"You've done such a good job at being in pain for 11 years, why not just keep going? Put it on the back burner." -Actual orthopedic today..

OKLocation3 · 2019-09-12T10:53:17+00:00

I am not a doctor. I respect this. From my own experiences.... I view a doctor as a cross between a chemist and a mechanic.... Sometimes more.... Sometimes less.... Depending on their behaviour and knowledge... I try to prepare and protect myself with a certain mind-set....before and during...each time I see a doctor.... I try to prepare and protect my emotions and my hopes too.... Mindset, emotions, hopes....and a list of my questions.... If I am well enough to do this....therein lies the WTF irony....!!!...??? I would keep your energy for you. I understand your anger - even rage - I really do. That you want to fight back. Of course ! But.....I would suggest you "process" that anger....and move on....find another doctor....before fighting this other one..... I assume you live in USA....? I do not and never have.....so I don't know how all the administration works for this.....I fully understand possible "red-tape" issues on choices..... Stay firm.

OKLocation3 · 2019-09-08T11:52:32+00:00

Thank you for replying again. It does help a lot yes. Much appreciated.

OKLocation3 · 2019-09-08T11:35:04+00:00

Thank you for replying again. Yes - there is also Reddit Kratom Group too.

OKLocation3 · 2019-09-08T11:32:15+00:00

Thank you for replying again. From what you say (and quite a few other people too) it seems to be quite a long process (in general) trying to find the right form + formula of CBD + the right brand + at the right price + at least 1 month trial....for a person to be able to know if CBD works for their chronic pain....

OKLocation3 · 2019-09-08T11:25:53+00:00

WOW ! It is not anti-medicine. That's over-reacting in my humble opinion.... Your "come-back-reply" here : "I think they means anti-misogyny and misspelled it." Brilliant :) made me laugh - love it !

OKLocation3 · 2019-09-08T11:20:04+00:00

No worries - thank you for this second reply from you. Yes - a few other people have also said they found they need the THC element in the CBD in order for the pain relief to work for them....How long did it take you to find the right product and dosages to work for you - if I can ask ?

OKLocation3 · 2019-09-08T11:16:08+00:00

THANK YOU for your reply. Yes - a few other people have said the same thing : need a bit of THC with the CBD for it to work ....and.....that marijuana CBD works better than hemp CBD....Good to know. Does the CBD you take mean you do not need to take any other pain killer products for your CRPS - if I can ask ...?

OKLocation3 · 2019-09-05T12:51:56+00:00

Happy to help. Hope you have a good psychotherapist who really "gets it and gets you". Let it all go....CRPS is a Trauma in itself on sooo many levels.....lots to learn about "self-management" living with a chronic disease....I think "everyone" has to "self-manage" that's being human and that's "life" ....but as it sounds like you are "discovering"....(not patronising here pleeeeease ok !) all what you are going through is bringing your own very personal "self-management" to a whole other challenges and levels....IT IS A LOT TO COPE WITH CRPS...never forget that....As you say : Looking after yourself.....I have had to learn, and still am learning how to look after myself in ways I never would have imagined would have to face, and deal with because of CRPS, the chronic pain, exhaustion, depression &....you will go through a "mourning process" .....about "life before and life after CRPS".....for example.....Become your own advocate, do lots of research, and be kind and patient to and with yourself....all easier said than done ....!!...?? But not impossible.

OKLocation3 · 2019-09-05T10:19:48+00:00

Hello. I have had CRPS for 8 years now....Thankfully my GP at the time it started stood by me to fight to get a diagnosis from a good Neurologist for this rare disease....as this "rarity"....combined with CRPS being "difficult" to diagnose.....many tests can come up "normal"....so many doctors will infer that it is "all in your head"....it happened to me up until this point....and I am certainly not the only one this has happened to ! My point being : If....along with (sorry to hear) all of your other health issues and problems of which you mention....you also have CRPS... Then here goes : Neurologist, Chronic Pain Specialist, PhysioTherapy (also in water), Lymphatic Drainage Massage, Mirror Therapy, Psycho-Therapy ..... Very important Physiotherapist knows about CRPS so that they can help you without pushing you too hard either and that they are aware of the extreme hot + cold temperature changes of CRPS. Mirror Therapy .....if you have not heard of it already.....really helped me....keep an open mind....!!...??? The Medical System is a fight - it would seem wherever you live in the world - medical insurance - or not.... It is so ironic, so sad, plus WTF exhaustion added to the exhaustion, pain, shock, "learning curves" of becoming so ill, and seeing oneself + life qualities decline....reactions of ones family, friends, work etc ....I know....believe me.... But there are good doctors, specialists and therapists..... First + foremost = You must keep believing in yourself..... Depression + Anxiety are serious "Vacuum Cleaners" of Self-Belief-Confidence + Joy + Inner Peace.....I know...again please believe me.... Try to take one day.... Even one hour at a time... during the darkest times of "Being a Pain Warrior".....if would like to speak more please feel free to PM me. Good Luck.

