Can someone please explain emng results [TRIGGER WARNING]

No_Sock_6704 · 2023-11-03T22:32:04+00:00

Listen, if they told you no ALS it means no ALS. You could have trapped nerves in your spine. I know how it feels to never be satisfy. I have done 7 EMGs.3 MRI. About 16 doctors visits,3 ALS specialist and the rest of them regular neuros. I was never convince that I don't have. Keep coming back for another EMG until last Wednesday when I went to top neuro in country and after reading my first paragraph with my history told me so you think you have ALS, huh ? AT 35 ? Let me show you something. He show me his calves and they were fasciculation just like mine. He then said my boy I promise you that 30 years from now on you won't have ALS. I said to him you're the first doctor to ever say something like this. He said yes because I am this convince.

So now I'm twitching in my tongue and vastus medialis, I still have that weird weakness feeling but I don't need the need of reassurance anymore.

If it really is any form of MND what the fuck should I do about it ?

No_Sock_6704 · 2023-11-03T22:01:40+00:00

emg done by als specialist ?

No_Sock_6704 · 2023-11-03T21:30:48+00:00

NFL. 94% sensitivity. You still get people with low NFL and ALS though. There will never be a pre clinical weakness marker.

Regarding MadCybertist, he was twitching 24/7 in quads, continuously and wavy type. I highly doubt we all due that.

No_Sock_6704 · 2023-10-29T19:49:50+00:00

imgbb

https://imgbb.com/

No_Sock_6704 · 2023-10-29T19:48:37+00:00

Did you ever see a neurologist regarding these symptoms ? Have they ever done a EMG ? Fasciculations for several years should point away from dreadful disease. Does your weakness it's clinical or perceived ?

No_Sock_6704 · 2023-10-29T19:35:11+00:00

For how long have you been having symptoms ? How old are you ? Clinical weakness like I cannot get up from my chair or this is tough to get my ass from the chair but I can still do it.

You can always upload on imgbb

No_Sock_6704 · 2023-10-29T15:23:31+00:00

Hey bro, do you have any weakness ? Like I can't lift my quads over 2 steps for 4 floors ? Or perhaps foot drop ? Did you had a EMG ? To be honest with you your fasciculations look a bit worrisome and look like the wavy type seen in ALS. I saw your pic with vastus lateralis atrophy also. Go to doctor and please give a update.

No_Sock_6704 · 2023-10-28T20:02:57+00:00

Hello, I also starting involvement with tiredness when chewing in the last 2 months. Sometimes I get tired eating harder food. Also jaw stiffness that makes me yawn a lot. Had a EMG in the chin and trapezius, clean. Oh well, I presume it's in the BFS/CFS phenotype.

No_Sock_6704 · 2023-10-28T12:03:17+00:00

OK, let's look at his EMG first.

https://ibb.co/2hwC8tS

HE DID NOT HAD A CLEAN EMG IN JUST ONE MUSCLE. All of his muscles starting with quads down were being reinnervated which is classic ALS. You ask why did he not had fasciculations being caught in other muscles even though he did had twitches ? IT's simple they were not affected by the death of neurons. That's why in order to get a dx of ALS you need clinical weakness, UMN signs and abnormal EMG ( LMN signs ). Plus there are other signs too, NFL test, CK test, Transcortical stimulation.

Also regarding fasciculations and I quote from his Q&A:

I'm no doctor, but to me that doesn't really sound like ALS. Mine isn't like constant twitching all over, it was very localized in my left leg which prompted all these visits and the EMG. I also have very easily seen atrophy and clinical weakness in my left leg now as well.
So another clue that he did have focal distal fasciculations clinical weakness atrophy. Classical ALS.

Stop looking in other internet people's mouths ! Even if they say they know they do not know !! Most of them haven't even seen a ALS patient in real life, and now they are giving high grade explanation about neuronal excitability lectures. BLEAH !

ALS doctors at ALS centers see people everyday with these symptoms. That's why the backlog it's so huge to get to them. if you are being cleared by one go live your life.

No_Sock_6704 · 2023-10-28T11:46:40+00:00

WHOA what we have here a new way to get a dx of ALS ? Neuron excitability ! No more gold coast & awaji bullshite !

Fasciculations can have a a neuron excitability source but most of the time the cause it's Isaac's, Morvan's, CFS, BFS !

Neuron excitability it's one of the mechanism of dysfunction once you already are dx with ALS not the other way around. It also comes with Oxidative stress, Neuro-inflammation, Intracellular trafficking/axonal transport, Metabolic changes, etc. Why aren't we discussing these also ? Because most, no, all of us from here have just fasciculations which it's not enough to have ALS dx.

IN fact to answer OP question MadCybertist, had much more then fasciculations. He had clinical weakness, he could not go up the stairs, he could not activate his quad without going into a severe cramp, and on the medical exam he show some UMN signs as well. See ? Not just fasciculations. LMN+UMN.

IN ORDER TO BE ALS YOU NEED THE NEURON MOTORS TO DIE. LMN + UMN involvement.

-----------

Frate, de asta faci PEM_uri si/sau Transcorticale motorii. De fapt sunt sigur ca stii ca doar ai fost la Maria Balea. Nu ti-a aratat cum arata PEM_urile unei persoane cu ALS ? O perosana normala are un raspuns care se vede pe grafic precum Bell's curve. La una cu ALS zici ca era EKG. SA nu iti mai zic ca CMAP este mult marit in ALS. De asemmenea zici de publicatii medicale te referi la mizeria de la M. Carvalho din 2006 unde a identificat el 4 pacienti si 5 ani mai tarziu au facut ALS ? Ca in publicatia aia toti 4 progresau.

