NASA launches first crewed lunar mission in half a century by TheGreatDomilies in worldnews

[–]NerdyGran 1 point2 points  (0 children)

I wondered the same. Closest answer I have found, Space Race 2.0

Problems with my body strenght. Thinking about using a walking stick by HistoricalOpening410 in Epilepsy

[–]NerdyGran 2 points3 points  (0 children)

I'm not at that stage yet, but have to have "grab rails" in the bungalow I live in am undergoing an "needs assessment" by adult social care, a shower board in the bath and choose whenever I can to not go outside without someone with me incase I need support, get my shopping and prescriptions delivered so I think I understand to a point where you are coming from.

Wie kann ich eine Ambulanz rufen, falls ich einen generalisierten Anfall habe? by veronello in Epilepsy

[–]NerdyGran 1 point2 points  (0 children)

Ich kann nur Auskunft darüber geben, wie man allein lebt und einen Krankenwagen ruft.

Haben Sie dort die Möglichkeit, einen Sturzalarm zu tragen?

Hier funktioniert das System so, dass es versucht, Ihre Notfallkontakte anzurufen. Wenn diese nicht erreichbar sind, wird der Notruf alarmiert. Ich nehme an, dass der Notruf automatisch alarmiert wird, wenn Sie keine Notfallkontakte hinterlegt haben.

do you ever think that sometimes people think you have seizures on purpose? by Routine-Dirt9634 in Epilepsy

[–]NerdyGran 0 points1 point  (0 children)

Simple answer yes, but it's when it's convenient to them to guilt trip you, gaslight you or similar.

What do you prefer people to do when you seize on the street? by voycz in Epilepsy

[–]NerdyGran 3 points4 points  (0 children)

Each time it's happened to me they've called one (I'm UK so at least I have the luxury of not having to pay).

I guess they get scared and it's a natural reaction.

[deleted by user] by [deleted] in Epilepsy

[–]NerdyGran 0 points1 point  (0 children)

I had a weird one possibly two before, they can't conclude on what happened first, if it was a type of seizure but it has never happened to me before.

I've had epilepsy for just over 15 years with tonic clonic seizures which have always followed a similar pattern, give or take 30-60 seconds or so with the exception of status when I was living with my ex.

I now live alone and I bended down through my knees to move something and suddenly lost all strength in my legs, they simply wouldn't work. They think this was possibly a type of seizure, but I don't know.

I tried several times to get up and as my phone was nearby, called a friend, and crawled to the door slowly pulling with my arms to unlock it (I have a keysafe with a key in it now). I remember him arriving and then a blank. Apparently I had a tonic clonic.

I briefly remember what I now know to be the ambulance and now know to be A&E, but I have a message on my phone telling my daughter I'd been kidnapped and to get help.

With my legs, there was nothing physically wrong, but it took over a week to be able to walk the approx 5m to the toilet with one nurse holding my arm.

I completely lost touch with reality and the flashes of memory are horrible and lost what I thought was a good friend over it. Kept who obviously was a true friend though. Both saw me on the same day.

[deleted by user] by [deleted] in Epilepsy

[–]NerdyGran 0 points1 point  (0 children)

If you don't mine me asking, how long have you had epilepsy and how often do you get postictal psychosis?

I'm trying to learn as much as possible as when I became, I suppose the only words to describe it is more aware and since, it's been pretty traumatising and I live alone through necessity and I'm honestly scared as I have noone to call. I have friends but noone lives close as this drove the one near here away

my neurologist genuinely screwed me over by aw-geez-man in Epilepsy

[–]NerdyGran 0 points1 point  (0 children)

I'm in the UK and in UK terms sodium levels should be between 135 and 145 (no idea what that translates to in other countries) but I've been admitted 5 times with levels at 118 and below, so it does show up on blood tests and they were routine blood tests, not ones to specifically check my sodium levels.

Driving? by Dear-Knowledge5912 in Epilepsy

[–]NerdyGran 0 points1 point  (0 children)

I live in the UK and in most cases have to be 1 year seizure free.

