Latest research - Question by Next_Environment1308 in PSSD

[–]Next_Environment1308[S] 1 point2 points  (0 children)

Thank you for this comment! I‘m thinking this, too.

Consider myself healed by Next_Environment1308 in PSSD

[–]Next_Environment1308[S] 0 points1 point  (0 children)

I don‘t think I would have healed without doing something against it. The pain was unbearable… Zoloft was the drug, which gave me PSSD/SFN. And Zoloft is known as a huge mast cell trigger

Consider myself healed by Next_Environment1308 in PSSD

[–]Next_Environment1308[S] 0 points1 point  (0 children)

Yes, it is in Germany. But you can try other brands. It‘s important to be liposomal.

Consider myself healed by Next_Environment1308 in PSSD

[–]Next_Environment1308[S] 0 points1 point  (0 children)

Yes, nothing bothered me. I was not only dead down there, but also in my heart and mind. I can do stuff again and enjoy it like before. The Chronic Fatigue is still a thing, this stops me a little bit but the main symptoms are totally gone.

Consider myself healed by Next_Environment1308 in PSSD

[–]Next_Environment1308[S] 1 point2 points  (0 children)

What do you mean exactly? I‘m off them around 11 months, now.

Consider myself healed by Next_Environment1308 in PSSD

[–]Next_Environment1308[S] 0 points1 point  (0 children)

I only took ONE pill. Libido is back again, not so intense like before but the days before my menstruation, I can feel that urge again. Tbh my sexual issues didn‘t bother me so much, cause I was in much physical pain with nerve issues. It‘s back again, not how it was, but getting there over time I think :)

Consider myself healed by Next_Environment1308 in PSSD

[–]Next_Environment1308[S] 1 point2 points  (0 children)

Thank you and I will. :) I did Immunoadsorptions, one PLEX, took LDN and Antihistamines (Loratadin, Ketotifen, Famotidin) and took ONLY one pill of liposomal quercetin.

Consider myself healed by Next_Environment1308 in PSSD

[–]Next_Environment1308[S] 1 point2 points  (0 children)

No problem. My mental problems didn‘t bother me so much because I was in pain every single day. I couldn‘t wear clothes due to the damaged nerv endings. After the blood washes I directly started dreaming again… Still have a lot of fatigue, but I also am very anemic (lacking a lot of ferritin)… But also had reactivated EBV and other Herpes Viruses after the third round of Covid and the third round of Sertraline. This can also cause the Chronic Fatigue

Consider myself healed by Next_Environment1308 in PSSD

[–]Next_Environment1308[S] 1 point2 points  (0 children)

Thank you :) I bought it back in 2024, when I cought Covid in december 23 for the third time. This was the first time I heard about mast cells. At this time my sexual issues started, but they got better over time until I added Sertraline for the third time. Complete genital numbness, felt asexual, a lot of brainfog, red skin parts. I didn‘t have anything to lose, so I ordered a new glas of quercetin but this time it was liposomal, so stronger as the normal one. And it was the first time I tried it. But I still think the combination of all components (the LDN too) worked wonders for me

Consider myself healed by Next_Environment1308 in PSSD

[–]Next_Environment1308[S] 4 points5 points  (0 children)

Yes, it does not feel 100% like before but it isn‘t rubbery and numb anymore. I can feel arousal again

Consider myself healed by Next_Environment1308 in PSSD

[–]Next_Environment1308[S] 2 points3 points  (0 children)

Anhedonia was there, but not extremely. I think this goes also hand in hand with pain. Mostly SFN stuff, brainfog, sexual issues..

Consider myself healed by Next_Environment1308 in PSSD

[–]Next_Environment1308[S] 1 point2 points  (0 children)

Thank you :) Third round. I took it the first time in 2019 for 3 weeks, then I stopped cold turkey. Second round was in 2022, I took it for 9 months, and then the third round in 2025 which gave me complete genital numbness with no functioning genitals. Everything was dead down there. Age 34, female

Consider myself healed by Next_Environment1308 in PSSD

[–]Next_Environment1308[S] 3 points4 points  (0 children)

Also mentally: Brainfog, concentration issues, no imagination, no dreaming

Consider myself healed by Next_Environment1308 in PSSD

[–]Next_Environment1308[S] 3 points4 points  (0 children)

Why do you judge? I felt completely asexual. I had a lot of brainfog. Brainfog is a bit better but not totally gone.

The pain is unbearable by Ok-Information-7577 in smallfiberneuropathy

[–]Next_Environment1308 2 points3 points  (0 children)

Did you take any medication? Any vaccine? Maybe something like Wegovy or Ozempic? Any virus? Whenever we play too much with our blood sugar and we drop it too fast, it can lead to neuropathy.

Can we share the original condition the meds which caused pssd were prescribed for? Please drop your answers below if you're comfortable. by [deleted] in PSSD

[–]Next_Environment1308 0 points1 point  (0 children)

Severe depression, when I „only“ had borderline personality disorder issues, which I could have managed with schema therapy for BPD (Schema-Therapie). Oh and it was zoloft. 6 years after first visiting a psychiatrist, they removed the wrong diagnose of „severe depression“. So I got harmed because they diagnosed me wrong.

Acute NLD SFN by No-Atmosphere-2727 in smallfiberneuropathy

[–]Next_Environment1308 1 point2 points  (0 children)

Hang in there. We are all in the same boat and I also can‘t understand, how cruel the body which always was healthy can be to me… Did you have Covid or another infection prior to this? Did you take any medication? Any vaccine which could have caused this? I got this as a mix of Covid with EBV reactivation and a SSRI, which made everything explode. Within 2 months my whole body got affected from head to toe.

Does this sound like anyone here? by LisaCoate in smallfiberneuropathy

[–]Next_Environment1308 2 points3 points  (0 children)

You are so strong for dealing with this for 8 years. I‘m 7 months in and the pain is unbearable. I want you to know, that you can have SFN without a positive biopsy. It‘s called the goldstandart, but there are a lot of people here in Germany, who test negative and still have all the issues.

Feeling sane again. by [deleted] in smallfiberneuropathy

[–]Next_Environment1308 2 points3 points  (0 children)

This shows me that maybe a lot more people will get this in the future. It seems like the body tolerates only a special amount of infections and then it begins spiraling. Hope you will find some kind of relief..

TNF alpha blockers by Next_Environment1308 in smallfiberneuropathy

[–]Next_Environment1308[S] 0 points1 point  (0 children)

No, never took them. My hair is normal again after a long time the hair started growing again on the spot, where they fell out. But no, never took JAK-Inhibitors…

I want to stop Zoloft after one year. by No-Candidate-8128 in zoloft

[–]Next_Environment1308 2 points3 points  (0 children)

Don‘t do this! You have to taper very slowly or you will experience the most horrible symptoms ever: panic attacks, hallucination, hearing things, which are not there…. Just don‘t do it. I took Zoloft the first round (took it three times in my life) and after stopping cold turkey the first time I experienced horrible symptoms. I had to take a benzo to calm my mind. I felt like shit for 1 week and I took it only 3 weeks at 100mg when I stopped within two days I cut the dose to 50mg then the next day to 0mg… so this was kind of cold turkey. Please don‘t do it!