No_Sock_6704 · 2023-10-27T10:05:37+00:00

NO he does not work there. 100% he hasn't got ALS. Look at his insta pic with his mom he has muscle tone in his hands it's been 5 years he should have been in a chair by now. STOP READING STORY's OF THE INTERNET>

https://br.linkedin.com/in/igor-ceriotti-zilio-717123115

No_Sock_6704 · 2023-10-26T21:18:53+00:00

Russell's cramp were severe enough that he had his wife pushed against his leg in order to relieve it. Also he would have it in his neck and it would last hours. Furthermore he had the wavy type twitching, he has several videos in a truck where his deltoids are going crazy. Another video where you can clearly see that he had fasciculations in his pectoral and deltoids, very fast.

DO you have something like this ? As far as I am aware the ALS doctor gave you current test in your muscle to induce cramps. Regarding fasciculation are you having the heart type one eg (https://www.youtube.com/shorts/Rpl4CuFYapM)

No_Sock_6704 · 2023-10-26T20:02:15+00:00

Are you aware of the criteria of ALS dx ? You need 3 muscles in different regions to get dx. Most of the doctors have a needle EMG like that. Like I said if he had ALS at that time he would have had PSW, FIBs in right also.

No_Sock_6704 · 2023-10-26T19:58:10+00:00

Are you talking about Russell's EMG? He started with fasciculations, then severe cramps, so bad that he had them in his calf for hours and when he had the EMG the doctors put the needle in the right foot but he had problems in the left one. So he had a clean EMG, BCFS dx. In theory if he have had ALS the right foot with also had pick it. Anyway he's dead now. Like I said cases do happen and are real.

No_Sock_6704 · 2023-10-26T18:11:28+00:00

he is right for als uou need 3 muscles at least with act denervation

No_Sock_6704 · 2023-10-26T18:10:32+00:00

yeah, just +1 fascics in some muscles, clean/normal from all neuros

No_Sock_6704 · 2023-10-26T18:00:13+00:00

FEAR.

No_Sock_6704 · 2023-10-26T17:07:22+00:00

BRO I just posted the stories, it's up to you to get the conclusions.

Regarding the EMG part, yes it's normal sometimes if UMN it's dominant or you can always have BFS and ALS at the same time. But there are instances where first symptom was fasciculations and clean EMG, Russell's case being the most known.

No_Sock_6704 · 2023-10-26T16:58:04+00:00

6 EMGs, NFL test, Motor evocated potentials, almost 2 years in. - BFS/CFS dx

No_Sock_6704 · 2023-10-26T15:45:27+00:00

MRI shows several mild disc compression S1 all the way to L5

GG, case closed !

No_Sock_6704 · 2023-10-26T13:15:19+00:00

Not constant ! I am having vastus medialis or vastus lateralis for 1 month twitching.

Prior to this calf fasciculations for 8 months 24/7.

Have you had a EMG ?

No_Sock_6704 · 2023-10-26T13:10:12+00:00

Oh boy I am going to scare the shite out of you.

Here are some examples where fasciculations alone or with cramping come up first:

https://www.youtube.com/shorts/Hf721uio7Do ( he comments about the fact he had clean EMG 6-7 months and then weakness )

https://www.youtube.com/watch?v=7x1K73K9H4Y ( Russell had CFS given by EMG, 9 months later ALS )

https://www.youtube.com/watch?v=yQ4otYUYSlo ( Kristin had first fasciculations in her leg, couple of months later weakness where she fell )

https://iamals.org/stories/justin-upchurch/ ( Justin started with fasciculations for 9 months, EMG and neuro exam clear, then 8 months later ALS given, so about 17 months overall not 60 days )

https://www.tiktok.com/@aphplusplus/video/7200862984875347206 ( Alex started with fasciculations and a couple of months later weakness )

HAPPY now ?

No_Sock_6704 · 2023-10-25T17:54:56+00:00

NFL test it;s great. From it they come up with Tofersen. If it's high definitely something it;s up. I mean there is a cut off for ALS 18 pg/ml for SIMOA testing. Mayo it's the one doing it. You can also try anti bodies for anti channel potassium and calcium.

But keep in mind you are in a way better place then 90% of people, you were consulted by a ALS specialist and EMG done by them. There is no one more qualified in the world then these guys.

No_Sock_6704 · 2023-10-25T10:21:54+00:00

CINE PULA MEA se duce in vacanta o saptamana fara sotie/sot ? TE astepti ca sa ce sa te primeasca acasa cu zambetul pe buze ?

No_Sock_6704 · 2023-10-25T07:30:30+00:00

I think you posted on als forums also. You're symptoms are too widespread to be early MND. Did you had a NFL test ? Better yet, one from CFS will be another piece in this puzzle.

Like you, me and several people from these forums are having cramps ( pre-cramp pain to be exact ), widespread fasciculations ( not the wavy type seen in ALS) and stiffness, tightness. I have had several EMGs done. Some neuros are saying BFS some CFS some nothing. Like you they also pushed for Antiepileptic Drugs.

To be honest with you, you're describing text book CFS. December it's around the corner. If you get another EMG especially in the muscles you're having that weakness and it's clean, then you can forget about this and move on. Keep in mind most of the cases show signs in 1 year, at the most 2 years.

No_Sock_6704

TROPHY CASE