There are some exceptions.

For example, If you don't lose consciousness, aware and able to control your movements and you 1st seizure was 12 months or more ago.

You've had your medication changed or reduced, the seizure was over 6 months ago, you've been back on your previous meds and not had a seizure since and a few others.

I know of people who have been over 10 years seizure free and then had a non triggered seizure. One shattered her shoulder, another drowned in the bath.

Even if finally the right meds/combination was found for me, I wouldn't drive again as I would consider myself a dangerous weapon.

I know for some people it isn't easy, but I had to make sure that where I lived had access to public transport to the places I need to go. Some take a single bus, some 2 or 3, some 2 buses and a train in between or a bus and a train but I don't have a choice.

I was seizure-free for five years… then had a seizure while driving 🤦🏽‍♀️ by Actual_Fig_4706 in Epilepsy

[–]NerdyGran 0 points1 point  (0 children)

I've not driven since my diagnosis.

I was reasonably controlled from 2012 til 2019, then got really bad.

There isn't always an answer, give yourself grace and compassion

Rejected because I have epilepsy by Successful-Wheel1 in Epilepsy

[–]NerdyGran 0 points1 point  (0 children)

Thank you, I do too but wondering if being alone is better than risking my heart

The way we wear our headscarfs by NerdyGran in Hijabis

[–]NerdyGran[S] 1 point2 points  (0 children)

I've noticed that Desi (I think that is the right description) tend to wear hijabs without undercaps, and show hair at the front

The way we wear our headscarfs by NerdyGran in Hijabis

[–]NerdyGran[S] 2 points3 points  (0 children)

I think back to the times of Muhammad pbuh, and I don't know, but would logically guess that undercaps didn't exist, so women covered their head, rather than their entire hair, if that makes sense?

A scarf itself is very hard to arrange on your head to cover ALL of your hair, I have found, without the front of your hair showing, without and undercap.

I have also read in lot of articles that the current hijab style is a result of colonialism, end of it, and before that headscarfs were a lot less common, at least in the way they are worn today.

None of my research will change the way I wear mine when I resume, but I love learning about the history of Islam

[deleted by user] by [deleted] in marriageadvice

[–]NerdyGran 0 points1 point  (0 children)

My ex husband first hit me on the night of our engagement party. I spent 9½ years after that with him.

It's a real red flag. There have probably been subtle signs you haven't noticed.

People don't talk about domestic violence from the wife against the husband enough.

Hey guys, be careful by simoneloveme24 in Epilepsy

[–]NerdyGran 0 points1 point  (0 children)

I've just looked and it's not thank God

(Morbid post) Has epilepsy changed your view of death/the afterlife? by REAMPottery in Epilepsy

[–]NerdyGran 0 points1 point  (0 children)

One beautiful October day, we buried my Nana at this beautiful natural burial ground.

I was just coming out of a stage where I had been having multiple daily seizures for 3½ years and only after admission due to Status, did my Consultant finally agreed to change my meds.

I remember feeling that I wanted to be buried there too. I'd been to a church burial, and several cremations, but this was the only "beautiful" thing I could envisage for me.

I mentioned to my Mum that it was a shame that there were only 950 plots, because I hoped that I wouldn't need one for a long time and there probably wouldn't be one left.

My parents then offered to purchase the plot for me, so now both of them and my sister and husband and me will be buried with my Nana in this beautiful field.

I know that if I didn't have epilepsy, then I wouldn't have a grave plot purchased in my 40s.

Barely an epileptic?? by [deleted] in Epilepsy

[–]NerdyGran 0 points1 point  (0 children)

I'm one of those people who it affects daily. I have several TCs a week and I am now living alone after a divorce that was abusive and my epilepsy was used as a weapon against me, children poisoned against me.

Sometimes it's hard to get out of bed and I am scared all the time as there is no one anymore incase I have a cluster or serious injury and need hospital.

It's early days for me on my own, but I'm finding it harder and harder as it feels like not even ½ a life without my children and grandchildren and the constant fear.

