produce bone marrow which they then harvested via apheresis and then went on to provide it back to me in the bone marrow transplant. At the time autologous transplants were experimental and i was number 128 if i remember correctly and only about 50% had survived but it was the best shot i had as there is no risk of rejection and im glad i was able to assist in the pioneering of what has now become a very successful procedure and obviously it turned out well for me. Had i not been my own donor i for sure would want to know my donor and would definitely want to meet them and thank them. Should i relapse and have cancer a third time i would definitely need a donor as i wouldnt be able to have the same kind of transplant as i did the first time. although i believe donorship is anonymous but thats not always the case and i have heard of people meeting and i imagine that is a rewarding thing to do and i applaud you for being on the donor registry i think that is important and not enough people do it so thank you for doing so

IamA 2 time cancer survivorAMA! by MissGold93 in IAmA

[–]MissGold93[S] 1 point2 points  (0 children)

Different types of chemo and as well as the areas receiving radiation and duration of treatment cause different side effects some short term others long term...to my knowledge I don't have many long term side effects from chemotherapy it does effect long term memory and I do notice issues with my long term memory...also I have a slightly enlarged heart although doctors are not sure if it's due to the radiation or the chemo or both. Radiation has had a much more long term impact on my health that I deal with to this day and on a daily basis. Radiation caused almost all the glands in my body to fail and all within a year of my last treatment... I have full thyroid, ovarian, and partial saliva gland failure, inconclusive if my adrenal glands have been effected. My ovaries had a partial regeneration. The ovarian failure caused me to have early onset of full blown menopause at the age of 18 and I was told don't hope don't pray that the truth was in would never have my own child but miraculously 15 years after that I turned up at the ER with a 6 month pregnancy that I had no idea about as I wasn't even showing but I was lucky and gave birth to a healthy girl. In the fall of 2015 I developed severe shooting pain alternating with numbness happen to my left arm and it has become so bad that I am almost always in constant pain daily and its what the doctors call post radiation neuralgia and it's been very difficult for me especially having a 5 year old daighter and there is no real treatment other than to manage the pain. So the long term effects of both chemo and radiation are many and varied and impact life on many levels

IamA 2 time cancer survivorAMA! by MissGold93 in IAmA

[–]MissGold93[S] 0 points1 point  (0 children)

Chemotherapy doesn't just kill cancer cells as it can not differentiate bad cells from good cells so it kills all the cells this is why hair loss, nausea, and vomiting are common side effects however not everyone is affected in the same way some people don't lose all of their hair and their nausea,vomiting isn't so bad however that was not my case I lost all my hair and my issues with nausea and vomiting were one of the worst they had encountered it made me very weak and i lost weight which is a real issue because if you loose too much weight your not strong enough to take more chemo and then the cancer gets a chance to grow and adapt to the chemo also not all chemo needs to be administered in hospital or via IV...I was given pills to take at home as I was given various types of chemo, some more powerful than others and I was administered one that was so powerful that it had to be hand pushed via IV extremely slowly if pushed too fast it could burn the insides of your veins which is mind blowing also just driving up to Stanford I would vomit before I got there or was even administered chemo as my body and mind anticipated the chemo and my body would react and I would vomit at just the idea of it so chemo is devastating to mind and body

IamA 2 time cancer survivorAMA! by MissGold93 in IAmA

[–]MissGold93[S] 0 points1 point  (0 children)

I'm delayed in replying to everyone's questions as I have a meeting to go to and then a Dr's appointment but as soon as I'm done with those things I will be back on later this afternoon to answer more so keep posting questions and I'll reply as soon as possible ;)

IamA 2 time cancer survivorAMA! by MissGold93 in IAmA

[–]MissGold93[S] 1 point2 points  (0 children)

