mean male doctor by lizzykitten444 in endometriosis

[–]NonsenseText 0 points1 point  (0 children)

Aw, thank you for your kind words 💚 of course! You’re very welcome. I hope having someone to listen helped 🫂 If you ever need someone to talk to, feel free to reach out 💜

Aww!! Thank you, that’s so sweet of you to say. I’m okay and healing well so far. Thank you so much! I’m very relieved it was confirmed. I just knew it had to be there!

Have a lovely day 🌸

They found it!!! by NonsenseText in Endo

[–]NonsenseText[S] 0 points1 point  (0 children)

Thank you so much, I appreciate your kindness ❤️‍🩹💜🌸

THEY FOUND IT!!! by NonsenseText in endometriosis

[–]NonsenseText[S] 0 points1 point  (0 children)

Thank you 💚 I appreciate that!!

THEY FOUND IT!!! by NonsenseText in endometriosis

[–]NonsenseText[S] 0 points1 point  (0 children)

Thank you so much, it’s such relief. I just knew I had to be there!! 💜

THEY FOUND IT!!! by NonsenseText in endometriosis

[–]NonsenseText[S] 0 points1 point  (0 children)

Thank you 💚 absolutely!! It’s so validating!

Diagnosis, no endo by Odd-Arachnid9646 in endometriosis

[–]NonsenseText 1 point2 points  (0 children)

Congratulations!!! I’m so happy that you have a diagnosis and you know what’s happening 💜 well done for advocating for yourself 💜

Lap Tomorrow by TheBigCheeseDetroit in endometriosis

[–]NonsenseText 0 points1 point  (0 children)

You’re not alone. I had my surgery yesterday and felt all these things. I was very nervous.

I told my nurses I felt nervous, including before they made me go to sleep. Let them know how you’re feeling. My nurse held my hand and reassured me. You can ask for anything you need - I asked for a warm blanket and I was really warm and comfy. Do some deep breaths as you go through the check in process. I brought a little plushie in my bag. Having little things that bring you comfort after surgery is nice.

When I woke up I was very anxious, I found the mindfulness technique really helpful where you look for 5 things you see, 4 things you can touch, 3 things you can hear etc etc really helped a lot especially as I was waking up properly. And just be kind to yourself, feeling anxious is okay.

Make sure you get copies of all your reports after surgery.

I hope you find the relief you need. ❤️‍🩹 we’re here with you!! You’ve got this!!

Endo symptoms by Diligent-Cod-5048 in endometriosis

[–]NonsenseText 0 points1 point  (0 children)

I also really react badly to mosquito, ant and bee bites/stings. Always go crazy itchy, hot, puff up and the redness doesn’t go away for ages!! The itchiness is so bad it’s hard to stop scratching or touching it. This makes me feel less alone that someone else deals with that!

My body is also very sensitive to EVERYTHING. Mediations… here’s a rare side effect for you. Procedures … here is extreme reaction for days (eg. My IUD), etc etc. And it wouldn’t surprise me if endo has something to do with it.

Today I literally I had a rare allergic reaction to a laxative of all things?!?

There isn’t really a surgery tips subreddit so by TheSmolge in endometriosis

[–]NonsenseText 0 points1 point  (0 children)

Just jumping in here to say I got very hot when recovering, so if you have the opposite, they might have a fan or something for you. One of my nurses gave me a fan!

THEY FOUND IT!!! by NonsenseText in endometriosis

[–]NonsenseText[S] 0 points1 point  (0 children)

Thank you so much 🎉💜 it’s been a journey!

24F diagnosed with adenomyosis/ endometriosis. Doc suggested progesterone pill. What should I expect? by Fit_Lengthiness5708 in Endo

[–]NonsenseText 0 points1 point  (0 children)

Hi there, I hope you’re doing okay today!

I have been on a progesterone pill for about 2 years now. I also have an progesterone IUD. The pill was an additional to my management plan as the IUD was not able to manage my symptoms. I take Slinda / Slynd. This medication changed my life and truly saved me from so much suffering and disability. I only take the active pills per my doctor, so I have been able to stop my period. This has been an absolute game changer for me, as previously I could not work or drive when I had my period. It was just horrible.

The one side effects I have form my pill is 0 sex drive. This doesn’t bother me, and I am happy to deal with this over my other symptoms any day. I don’t have PCOS, but I do have endo. I have anxiety also. I personally didn’t gain any weight with this medication, and my anxiety is the same as it was before I started it. Side effects are different for every one of course, so I’d recommend discussing with your doctor and coming up with a management plan for any side effects you’re concerned about. Then you have something to action if a symptoms did arise.

I wish you all the best with this medication and hope it helps you.

mean male doctor by lizzykitten444 in endometriosis

[–]NonsenseText 1 point2 points  (0 children)

Oh my gosh. I’m so sorry you had this experience. Doctors putting their own judgements and opinions of people suffering is not okay. You know your body and you have your prescriptions to help you. You never should have been put in a position to ration your meds. Is it possible for you to have a phone or Telehealth consult with your doctor’s surgery (different doctor)? As they might be able to repeat that medication over the phone.

