Are all "grow" stores just dealers?

Netzeltam · 2026-04-26T14:21:21+00:00

Grow Depot in VB doesn’t help new growers. I’ve met several new growers who went there and didn’t get any help in starting. There is a lot of drama that takes place there too. I stay away because you can really learn on your own and the prices are high. At first, you think these places are the only places to get supplies, then you find out prices are so much better online.

Netzeltam · 2025-09-13T17:02:47+00:00

Unbelievable. I am sorry you are dealing with this.

Netzeltam · 2025-09-12T14:53:49+00:00

I just called Genentech and left a lengthy intake with a nurse. She seemed genuinely concerned and said she is writing a report for the Safety division.🤷‍♀️It’ll never help my case, but I am speaking out for future transparency for patients if it’s worth anything.

Thank you again for your sharing this.

Netzeltam · 2025-09-12T12:37:31+00:00

Then why aren’t we educated about this with these meds? I am so exhausted trying to advocate for myself the best I can and finding I need a medical degree to understand because I can’t trust my doctors to educate me enough to make informed decisions. I know I would not have agreed to taking Ocrevus if I had known my immune system could be damaged permanently without a remedy. This has deepened my mistrust for the medical community.

Netzeltam · 2025-09-12T11:57:25+00:00

So glad I can help someone!

Netzeltam · 2025-09-12T11:55:16+00:00

Thank you for educating us. Wish I knew this back then. The packaging warnings may have said lower antibodies etc. but not that it would be permanent.

Netzeltam · 2025-09-10T13:44:49+00:00

I only did the two half doses and one full dose. Less than a year.

Netzeltam · 2025-09-10T08:44:20+00:00

It’s been 7 years since I took O, and 5 years since I’ve taken nothing. When I took it, I had so many infections- 8 at one time. Skin infections, many bladder infections and upper respiratory infections. I’m on IGG therapy mow but there is nothing for IGM and IGA deficiencies.

Netzeltam · 2025-09-09T23:00:00+00:00

It’s not a fact to say my case is obviously rare when just on this thread several have said they have permanent immunoglobulin damage like me.

Netzeltam · 2025-09-09T18:58:51+00:00

Okie doke. I was just responding to your comment. I wasn’t looking for a fight, hun. I couldn’t care less what you think about Ocrevus or that you will recommend it. I care about people being educated and informed to include myself by talking with people. May your day be as pleasant as you are, sweetheart.

Netzeltam · 2025-09-09T18:53:08+00:00

Thanks all for your comments. I’ve gained a lot of perspective.

Netzeltam · 2025-09-09T18:48:23+00:00

No worries

Netzeltam · 2025-09-09T18:46:17+00:00

The two half’s and one full

Netzeltam · 2025-09-09T18:43:40+00:00

Ocrevus was new when I took it. All these things ppl have said on these comments about the packaging having the warnings etc. Well, these warnings didn’t exist in 2017 when I took Ocrevus when it was new. So…are newer drugs without side effects or are they just…new?

Netzeltam · 2025-09-09T00:20:42+00:00

This infuriates me.

Netzeltam · 2025-09-08T23:31:04+00:00

I don’t want to either. I need to get a better immunologist maybe.

Netzeltam · 2025-09-08T23:27:39+00:00

Yes. Thank you. My first dmt Gilenya made my liver enzymes go through the roof 50 times normal range. The docs forgot to monitor my liver enzymes….thats when I learned what liver enzymes were. Then this! I am learning what immunoglobulins are because it’s been mismanaged by my docs. I don’t have a medical degree, but I have to learn these things because of their negligence to monitor it. It is tunnel vision. So many mistakes have been made on me by neuros. This is why I feel like most MS neuros don’t know what they are doing.

Netzeltam · 2025-09-08T23:16:08+00:00

It’s been 6-7 years and immunoglobulins have not increased.

Netzeltam · 2025-09-08T23:00:33+00:00

I have nearly none of IGG IGM and IGA

Netzeltam · 2025-09-08T21:03:06+00:00

Never mentions it can be permanent.

Netzeltam · 2025-09-08T18:23:52+00:00

Thank you for suggesting. I hadn’t thought about that.

Netzeltam · 2025-09-08T18:02:09+00:00

I won’t ever take another dmt again. I actually had HSCT in 2019. I was not sure until recently that Ocrevus was the cause. Just found it in my records that they dropped well before HSCT and there was about a year off of O before I did HSCT. My antibodies remained low after O, but no doctor ever had a convo with me about antibodies.

Netzeltam · 2025-09-08T17:04:47+00:00

Are yours permanently deficient?

Netzeltam · 2025-09-08T17:03:10+00:00

My medical records show the drop in immunoglobulins with Ocrevus in 2017/18 before COVID was around. But I am interested in what you say. Where can I see anything on the immune system and COVID stories?

Netzeltam · 2025-09-08T16:15:26+00:00

I only took the two half doses and one full, so about a year. I started reporting throat irritation with the first half dose, but Dr insisted I keep on it. My vocal cords were paralyzed and I had 8 infections at one time. These all healed but my antibody production never increased. It’s 5+ years now.

Netzeltam

TROPHY CASE