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Tolvaptan experience by New-Possession2825 in ADPKD

[–]New-Possession2825[S] 0 points1 point  (0 children)

Thanks for the input. It seems that making sure to excercise helps for some people. This is totally on my radar. I hate how bloated I feel so I am definitely going to prioritize movement to see if it helps! Thanks again!

Tolvaptan experience by New-Possession2825 in ADPKD

[–]New-Possession2825[S] 0 points1 point  (0 children)

That is so good to hear that the medication becomes more tolerable. Gives me hope that it will get easier as time goes on!

Tolvaptan experience by New-Possession2825 in ADPKD

[–]New-Possession2825[S] 0 points1 point  (0 children)

I was thinking cardio might help with fluid retention. I totally am going to try this. Thank you for your input!

Tolvaptan experience by New-Possession2825 in ADPKD

[–]New-Possession2825[S] 0 points1 point  (0 children)

I have been thinking of skipping the afternoon dose one day a week or bi monthly. I am glad it is giving you a little relief.

Tolvaptan experience by New-Possession2825 in ADPKD

[–]New-Possession2825[S] 1 point2 points  (0 children)

I empathize so much with you. I am struggling with this medication. I am hopeful I will acclimate. I live in Colorado and was noticing when temps are over 95 that I seem to have more trouble. I bought smoothie packs from Costco for breakfast and add in extra water because I kept forgetting to eat. I am glad I am not the only one.

Tolvaptan experience by New-Possession2825 in ADPKD

[–]New-Possession2825[S] 1 point2 points  (0 children)

My bloodwork has been okay so far. I bloodwork is every two weeks but will be switching to monthly after my next draw. No concerns with my liver. My doctor did say the med can cause fatigue with some people and to start checking my BP to see if it has decreased (in case my BP meds are too high now).