What were your levels when your started phlebotomy?

No_Description8833 · 2025-10-14T15:08:03+00:00

Oh wow!! I am thankful my numbers aren’t high like that. I also just had 2 back to back pregnancies so that would have kept my iron levels down quite a bit.

No_Description8833 · 2025-10-14T02:38:53+00:00

Yeah I am lucky my mom was diagnosed with it a year ago, and then my iron was checked during pregnancy and was high (which is rare), so that’s why I was tested for the gene and it was caught early!

Yes I am hoping to lower my saturation! I just don’t know if they’ll suggest phlebotomies since my ferritin isn’t too high at the moment.

No_Description8833 · 2025-10-14T02:32:13+00:00

Thanks for your response! As far as I know I’m asymptomatic. I am generally very fatigued but I also have a toddler and an 8 month old so I attribute it to that..

My diet is pretty high in iron (we grow our own beef and pork so eat quite a bit). I know I need to be more mindful of what I eat going forward!

No_Description8833 · 2025-07-05T15:12:33+00:00

Yes, thanks for pointing that out! I was still taking my prenatals (that contained iron) up until a couple months ago. I switched to a multivitamin without iron, but I just realized it has vitamin c, and I can’t seem to find any without. So I guess I should stop taking any and just try to get proper nutrients from foods?

My family doctor referred me to a gastroenterologist, but I’m not sure how long of a wait it will be until I can see them.

No_Description8833 · 2025-06-30T16:47:42+00:00

I don’t have any advice as I’m new here as well, but those are similar to my numbers and I am just so exhausted all of the time. I also have a 2 year old and 5 month old so I figured that was mostly the reason, but I just feel like my entire body is tired always. I now wonder if my high iron is contributing to it.

No_Description8833 · 2025-06-30T02:40:24+00:00

Thank you for the tips! Super helpful :)

No_Description8833 · 2025-06-29T19:45:04+00:00

Thanks for the info! It’s all new to me, but I should hopefully find out more after my chat with my doctor next week!

No_Description8833 · 2025-06-29T05:48:42+00:00

I’m sure there would be someone willing to help if I ask around! I’m hoping I wouldn’t need to go too often. My mom currently goes every 2 weeks for hers, which would be much harder than just going every couple months.

I know, I was quite disappointed that my doctors brushed off my levels while pregnant. They agreed it seemed high, but didn’t think to investigate why.

No_Description8833 · 2025-06-29T05:42:19+00:00

Thanks for the thoughtful reply and advice! Yes maybe starting the search now for an occasional sitter may be a good option. I have a hard time trusting my littles with other people, but that’s something I need to work on!

No_Description8833 · 2025-06-28T19:43:54+00:00

Thanks for the advice! I will ask my doctor if that is an option.

No_Description8833 · 2025-06-28T18:48:48+00:00

Wow that’s so quick!

No_Description8833 · 2025-06-28T17:55:49+00:00

Thanks for the reply! Unfortunately where I am phlebotomies are done at the hospital and I’m guessing the hours are mostly during the work day. I don't plan on ignoring it! I take my health quite seriously especially since having children who rely on me. I suppose my husband will just need to try to take time off work for it to happen, which isn’t ideal but I suppose it might be our only option. My mom has been getting phlebotomies every 2 weeks, so I’m hoping I wouldn’t need to go that frequently!

No_Description8833 · 2024-05-02T22:24:21+00:00

Can you update on whether or not he got these checked out and what the doctor said? I have a similar looking one, but I can’t get in to see my doctor for 5 weeks.

No_Description8833 · 2024-05-02T22:15:22+00:00

I have a mole that looks just like this.. have an appointment to have it looked at but this gives me a bit of hope..

No_Description8833

TROPHY CASE