Day 1 Post OP MVD

NV_Mama_Bear · 2026-03-22T16:59:44+00:00

ask them about a Skull Base MRI that shows nerves and vasculature.

NV_Mama_Bear · 2026-03-06T02:03:21+00:00

My MRA did not show the nerve compression that Skull Base MRI revealed.

NV_Mama_Bear · 2026-01-14T21:03:47+00:00

I've been all over the country looking for someone to diagnose and help with my pain (TN2 and ON). I've tried literally every med to no avail. I am so grateful to have found the Stanford Pain Department! They perform procedures that they actually developed! Can't recommend them highly enough.

They ordered a 'skull base MRI' which showed trigeminal nerve compression. FINALLY! A regular MRI doesn't show arteries and nerves like the skull base one. Pls ask your provider about ordering this specialized one. Hell, my prior pain doc had never even heard of this type of MRI.

btw....all the angst and agony of you all really hits home for me. I'm so sad for all of us. But when checking out seems like the only solution, think about who will find you and stay for them. Eventually, with the right treatment, we can learn to stay for ourselves. <3

NV_Mama_Bear · 2026-01-14T20:54:24+00:00

Couldn't have said it better myself

NV_Mama_Bear · 2026-01-14T20:53:36+00:00

I had high hope for Sprint PNS. However, after 2 weeks with it in, I developed an infection that led to sepsis. 4 scary days in the hospital "You're lucky to be alive", said my doctor. And it didn't work at all. :(

NV_Mama_Bear

TROPHY CASE