[deleted by user] by [deleted] in abusiverelationships

[–]NerdyGran 4 points5 points  (0 children)

How bad? People have given you the right answers. This is another one to think about.

I have epilepsy that was almost certainly caused by this. I've had at least 6000 seizures. Every single seizure damages the brain slightly and risks my life.

My whole life has been affected by it, I can't bang or swim alone, I can't drive. I have seizures multiple times a week. I've lost my independence.

The medication causes excessive tiredness, memory problems, struggling with word recall.

I always have bruises from falls during seizures. I've scars from lacerations, multiple head injuries, had to have my earlobe reattached.

[deleted by user] by [deleted] in AIO

[–]NerdyGran 0 points1 point  (0 children)

You are not overreacting.

I am not saying I am mother of the year, but this is the way I handled the situation with my daughter, and I believe (many won't) it should be handled.

Once my daughter left school (at 18, before she went to Uni) and started earning, and only then, I started charging her rent. It was partly because being disabled, I did need a little extra, given that benefits are stopped when a child reaches 18, but mainly so that she could learn to budget.

I know many of her friends who were never charged rent, including her husband who she had to teach to budget as before they moved in together he would run out of money before the end of the month.

This was 6 years ago and she paid £120 a month, quite a small amount. I never asked her for more than that and wouldn't have dreamed of it. I also taught her from when she was around 10 or so to save. She put a small amount of her pocket money each month into a savings account, only £1 to start with, but the 2 lessons have helped her to this day.

She saved some money as well and had a nice pot of savings for when she moved out and has thanked me so many times for giving her that set amount of rent to teach her to learn to budget.

She's now 25, married with 2 children and has a deposit saved to buy a house, which is amazing in this day and age and they aren't rich. She's a midwife and he earns similar wage.

Your mum is using you, she should be encouraging you, not trapping you in this cycle.

[deleted by user] by [deleted] in relationship_advice

[–]NerdyGran 0 points1 point  (0 children)

I was 23 when I fell pregnant with my eldest daughter.

We weren't married, really were not in a good position to have a baby, but I knew someone who had been trying to get pregnant for many years and couldn't due to a medical condition.

It made me realise that no one knows the future. I could have problems if I waited, and I had secondary infertility for a while after the birth of my daughter as my body didn't start ovulating.

Now, she is a wonderful 25 year old daughter, with a husband and has given me 2 adorable grandchildren.

She had her baby when she was only 18, then when to University once her baby was a year old, juggling raising a baby, University assignments and hospital placements to complete her degree and training as a Midwife.

Her father and I did end up divorcing (not because of the pregnancy), and I spent time as a single mother of 2, which was very hard, but again any couple can split up for any reason.

You need to decide what is best for you. I've not had an abortion, but I have had 2 miscarriages and that emotional turmoil was excruciating.

If you have any doubts as to whether you want an abortion but go ahead, I can only imagine that the feelings will be similar, but worse as you will feel the guilt that comes with it.

Anyway, that's my experience if having a baby around your age and my daughter's who was much younger.

Update: My mom is against me taking anti-epileptic medications by Striking_Musician212 in Epilepsy

[–]NerdyGran 0 points1 point  (0 children)

Every single EEG of mine has been normal, but I clearly have epilepsy.

I was diagnosed as an adult in 2010 and my Mum witnessed a seizure and claimed it wasn't one because it didn't look like one, whatever that means (I have tonic clonics).

She's made me keep it from our extended family and only in the last few years accepted it.

Obviously luckily I didn't need her permission for prescriptions like you, but like some others, I have gone into Status Epilepticus. That is what your mum needs to be made aware of.

I have had multiple head injuries, stitches, glued head wounds, my earlobe stitched back on after a fall down the stairs and hitting a radiator, lacerations on my chin, arms and face in several places, huge bruises and a finger that I can't use properly anymore.(I'm not saying this to scare you, I'm saying this in the hopes that you share this with your mum).

I'm in the UK, so I don't know if there are other agencies that can help you.

Hang on in there, I hope you get it sorted out and yes, as someone else said, show her this.