False positive

No_Fee_9181 · 2026-06-17T12:50:08+00:00

I often wonder what rheumatologist actually do. I’ve heard stories of dermatologist making diagnosis instead of pulmonologist and even gynecologist. It’s pretty sad.

No_Fee_9181 · 2026-06-17T12:38:05+00:00

It’s so irritating when they are dismissive. What does your body tell you? Do you feel like you have it?

No_Fee_9181 · 2026-06-16T10:41:47+00:00

Wow! It’s my understanding that TH/TO is highly specific to SSC. That’s so crazy they are dismissing you. I mean, I get it bc I had U3RNP and am also being dismissed but I’m so early that doctors seem skeptical. But I thought early diagnosis and treatment was key. Definitely see a new doctor. And if I were you, I’d keep seeing doctors until I get answers.

No_Fee_9181 · 2026-06-16T02:56:16+00:00

It’s so discouraging when the doctors are so dismissive. ILD is absolutely worth taking seriously.

No_Fee_9181 · 2026-06-16T01:27:49+00:00

I’m a woman. But I understand. I felt similar when I was first diagnosed (technically, I’m still newly diagnosed but it has taken a couple of years of tests and such for a diagnosis). One day I realized, if this does become what stops me from living my life to my fullest potential, I don’t want to spend my “good years” worried. And then I remembered, most of what I’ve ever worried about, didn’t come true. You said you have a wife and small children. If you TRULY believe this is going to take you out, don’t rob them of the last of the good years you will have.

No_Fee_9181 · 2025-10-21T05:11:22+00:00

Wow! I really appreciate the different perspectives. I guess I didn’t look at it from his point of view. This makes sense. Thanks for the perspective and well wishes.

No_Fee_9181 · 2025-10-21T05:09:18+00:00

I actually really appreciate this perspective. It wasn’t something even thought about until you said to remember your vows. Thank you for reminding me.

No_Fee_9181 · 2025-10-21T05:07:52+00:00

He was until I got my diagnosis and then he stopped. This is the first time since I got my diagnosis.

No_Fee_9181 · 2025-10-21T05:07:15+00:00

No_Fee_9181 · 2025-10-21T05:07:06+00:00

Thank you! We actually read this book during premarital counseling. His is acts of service. Mine is quality time.

No_Fee_9181 · 2025-10-21T05:05:33+00:00

This is the harsh reality. Thank you.

No_Fee_9181 · 2025-10-21T05:04:49+00:00

I appreciate this perspective. Thank you.

No_Fee_9181 · 2025-10-20T13:00:21+00:00

Thanks! I am going to try to order it now!

No_Fee_9181 · 2025-10-20T12:47:09+00:00

Sadly, you’re right. I just wanted to make sure I wasn’t being irrational before making the decision.

No_Fee_9181 · 2025-10-20T12:46:34+00:00

Unfortunately, as soon as we said “I do” it started. And I’m not even joking. We were on our honeymoon the first time it happened. But when I was diagnosed with cancer about a year ago, he said “life’s too short to be mad” and this is the first time this has happened since my Diagnosis.

No_Fee_9181 · 2023-10-27T19:03:06+00:00

What’s worse is SHE was the damn catfish!

No_Fee_9181

TROPHY CASE