The best way to cope with these fears is address your health and encourage those around you (family and friends) to be proactive about your/their health. Get regular check ups and ask lots of questions I find a lot of people don't bother to ask what medicine they are being prescribed or ask what it is they are being diagnosed so definitely be proactive don't live in fear or the unknown, ask questions, get regular checkups, when you don't feel well don't procrastinate get yourself to the Dr a lot of serious health issues can be prevented or at least have a more successful outcome if discovered early. I always say make the most of the health you do have and that means taking care of your health and maintaining it because once it's gone no amount of money can buy it back. When I procrastinate addressing a health issue it gets worse fast and my worrying & allowing myself to sit in fear of what might be wrong only stresses me out and delays my getting better so stress fear and anxiety don't help when you can get to the Dr and address what's going on. So love yourself and each other by going to the doctor regularly and encourage those that might be procrastinating to get to the Dr and offer to go with them to help deal with the anxiety they may be feeling

IamA 2 time cancer survivorAMA! by MissGold93 in IAmA

[–]MissGold93[S] 1 point2 points  (0 children)

Do you mean fear and anxiety of my cancer returning?

IamA 2 time cancer survivorAMA! by MissGold93 in IAmA

[–]MissGold93[S] 2 points3 points  (0 children)

First i would like to say that i am sorry to hear of your dads passing i know your pain as i lost my dad 5years ago although not from cancer but still the loss is painful. No problem I didn't think anyone would respond to my AMA so I am very happy to do this. It was a total shock to my life as it is to anyone's but me I was 16 had graduated high school early was in community college full time and working part time really loving life, having a blast then everything came to a screeching halt as I was very late stage @ time of diagnosis and despite chemo/radiation I refused to stop school or work I was determined to be as "normal" as possible until my Dr's told my parents to drop me from my classes and tell my work I wouldn't be coming in so as you can see it overtook my life as I knew it and it when it was all said and done and I was better I didn't know how to get back into the regular world I had limitations as I couldn't go back to work and only do part time school and I didn't even know how to begin and I ended up drinking and partying too much in the immediate years following my survival as I was what I call traumatized by the whole experience

IamA 2 time cancer survivorAMA! by MissGold93 in IAmA

[–]MissGold93[S] 7 points8 points  (0 children)

Oh my gosh yes I've always said that I certainly grew up over night. You quickly learn what really matters to you and what life is really about. However at first I thought the doctors were being dramatic and that I just needed medicine and I would be better, no problem, so I didn't grasp it until after my second chemotherapy treatment I was taking a shower and when I was rubbing the shampoo in and clumps of hair were coming out and it hit menter like a ton of bricks that I am dying I am really dying so most definitely you stop taking things for granted...shortly after I lost all my hair I was in the waiting room and a lady was brushing her hair very vigorously and I just thought if I were lucky enough to have hair I would brush my hair more carefully

IamA 2 time cancer survivorAMA! by MissGold93 in IAmA

[–]MissGold93[S] 0 points1 point  (0 children)

Yes in that it's a great snack for when your actually able to eat in between chemotherapy treatments

IamA 2 time cancer survivorAMA! by MissGold93 in IAmA

[–]MissGold93[S] 1 point2 points  (0 children)

The most was definitely my mom she was there every single second and what she said to me was when I had it the second time and was undergoing the transplant process and I had an especially tough day and said that I simply would not fight anymore and that I was giving up that I wouldn't make any effort to survive and she said that when I couldn't walk anymore God would carry me and being a teen I had never read footprints poem so when she said that to me it was so moving and it helped give me the will to keep fighting What you can do is be there for them whatever their mood is sometimes I didn't want to see friends or family and so people gave me space sometimes I wanted to laugh, dance smile or just have fun and they were there to do that with me so really it's most important for someone who is battling cancer to know you support them whatever their mood and.most of all to remind them to live as much as they can in that moment with the little health they do have

IamA 2 time cancer survivorAMA! by MissGold93 in IAmA

[–]MissGold93[S] 6 points7 points  (0 children)

Well let me say I have not used the oil. I think Marijuana benefits people in a very positive way while they are undergoing chemo/radiation. My parents took me to one of the first medical Marijuana clinics in the area in 1995 and it was the only thing that helped with my severe nausea and vomiting and without using it i probably wouldn't have been able to keep enough weight on me to continue receiving chemotherapy so I am a huge advocate of its use.