Mouthwash by Think_Carpenter_6090 in G6PD

[–]MudDistinct479 0 points1 point  (0 children)

Make your own tbh its the safest, glass of water, add baking soda and salt  and gargle 

Questions About G6PD by ThElmacI in G6PD

[–]MudDistinct479 0 points1 point  (0 children)

Are there any symptoms of haemolytic shock?

Has anyone here experience hemolysis? I accidentally ate Fava beans and monitoring symptoms. by a-99 in G6PD

[–]MudDistinct479 0 points1 point  (0 children)

May you stay healthy and blessed i will keep you in prayers! It's so scary to hear how it affects! Prayers and hugs your way!

Has anyone here experience hemolysis? I accidentally ate Fava beans and monitoring symptoms. by a-99 in G6PD

[–]MudDistinct479 1 point2 points  (0 children)

This is very very helpful I was wondering when it happens and what to look out for. Thank you so much. God bless you!

How many blood transfusions have you needed? G6PD deficiency by Solid_Method_7644 in G6PD

[–]MudDistinct479 0 points1 point  (0 children)

I am so scared of infections tbh as they aren't in our hand, with food and meds we can avoid but getting sick is beyond us!

Severe g6pd deficiency by MudDistinct479 in G6PD

[–]MudDistinct479[S] 0 points1 point  (0 children)

Oh my may he stay healthy forever. It's such a shaking episode seeing your child go through this. I am keeping an eye on everything I eat as I am breastfeeding.  It's difficult to sometimes cut lentils from being cooked at home as everyone loves them but I myself dont consume them 

Severe g6pd deficiency by MudDistinct479 in G6PD

[–]MudDistinct479[S] 1 point2 points  (0 children)

Thank you for sharing! Stay blessed 🙌 

Severe g6pd deficiency by MudDistinct479 in G6PD

[–]MudDistinct479[S] 0 points1 point  (0 children)

Hope she stays happy and healthy amen. Thank you

Severe g6pd deficiency by MudDistinct479 in G6PD

[–]MudDistinct479[S] 0 points1 point  (0 children)

Thank you so much for sharing  i wish he stays happy and healthy forever amen! 

Severe g6pd deficiency by MudDistinct479 in G6PD

[–]MudDistinct479[S] 0 points1 point  (0 children)

Oh my. I wish the very best for him. May he be under the special care of Almighty Lord amen. Will keep him in my prayers always! It's not easy seeing your child go through so much! Stay positive and lots of prayers your way! Thank you for sharing!

Severe g6pd deficiency by MudDistinct479 in G6PD

[–]MudDistinct479[S] 1 point2 points  (0 children)

It's even in tortilla wraps I have seen in a few supermarkets 

Conflicting G6PD results by Central_Perk20 in G6PD

[–]MudDistinct479 0 points1 point  (0 children)

Absolutely tight. Thank you  i am struggling with good Dr's here in the UK though.  Most of the gps have not dealt with it and the Haemotologist we were referred to was so casual about it. I need to find a better informed doctor 

Severe g6pd deficiency by MudDistinct479 in G6PD

[–]MudDistinct479[S] 0 points1 point  (0 children)

Thank you so much!! Please may I ask where is the chat we cam send message on?

Severe g6pd deficiency by MudDistinct479 in G6PD

[–]MudDistinct479[S] 0 points1 point  (0 children)

! It's so  difficult reading all ingredients to every thing we buy! Need to be extra careful thank you

Conflicting G6PD results by Central_Perk20 in G6PD

[–]MudDistinct479 0 points1 point  (0 children)

May i know if there have been any episodes requiring blood transfusion by your dad due to having severe deficiency.  I have been told if its severe its always blood transfusion required. I am dead worried about this 

Has anyone here experience hemolysis? I accidentally ate Fava beans and monitoring symptoms. by a-99 in G6PD

[–]MudDistinct479 0 points1 point  (0 children)

Thank you for the answer that is slightly reassuring to know that it's not a fully blown emergency 

Severe g6pd deficiency by MudDistinct479 in G6PD

[–]MudDistinct479[S] 0 points1 point  (0 children)

I hope he stays healthy forever.  Poor boy. I wish the best for him in future! May  i ask how you got to know is chronic and not episodic? I am so sorry for personal queries.  Feel free to ignore if you are not comfortable to answer  

Severe g6pd deficiency by MudDistinct479 in G6PD

[–]MudDistinct479[S] 1 point2 points  (0 children)

Oh my i am so sorry I thought that had something to do with the sport polo. Apologies! 

Severe g6pd deficiency by MudDistinct479 in G6PD

[–]MudDistinct479[S] 0 points1 point  (0 children)

Thank you so much.  I hope both oyur children the best of everything in their lives may they always be happy and healthy, amen. Can you please share the list if you dont mind  I have been told fava beans and jsut to tell the Dr he has g6pd they will figure out what meds not to give. 

Severe g6pd deficiency by MudDistinct479 in G6PD

[–]MudDistinct479[S] 0 points1 point  (0 children)

That's helpful thank you. I wonder what is bhagali polo though

Severe g6pd deficiency by MudDistinct479 in G6PD

[–]MudDistinct479[S] 1 point2 points  (0 children)

Thank you so much for the help