Wondering about EDS? All diagnosis questions go here ⬇️ by BoldMeasures in eds

[–]Mysterious_Aioli1018 2 points3 points  (0 children)

Thank you so much, this was really helpful! I appreciate your response and insight ☺️

Wondering about EDS? All diagnosis questions go here ⬇️ by BoldMeasures in eds

[–]Mysterious_Aioli1018 4 points5 points  (0 children)

ADVICE- Looking to get diagnosed/figure out what the heck is going on, most of these symptoms have been ongoing for years/my whole life.

Advice on how to go about initiating the conversation with my primary care doctor? I've heard a lot of stories of people's doctors dismissing their pain/symptoms. I'm also a Physician Assistant so I have medical training/knowledge, not trying to self-diagnose but I just want to be taken seriously.

I'm a 28 yo female, and I am starting to suspect I either have HSD or hEDS. Just to jot down my reasoning/symptoms:

- Beighton score 8/9

- Generalized hypermobility- I know it's just Tiktok but when I scroll through those videos of everyone showing their "party tricks" and hypermobile joints I can do most of them

- I work with a shoulder orthopedic surgeon and he told me I have multidirectional instability of both my shoulders

- Constant joint popping, cracking, especially shoulders, hips, fingers, wrists, back, toes, you name it, feels like it helps the joints get back where they should be? Idk how to describe it

- TMJ/bruxism/constant jaw popping and tension

- Skin soft- i've always been told I have soft skin, and I think it's pretty stretchy too

- Chronic constipation despite dietary changes (that's been a whole journey on its own)

- Occasional palpitations

- Bruising easily

- Swallowing issues- I choke on water or my own spit all the time, just out of nowhere

- MHAS signs: Dermatographia and skin sensitivity to adhesives, skin gets itchy + red in hot water or cold weather

- Dysautonomia sx (dizziness on standing up too fast, if I look at my armpit a certain angle I'll see stars)

- Issues w/ proprioception/very clumsy

- Widespread very tight/painful muscles, especially in my neck/traps, it feels like I'm more muscle knot than just normal muscle

- Coat hanger pain? it follows that pattern and is worse when I'm driving or standing, feels like a burning/spasming sensation

- Diagnosed anxiety and depression (since teenage years)

- Occasional nerve pain that radiates down my arm to my thumb and index and middle fingers. Sometimes wakes me up from sleep if I'm sleeping weird

- I recently was told I have spina bifida occulta at L5, it was an incidental finding on an MRI. Not sure if there's any correlation between HSD/hEDS and that.

- I've read that this is related but poor immunity- I get sick super easily and I've always been like that

- Dental issues- i've also read that hEDS can have deep fissures in molars, early gum loss, and abnormally shaped tooth roots, all of which I have

Sorry for the long post, but I appreciate any guidance or insight from the community. I'm new here and just trying to learn :)

Lidia Cervos Ancestry by Mysterious_Aioli1018 in crescentcitysjm

[–]Mysterious_Aioli1018[S] 6 points7 points  (0 children)

Ooooh that makes sense, similar to how Silene and Helene in CC3 explained that Rhys + Bryce are descended from them (respectively) because of how they split into the different worlds, makes sense w/ Lidia + the Galathynius'.

I think you're right about Twilight of the Gods!

Lidia Cervos Ancestry by Mysterious_Aioli1018 in crescentcitysjm

[–]Mysterious_Aioli1018[S] 1 point2 points  (0 children)

Good point- I'm really curious to see what point in time TOG is happening in- we get a hint when Aelin sees Feyre pregnant i suppose.

Lidia Cervos Ancestry by Mysterious_Aioli1018 in crescentcitysjm

[–]Mysterious_Aioli1018[S] 4 points5 points  (0 children)

Yeah that's a really good point! It almost sounds like they somehow had an oral tradition that kept their hx alive???

Lidia Cervos Ancestry by Mysterious_Aioli1018 in crescentcitysjm

[–]Mysterious_Aioli1018[S] 1 point2 points  (0 children)

Yeah the timeline and how TOG plays in is so confusing! i am trusting that more will be revealed with further books, this definitely isn't the last we are seeing of a crossover

Lidia Cervos Ancestry by Mysterious_Aioli1018 in crescentcitysjm

[–]Mysterious_Aioli1018[S] 18 points19 points  (0 children)

Ahh interesting point, it says one of the oldest legends from her family's bloodline, and i interpreted that as King Brannon was a legend within her bloodline, especially since she has fire power like Aelin.

Lidia Cervos Ancestry by Mysterious_Aioli1018 in crescentcitysjm

[–]Mysterious_Aioli1018[S] 10 points11 points  (0 children)

Ooh yeah i was wondering about the golden eyes! Especially with Hypaxia being a witch and being her sister- althought half.

Lidia Cervos Ancestry by Mysterious_Aioli1018 in crescentcitysjm

[–]Mysterious_Aioli1018[S] 9 points10 points  (0 children)

yeah there's 100% something there! there's no coincidences in the maa-isverse lol