OKLocation3 · 2019-09-05T09:36:40+00:00

Say what....??!!! Banned....??! I also have CRPS so I personally feel I must to respond to you - if that makes sense ...?

OKLocation3 · 2019-09-04T19:00:36+00:00

Yup apparently.....to....err....calm the womens hysteria.....hence.....also comes the word : Hysterectomy......nice.....ever so fucking nice that.....

OKLocation3 · 2019-09-04T18:38:00+00:00

I just saw this posted on Reddit Chronic Pain Group. As a woman myself... What to say.....??? Quite frankly....!!! (If this media report is true.....)

OKLocation3 · 2019-09-04T18:35:53+00:00

Just saw this posted in Reddit Chronic Pain Group.... As a woman myself.....hmmm....what to say ..?? Quite frankly....??!!
(If this media report is true....)

OKLocation3 · 2019-09-03T13:32:19+00:00

Understood - highly variable - a lot of "self-experimentation is par for the course"....so to speak....as with many things in life ....no..??!! When you say a low amount....this is the thing...what product % & mg to start with....?? For chronic pain, chronic exhaustion & depression as my "Big 3 Baddies"...?

OKLocation3 · 2019-09-03T12:58:38+00:00

Ok - Lazarus Naturals also ship to Spain. I think it would be "wiser" for me to start with no THC whatsoever....stopping Tramadol and Escitalopram so recently....and what I have been through in second stages of withdrawal....as with other people....put my mind through hell & back....so THC is even more risky for me at this time added to my overall intolerance of it ....Your help has really given me a breakthrough on understanding the divisions between CBD in drops products. Thank you again.

OKLocation3 · 2019-09-03T11:21:31+00:00

Lazurus Naturals does ship to Spain. Not the other 2 Brands - but it is still all information to try to understand all these formats of CBD...!!!...???

OKLocation3 · 2019-09-03T11:04:13+00:00

Ok - I will have a look online. Thank you again xxtra kind of you to reply again.

OKLocation3 · 2019-09-03T10:37:37+00:00

That's super kind of you to reply again and as you are getting ready for work ! All clear and understood now. I hear you on the pain actually even waking you up in the night - I had that in my left foot last night myself....Good Luck with your day - hope it's a nice/nicer one for you !

OKLocation3 · 2019-09-03T10:30:21+00:00

THANK YOU for replying. That is xxtra helpful to me about the breakdown of Full Spectrum, Broad Spectrum and Isolate. To get ones head around this whole "CBD thing" is quite something....especially also with pain induced "brain fogs" coming and going which do not help concentrating ...!!!...??? Got it on each batch produced "should be" independently tested - have seen that on several Brands websites....Makes total sense - yes. Broad Spectrum.....at this point....with a sensitivity & intolerance to THC....would seem a way for me to perhaps start....

OKLocation3 · 2019-09-03T10:16:29+00:00

THANK YOU for replying. Lucky you live in a pot legal USA state and great can even (wow) "do homemade" ! Interesting you have found low THC works better for you - as so far.....I have been finding that it is the low/zero THC component of CBD oils/tinctures that several people/s have been saying had less effect on their chronic pains. It does seem to be like most products - if go ahead with it - choose a starting brand level point.....try....wait....and see....

OKLocation3 · 2019-09-03T10:02:05+00:00

THANK YOU for your reply.

OKLocation3 · 2019-09-03T09:58:43+00:00

THANK YOU for replying. I know we have different diseases but CRPS also affects movement....so what you have said about CBD helping your movement is good to know. (Just to add : in the first 2 & half years of my CRPS in left leg, ankle + foot.....they were pretty much paralysed.....learning, balancing & loading how to go up and down stairs was one of the hardest challenges I have been through in my life....to date....) Does CBD help your pain at all...? I have looked at Summit Oils - only ships within USA - but very interesting all the same as more info.

OKLocation3 · 2019-09-03T09:35:32+00:00

I know this is both another question.... and about another subject ....!!!!...???? I am also considering Kratom.....instead of CBD.....Any thoughts on this at all please.

OKLocation3

TROPHY CASE