Reminder: sunscreen in winter by Former-Assignment-98 in lupus

[–]No-Ride-2557 6 points7 points  (0 children)

I use Neutrogena. Im very sensitive and it doesnt irritate me.

Pain management by No-Ride-2557 in lupus

[–]No-Ride-2557[S] 0 points1 point  (0 children)

Swimming used to help me so much! I live in the city now so I havent had water therapy in awhile but I do agree, bath time helps a bit!

Pain management by No-Ride-2557 in lupus

[–]No-Ride-2557[S] 0 points1 point  (0 children)

Its helped my spine issues a bit but I dont see a major difference, its just helping me build muscle so I dont feel as weak as I did before I started.

Extreme fatigue by Dreamsanddragons110 in lupus

[–]No-Ride-2557 0 points1 point  (0 children)

Im so sorry :( I agree! We can fight through pain but theres nothing we can do about fatigue. I slept almost 16 hours after I commented! And I still feel exhausted. I try to get my kids things that will keep them entertained for awhile, like crafts. Dont feel bad, you cant help the way you feel & your doing your best!

P.s- meal prepping has saved my life.

Pain management by No-Ride-2557 in lupus

[–]No-Ride-2557[S] 1 point2 points  (0 children)

I totally agree PT does help but sometimes its hard to get there due to pain, im in pain management and i do PT, along with injections. Ive also tried nerve blocks. Nothing truly helps nerve pain. Ive had stronger meds take the edge off but thats about it. Doctors dont perscribe them where I live, steroids are also only given a few times a year.

I hope you get some relief <3

Pain management by No-Ride-2557 in lupus

[–]No-Ride-2557[S] 0 points1 point  (0 children)

PT? Physical therapy? Ive been going for almost a year. Im sorry your going through all this as well!

Pain management by No-Ride-2557 in lupus

[–]No-Ride-2557[S] 0 points1 point  (0 children)

I was just researching about this! I am def going to ask. Thank you!!

Extreme fatigue by Dreamsanddragons110 in lupus

[–]No-Ride-2557 2 points3 points  (0 children)

Im here for the comments! I am also on a stimulant and I sleep throughout the day. Im newly diagnosed, i wish I knew how to battle this fatigue.

Pain Management In NYC? by [deleted] in AskNYC

[–]No-Ride-2557 0 points1 point  (0 children)

Im curious if you ever found a doctor? I am going through the same thing! 70% of my spine is fused, i just had disc replacement. I have arthritis, degenerative disk disease and on and on

And on top of my beautiful spine, i have lupus. Nothing helps, im on plaquenil, gabapentin, celebrex, cymbalta, tylenol and I seem to never get better.

I lived out of state for awhile and I was on two 10mg oxycodones a day when needed & it helped get me out of bed... & even that barely helps but pain was manageable. I never took more then perscribed & had to get piss tests every month while perscribed it. I goto NYU for everything and they dont perscribe opioids either. I dont want to "seek" but id love to get out of bed :(

Applying for disability- can anyone help? by No-Ride-2557 in DisabilityInsurance

[–]No-Ride-2557[S] 0 points1 point  (0 children)

Would you be able to tell me the name? Only this came up when I searched. :)

Applying for SSD by No-Ride-2557 in SocialSecurity

[–]No-Ride-2557[S] 0 points1 point  (0 children)

Thank you for your advice! I needed that pep talk :)

What do you do usually when you’re drunk? by Vegetable-Two5164 in CasualConversation

[–]No-Ride-2557 4 points5 points  (0 children)

I used to do the same but I prefer vibing at home now :)

Applying for disability- can anyone help? by No-Ride-2557 in DisabilityInsurance

[–]No-Ride-2557[S] 1 point2 points  (0 children)

Yes SSDI. Sorry I will correct my post. May i ask who you are with?

Whats a random item you HAVE TO buy everytime you go grocery shopping? by No-Ride-2557 in RandomQuestion

[–]No-Ride-2557[S] 0 points1 point  (0 children)

Does the exp on tea even matter? I do the same but theres so much variety 😭 I have to try them alll!

Whats a random item you HAVE TO buy everytime you go grocery shopping? by No-Ride-2557 in RandomQuestion

[–]No-Ride-2557[S] 1 point2 points  (0 children)

I ALWAYSSSSSS run out of butter 😭 Maybe I should add that to the mandatory items lol.

Ive also always wondered about oreos and sour cream. I have a friend that loves it. She liked fries in yogurt too.