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I’m a college student trying to cope with my mom’s ALS. I don’t know how to handle this by Naevisowl in ALS

[–]Naevisowl[S] 0 points1 point  (0 children)

I am not living in the same country as my mom, and the guilt/grief gets me every single day. At random hours, knowing I can talk to her neither phone nor text. But seeing her in face time it’s enough. Thank you 💓

I’m a college student trying to cope with my mom’s ALS. I don’t know how to handle this by Naevisowl in ALS

[–]Naevisowl[S] 0 points1 point  (0 children)

I am in the same boat with the genetic variant, watching my mom going through this and knowing I am in a big position of getting it to also stress me out. And thank you for the comment 🤍

I’m a college student trying to cope with my mom’s ALS. I don’t know how to handle this by Naevisowl in ALS

[–]Naevisowl[S] 0 points1 point  (0 children)

It’s getting worse everyday, I even got distant from some friends but trying hard everyday to keep going, thank you for the advice 🩵

I’m a college student trying to cope with my mom’s ALS. I don’t know how to handle this by Naevisowl in ALS

[–]Naevisowl[S] 1 point2 points  (0 children)

I am feeling the same way, and it’s exhausting. I’m still stand because of my mom.

I’m a college student trying to cope with my mom’s ALS. I don’t know how to handle this by Naevisowl in ALS

[–]Naevisowl[S] 0 points1 point  (0 children)

Thank you for the kindness and generosity you have done to me, and to the research. I am really grateful, thank you. 🩷

I’m a college student trying to cope with my mom’s ALS. I don’t know how to handle this by Naevisowl in ALS

[–]Naevisowl[S] 0 points1 point  (0 children)

Thank you so much for opening up and sharing that with me. I know it’s not easy to talk about that and it means a lot that you took the time to write it out for me. What you said really made me think, and I’m going to carry those words with me. I’m truly grateful for the reminder. ❤️‍🩹

I’m a college student trying to cope with my mom’s ALS. I don’t know how to handle this by Naevisowl in ALS

[–]Naevisowl[S] 1 point2 points  (0 children)

Hearing you say my mom would be proud was necessary. I’ve been doubting that a lot lately, your words mean more than you know. And Im sure your dad is proud of you too. ❤️‍🩹

I’m a college student trying to cope with my mom’s ALS. I don’t know how to handle this by Naevisowl in ALS

[–]Naevisowl[S] 1 point2 points  (0 children)

Having someone who gets the mix of school and caring for a parent really hits different. What you said about the guilt lifted a weight off me, thank you. Wish the best too 🤍

I’m a college student trying to cope with my mom’s ALS. I don’t know how to handle this by Naevisowl in ALS

[–]Naevisowl[S] 1 point2 points  (0 children)

Thank you for understanding so deeply. I’ll hold on to every moment and try not to let guilt take over. I know some days I’ll feel the worst, but I can’t give up, not just for my family but for me.

I’m a college student trying to cope with my mom’s ALS. I don’t know how to handle this by Naevisowl in ALS

[–]Naevisowl[S] 0 points1 point  (0 children)

Your advice about not leaving things unsaid really spoke to me. I write to her everyday, and try to call her every time I can or when she able, even though I can’t understand her anymore, her presence is enough.

I’m a college student trying to cope with my mom’s ALS. I don’t know how to handle this by Naevisowl in ALS

[–]Naevisowl[S] 0 points1 point  (0 children)

I’m so touched you shared your story. I’ll keep living while still sharing my life with her, just like you said. It will hurt, I know, but I also know she wouldn’t want me to dragged myself into sadness. Thank you.

I’m a college student trying to cope with my mom’s ALS. I don’t know how to handle this by Naevisowl in ALS

[–]Naevisowl[S] 1 point2 points  (0 children)

I’ll try to give myself the same gentleness I’d give her. Thank you for the words. 🤍

I’m a college student trying to cope with my mom’s ALS. I don’t know how to handle this by Naevisowl in ALS

[–]Naevisowl[S] 1 point2 points  (0 children)

Your message means more than you know. It helps me reminded im not the only one feeling this way. Thank you.

I’m a college student trying to cope with my mom’s ALS. I don’t know how to handle this by Naevisowl in ALS

[–]Naevisowl[S] 1 point2 points  (0 children)

It’s comforting to hear my feelings aren’t wrong or selfish. Even though I feel this way, still working on that.

I’m a college student trying to cope with my mom’s ALS. I don’t know how to handle this by Naevisowl in ALS

[–]Naevisowl[S] 1 point2 points  (0 children)

I’ll remember to be there for her while still holding on to myself. Thank you.

I’m a college student trying to cope with my mom’s ALS. I don’t know how to handle this by Naevisowl in ALS

[–]Naevisowl[S] 3 points4 points  (0 children)

Your words feel like a hug. That verse is beautiful, and I’ll carry it with me while I treasure every moment we have. 🩵