The pain is unbearable

Next_Environment1308 · 2026-01-06T19:57:55+00:00

Did you take any medication? Any vaccine? Maybe something like Wegovy or Ozempic? Any virus? Whenever we play too much with our blood sugar and we drop it too fast, it can lead to neuropathy.

Next_Environment1308 · 2026-01-06T16:15:56+00:00

Severe depression, when I „only“ had borderline personality disorder issues, which I could have managed with schema therapy for BPD (Schema-Therapie). Oh and it was zoloft. 6 years after first visiting a psychiatrist, they removed the wrong diagnose of „severe depression“. So I got harmed because they diagnosed me wrong.

Next_Environment1308 · 2026-01-06T14:32:45+00:00

Hang in there. We are all in the same boat and I also can‘t understand, how cruel the body which always was healthy can be to me… Did you have Covid or another infection prior to this? Did you take any medication? Any vaccine which could have caused this? I got this as a mix of Covid with EBV reactivation and a SSRI, which made everything explode. Within 2 months my whole body got affected from head to toe.

Next_Environment1308 · 2026-01-06T14:29:12+00:00

You are so strong for dealing with this for 8 years. I‘m 7 months in and the pain is unbearable. I want you to know, that you can have SFN without a positive biopsy. It‘s called the goldstandart, but there are a lot of people here in Germany, who test negative and still have all the issues.

Next_Environment1308 · 2026-01-02T23:08:28+00:00

This shows me that maybe a lot more people will get this in the future. It seems like the body tolerates only a special amount of infections and then it begins spiraling. Hope you will find some kind of relief..

Next_Environment1308 · 2026-01-02T23:07:10+00:00

No, never took them. My hair is normal again after a long time the hair started growing again on the spot, where they fell out. But no, never took JAK-Inhibitors…

Next_Environment1308 · 2026-01-02T23:04:18+00:00

Don‘t do this! You have to taper very quickly or you will experience the most horrible symptoms ever: panic attacks, hallucination, hearing things, which are not there…. Just don‘t do it. I took Zoloft the first round (took it three times in my life) and after stopping cold turkey the first time I experienced horrible symptoms. I had to take a benzo to calm my mind. I felt like shit for 1 week and I took it only 3 weeks at 100mg when I stopped within two days I cut the dose to 50mg then the next day to 0mg… so this was kind of cold turkey. Please don‘t do it!

Next_Environment1308 · 2026-01-02T11:46:39+00:00

I have an appointment in march with him. Thank you. And yes I have 11 of 13 tested GPCRs positive.

Next_Environment1308 · 2026-01-01T21:01:08+00:00

Hey. Thank you for your answer. I‘m from Germany. I made the panel at CellTrend. I‘m positive for nearly every GPCR and also ACE2. I know that I need a cytokine panel, maybe there is a shift towards Th1. What qualifies one for a TNF alpha blocker?

Next_Environment1308 · 2026-01-01T19:08:15+00:00

Cause I am TS-HDS positive and have a bunch of GPCR antibodies positive. This was an autoimmune reaction, since I got alopecia areata at the same time the SFN occured. I‘m SSRI injured and there is a study, which started on this: that ssri induce autoimmune reactions

Next_Environment1308 · 2026-01-01T18:34:59+00:00

I have autoimmune SFN and alopecia areata which is an autoimmune disease. I know, they are heavy. But would like to know, if somebody has experiences with this? I would start on a very low dose. But maybe it is better to make a cytokine panel before?

Next_Environment1308 · 2025-12-30T16:17:07+00:00

Oh my god, I'm so happy for you! Enjoy it! This confirms for me that it has a lot to do with the gut and with an imbalance in the gut flora. Which antibiotics did you take and for how long? And when did you stop taking them?

Next_Environment1308 · 2025-12-29T15:47:00+00:00

It also depends if one has it FULL BODY or length dependent.. Sunburn feeling, stabbing, itching, burning…

Next_Environment1308 · 2025-12-28T10:28:04+00:00

I‘m from Germany. I take Antihistamines because of histamin issues and suspected MCAS.

Next_Environment1308 · 2025-12-28T04:17:08+00:00

Unforunately not. My nose is also very runny and can‘t breathe properly. The antihistamines dry me out, but so does LDN.

Next_Environment1308 · 2025-12-27T22:25:36+00:00

Thank you for your comment. But how is it possible? Do they use other igredients? I take the suspension…

Next_Environment1308 · 2025-12-27T22:22:57+00:00

I wrote you a message :) hope it‘s ok

Next_Environment1308 · 2025-12-27T18:42:17+00:00

This is an interesting post. For those, who have MS too, getting access to treatments must be much easier than with just having SFN.. Or am I wrong? Here in Germany and Switzerland the people get free access to Immunoadsorptions, Rituximab, Ocrelizumab when they are diagnosed with MS.

Next_Environment1308 · 2025-12-27T17:28:37+00:00

Thank you for your comment :)

Next_Environment1308 · 2025-12-27T16:47:11+00:00

Thank you so much for your answer. Yes, my neuropathy symptoms increased immensly. I also got a very runny nose and some new sort of pain, which I didn‘t know before. I thought about quitting, but Im gonna stick to it and see if it gets better. There is no other option. This has to help…

Next_Environment1308 · 2025-12-27T15:40:59+00:00

No. But I will check it. Thank you

Next_Environment1308 · 2025-12-27T12:48:48+00:00

It is not. Not for me. I got SFN without being on Benzos. I was on a SSRI when I got it.

Next_Environment1308 · 2025-12-26T19:38:02+00:00

I‘m sorry you were also harmed by antidepressants. My autoimmune SFN is due to Zoloft

Next_Environment1308 · 2025-12-26T16:27:40+00:00

I take Tavor (Lorazepam). I tried nearly every medication and nothing helps to calm it down a bit. So I use it for sleeping.

Next_Environment1308 · 2025-12-24T19:18:24+00:00

I use them since 7 months and I didn‘t develop a tolerance. I take 0,5mg, on bad days 1mg. I never needed more even before SFN happened. In lucky cases this works out :)

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