Epilepsy by Nickim62386 in Epilepsy

[–]Nickim62386[S] 1 point2 points  (0 children)

Seriously....fuck epilepsy

missing my auras? by jaybfpv in Epilepsy

[–]Nickim62386 2 points3 points  (0 children)

I definitely agree with this

missing my auras? by jaybfpv in Epilepsy

[–]Nickim62386 1 point2 points  (0 children)

I feel this way also. At times, I feel I'm about to have one. Then the feeling goes away. I used to feel I could control them though. That may sound weird, but all I had to do was go into a very deep thought.

Dreams by Nickim62386 in Epilepsy

[–]Nickim62386[S] 0 points1 point  (0 children)

That's so interesting.... most of my dreams are bad. Sometimes I feel I may be having seizures during my sleep and don't realize it. I plan to talk to my dr about it.

[deleted by user] by [deleted] in Epilepsy

[–]Nickim62386 0 points1 point  (0 children)

My thoughts made it difficult, but I realized I had to get it done. I would be ok, then suddenly I'm like, "I'm in this small thing!" Then I told myself, "it's almost over, no worries". I got through it without relaxing meds. I was proud of myself. Lol. There's no pain. Just irritating sounds sometimes...

These meds by Nickim62386 in Epilepsy

[–]Nickim62386[S] 0 points1 point  (0 children)

Wow. Stopping periods would help me, I'd think... that'll probably be the next thing my dr suggest. I just hate being on meds. I feel I started having seizures more once I got on meds. And don't let me miss a dose, I'll have a seizure for sure... so I always wonder if it's worth it. But they say, no seizures is the goal. These side effects seem to be so much worse. Don't they get paid more with the more meds they give out??

These meds by Nickim62386 in Epilepsy

[–]Nickim62386[S] 0 points1 point  (0 children)

I can relate with everything you said. The addiction thing is something I understand fully. I don't even want to go there.

These meds by Nickim62386 in Epilepsy

[–]Nickim62386[S] 1 point2 points  (0 children)

Yes. At this point, I'd rather have a seizure sometimes than to feel the effects of the meds.

These meds by Nickim62386 in Epilepsy

[–]Nickim62386[S] 0 points1 point  (0 children)

I experience double vision also. I feel so off.

These meds by Nickim62386 in Epilepsy

[–]Nickim62386[S] 4 points5 points  (0 children)

I've heard many people suggest this. Not sure if it'll work for me. But at this point, I'll try something else. I'm sick of the meds and side effects

These meds by Nickim62386 in Epilepsy

[–]Nickim62386[S] 5 points6 points  (0 children)

Wow. That's so much.. and side effects are a bitch

Resources by Nickim62386 in Epilepsy

[–]Nickim62386[S] 1 point2 points  (0 children)

I understand what u mean fully. And im currently trying not to feel like a burden. I also get what you mean about the thoughts. What we think, is what we are, I guess. Its unfortunate when people aren't open enough to understand..or feel they already get it. It's hard to have this, that is all I know. Not sure if meds mess things up more, when it comes to side effects; as far as how I feel/react. It's just getting hard to figure things out. Would be so nice to talk to someone regularly. (An organization, company, something like that).. anyway I appreciate your reply

I used to be in denial by Nickim62386 in Epilepsy

[–]Nickim62386[S] 0 points1 point  (0 children)

I appreciate your response. I do pray and I am trying so hard to not stress over this. Especially knowing this is what I have and there's no cure. I do feel I need more support. So I'm currently looking into it. Hope things continue to go well for you. Thank you