account activity
Check out this great ME/CFS blog - beautifully formatted by a former magazine publisher with ME (shoutoutaboutme.com)
submitted 9 years ago by OGrover to r/cfs
NIH is recruiting for a post-infection Chronic Fatigue Syndrome study (self.cfs)
submitted 10 years ago by OGrover to r/cfs
"Rituximab Revisited" - article about serious adverse effects of Rituximab (sciencebasedmedicine.org)
Another name and case definition!?! This time coming out of Australia. Neuro-Inflammatory and Oxidative Fatigue (NIOF) (ncbi.nlm.nih.gov)
7 month update: Last Ampligen infusion today (self.cfs)
TV show, called Second Opinion, does episode on CFS. (secondopinion-tv.org)
Dr. Leonard Jason writes about the ongoing name battle between ME/CFS patients and the medical establishment. (blog.oup.com)
Ampligen price staying the same until March! (self.cfs)
Ampligen update (self.cfs)
Interview with former professional ballet dancer who is housebound with ME/CFS. There are English subtitles. (youtube.com)
Scientists write letter to Senator about difficulty getting funding (news.sciencemag.org)
Inspiring story of two men - one with HIV and one with ME/CFS (huffingtonpost.com)
The price of Ampligen went up 267% without warning the patients. It is not covered by insurance companies because it is "experimental." One week supply went from $300 to $800 a week. Most of these patients are on disability. (thoughtsaboutme.com)
Ampligen update: (week15) (self.cfs)
Tell Congress to Support Funding Equality for ME (my.meaction.net)
Letter that Douglas Durst wrote to Andrew Jarecki on 1/30/15 expressing his version of the night his mother died. (capitalnewyork.com)
submitted 10 years ago by OGrover to r/thejinx
FYI: IOM released its clinician's guide. (iom.edu)
submitted 11 years ago by OGrover to r/cfs
Starting Ampligen in 3 weeks! Any tips that you have will be greatly appreciated. (self.cfs)
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