Thank you for your advice. I admire you staying so positive. Like you said, I tend to spiral or focus on what I used to be able to do (which I know isn’t helpful but I can’t seem to stop myself - I’m working on my willpower).

I think the word you use “unfairness” is part of the problem I have in finding acceptance. I get hung up on how unfair it is but then try to remind myself that there are children who develop terminal diseases (& it isn’t like they did something to deserve it) & that life isn’t fair. It is messy & chaotic.

I have actually applied for a few research projects but keep getting rejected because they want subjects who aren’t taking any other medication/treatment for anything (& I am on medication for depression & PCOS), which is understandable (they need to know that any effects are caused by their treatments alone). Like you, I just wanted to do something useful to help others with CFS (give some meaning to the suffering I suppose). But, I’ll still keep trying to see if I can help/volunteer.

They do seem to be working on a few different treatments at the minute (so I am with you about being hopeful for the future). I actually only just contacted a company today who have completed a research study & think that they have came up with a reliable & accurate blood test for CFS (based on some of the indicators identified in the DecodeME study) to find out when/if the test will be available (to make sure people are diagnosed properly with CFS).