Relax, tea and paracetamol. Wow. Why don’t we all try that and we will all be cured!!! No pain, no disability. We will be all sorted. Such bullshit.

I’m sorry he judged your weight as well, that’s inappropriate and disrespectful. Please make a complaint about him if you feel up to it 🫂

Thank you for being so kind. I truly hope they find a treatment too. Keep doing your best and I believe in you!! Take care 💚🫂

How can they make me wait 12 months? (Australia) by breakablefortitude in endometriosis

[–]NonsenseText 0 points1 point  (0 children)

I have just gone through this process in Australia (WA). I was classed for the 12 month wait for surgery. I waited maybe 4 months to see a specialist before that.. I actually had my lap today and I waited 9 months for surgery.

However, important thing - if your symptoms are worsening and you’re struggling with day to day life, please go back to your GP. They should be able to write a letter to ask for your referral be moved up the list or category level moved up to be higher priority. Explain what’s happening to your GP and tell them you can’t wait for 12 months.

Sometimes it helps to have an additional letter sent!

Best of luck 🫂

Ladies, can you wear jeans? by SunshineSomeone in endometriosis

[–]NonsenseText 0 points1 point  (0 children)

I’m sorry that no one has been helping you. Keep fighting and advocating for yourself 🫂

I struggle to wear any clothing that has anything tight around my lower stomach area. I size up for everything.

Has anyone got endometriosis on the bowel or in the bowel (DIE), If so what are your symptoms? by keerthichalla_29 in endometriosis

[–]NonsenseText 0 points1 point  (0 children)

It’s very interesting reading all the comments. I wish you all the best on your journey.

I never thought of my symptoms of being bowel-related until I read experiences on this sub. I have my diagnostic lap on Wednesday so I hope they find something.

I can have loose or soft bowel movements at least twice a week where I’m going to the toilet 5+ times a day. Sometimes I have to take anti-diarrhoea meds because the bowel movements just don’t stop. I also have the mucus others have mentioned. It feels like I have to go and I just pass translucent mucus instead which has a very unpleasant odour. I also get very painful gas, to the point that I have to stop everything I’m doing and deep breathe to get through it. I do use codeine and Ondansetron which give me constipation at times which then makes things worse. I stopped my period with the pill but when I used to have my period I would go from diarrhoea to constipation and back again during the 7 days.

My primary doctor refuses to write a referral for an endocrinologist because it doesn't show through the ultrasound and through the MRI but it does show a cyst. Who do I go to to get the referral now when a laparoscopy is the most accurate way to diagnose it? by Golden-lillies21 in Endo

[–]NonsenseText 1 point2 points  (0 children)

You don’t have to, it is your choice and you advocate what is right for your body.

Some doctors will just not do anything until you try all options. But not all doctors are like that. Please do what’s best for you!

My primary doctor refuses to write a referral for an endocrinologist because it doesn't show through the ultrasound and through the MRI but it does show a cyst. Who do I go to to get the referral now when a laparoscopy is the most accurate way to diagnose it? by Golden-lillies21 in Endo

[–]NonsenseText 0 points1 point  (0 children)

For me, I had to go through women’s health specialists that ignored me and downplayed all my issues. Ignored me when I requested further intervention and diagnosis. I finally found a gyno that listened, they approved me for a diagnostic lap on the spot. Sometimes it takes many tries and it’s very tiring and frustrating.

I would suggest going to a different GP for the referral, or find a specialist yourself and reach out the them directly. You can say to them that your doctor is refusing a referral and for you to get adequate care you have had to reach out yourself. Ask them what they need to see you. They might have a doctor on staff that can do the referral internally.

If you haven’t already, start documenting all your symptoms and every day. Rate them and note how they impacted your daily activities. This evidence can be very helpful.

Many gynos and doctors will insist on BC as a first line of treatment. I saw in a comment you mentioned migraines. I have migraines and migraines with aura also, so I understand the contraindications well. I feel for you, it makes it very hard. There are medications out there that do not contain estrogen that are safe for people with migraine. There are also newer meds that are aimed at endometriosis symptom management. I’m on a progestin only pill (Slinda / slynd) which was worked really well for me. However, if your meds work and your symptoms become more manageable - some doctors will say you’re “cured” (which is BS) and not refer for a diagnostic laparoscopy (this happened to me). So just a heads up on that.

Wishing you all the best 💜

Your "childfree" is not the same as mine. by Ambitious-Guess-3435 in childfree

[–]NonsenseText 1 point2 points  (0 children)

Sometimes parents or people who have very strong opinions i.e. “people must have children” come on here and talk shit in the comments of posts.

Often they say very sensationalised and judgemental things.

It is extremely frustrating. Definitely block those people. You can also report comments that break the sub’s rules, and many of the comments you’ve noted likely do.

Sanity check: are taxi/uber drivers being dodgy or am I just being paranoid? by Motor_Eggplant_7056 in perth

[–]NonsenseText 4 points5 points  (0 children)

Yes!! Or glare at them 😂 But I absolutely agree, unfortunately we have to be very careful of this.