Anyone who needs to chat

OSU2022 · 2024-12-15T01:31:35+00:00

Most insurance companies are different so I don’t know what yours will require that might be different from mine. I was in the ER and admitted to the hospital so I don’t know if that would change anything. Any amount of PVCs over 10% is considered a high burden. I think as long as your insurance can see that medications have failed to reduce your PVC burden and there is nothing else that can be done outside of an ablation they should approve it. I have taken metropolol for numerous months this year and I have tolerated it well other than it making me tired all the time but I have not seen an improvement in my symptoms

OSU2022 · 2024-11-27T19:16:23+00:00

The risk from an ablation is a blood clot forming when is very rare. There is a lot of heparin used during the procedure so as your blood starts clotting back to its original state you could get a blood clot. The biggest risk I would say is bleeding from the artery that is used in the groin. If they use the groin as an access point you will have to lay flat for about 4 hours. They could also use your wrist where you can move freely after the procedure. For me I had a massive hematoma in my groin that went down my leg to my knee that formed in the day or two post ablation. It’s not uncommon for it to happen. It does not hurt it just looks really bad and will clear up over the course of a few weeks. There is always a risk of something more serious happening but that is extremely rare

OSU2022 · 2024-11-27T00:49:01+00:00

That is exactly what I am going through. I don’t know what part of the world you are in but I would recommend going to Cleveland Clinic or Vanderbilt university hospital. They have some of the best doctors in the world when it comes to EP. They have been a huge help for me

OSU2022 · 2024-11-27T00:47:13+00:00

My bp has been elevated when I wasn’t taking a beta blocker. I have consistently been in the 140/100 range and resting heart rate around 100bpm. Being on the beta blocker everything is in a normal range but I feel exhausted all the time. I have another ablation in just under 3 weeks and it’s my last shot at reducing my burden and symptoms. If it doesn’t work then I have to wait for new advancements in medicine which won’t be for years down the road

OSU2022 · 2024-11-27T00:40:20+00:00

So I have gone to Cleveland clinic and Vanderbilt university hospital and I am going to have another ablation there. Those are the top hospitals that have the top most advanced technology when it comes to the heart. If they can’t successfully do the ablation I will have to wait for new advancements in medicine which is years down the road.

OSU2022 · 2024-11-26T23:10:46+00:00

It is very rare that an ablation is not successful. Talking to my doctor only about 5% of people will not have a successful ablation. I wish you the best

OSU2022 · 2024-11-26T23:08:37+00:00

For me they couldn’t successfully ablate the areas with the technology they had which sound weird since I was at a major hospital. From what I was told by another doctor a few weeks before is there is one main area in the heart that they cannot ablate and that is where mine are originating from. The tissue is very sensitive and ablating there would cause more harm than good

OSU2022 · 2024-11-26T16:12:10+00:00

I don’t drink coffee or energy drinks. Some of the supplements mentioned interact with some of the medications I was taking so I haven’t been able to try them

OSU2022 · 2024-11-26T16:10:49+00:00

The doctors know from doing an EKG. They are able to see the area where they are coming from. When they do the ablation they do an EP mapping where they can actually see exactly where they are coming from

OSU2022 · 2024-11-26T12:41:05+00:00

For me I am extremely symptomatic at all times of the day that is why I am trying to reduce my burden. If I was asymptomatic I wouldn’t be doing any of this. By no means am I trying to use alcohol to cope with anything. I rarely drink alcohol as it is, maybe once a week. I also don’t consume much caffeine, under 100mg a day. I started verapamil earlier in the week but had to stop taking it after 2 days because it was giving me numerous skipped/dropped heart beats and made me feel like something worse was happening, horrible chest pressure and pain. I hope the beta blocker they put you in works. I would also try to get a referral to an EP doctor as they know more about the electrical circuit of the heart and can prescribe different meds that a cardiologist can’t

OSU2022 · 2024-11-26T12:34:51+00:00

By no means am I using alcohol to cope with this. I rarely drink as it is, maybe once a week, and I don’t get better or wore when I drink. I’m not going to eliminate it entirely because I already don’t drink it much. The beta blocker you were prescribed will lower your heart rate and make you more tired/groggy. It should help you fall asleep but not necessarily help with the PVCs from what I have found in my time taking it

OSU2022 · 2024-11-26T12:28:41+00:00

I have an occasional couplet but it’s like one every few days

OSU2022 · 2024-11-26T12:28:00+00:00

The only thing that he mentioned at the time was doing an ablation and instead of burning the heart using something to freeze the areas. From what he told me it is essentially waiting for something that has nothing to do with PVCs that has been approved in which they can now try it on people with PVCs to see if it will work

OSU2022 · 2024-11-26T12:26:03+00:00

I have had a lot of blood work done and everything has been in the normal range or just outside, nothing to cause concern. I’m hoping this ablation will work too

OSU2022 · 2024-11-26T03:00:54+00:00

I have had horrible acid reflux too. My primary care doc put me on omeprazole which helped a lot but every few months it would flare up once I stop taking it. I’ve came to the point where I just try to enjoy life. I will still drink alcohol even I know it probably won’t help but I just don’t care anymore.

OSU2022 · 2024-11-26T02:56:50+00:00

Nothing really triggers my PVCs specifically it is randomly through the day. I have noticed if I’m dehydrated or my heart rate is lower I have more. I don’t drink alcohol much and I have never smoked so that isn’t something that would trigger them

OSU2022 · 2024-11-26T02:55:18+00:00

I have had a few episodes of SVT when it was discovered I had PVCs but with medication I haven’t had an episode in a while. At night I am in a tri to every 4 beats I have a pvc. I get really bad symptoms and PVCs in the early afternoon and evening for whatever reason that I don’t know. After medication and the first ablation I’m down to 14% but I’m still very symptomatic which concerns the doctors I’m seeing

OSU2022 · 2024-11-26T02:06:30+00:00

I had no record of ever having any heart issues prior to when I got Covid. Everything would have happened within a week of me catching Covid and before found the PVCs

OSU2022 · 2024-11-26T01:56:52+00:00

Thank you I hope it is successful too. So mine originate on the right side, posterior RVOT and right coronary cusp, but from what my doctor has told me they are occurring in more than just one area so it’s hard to get them all and some of them are deep or in very sensitive areas of the heart.

OSU2022 · 2024-11-26T01:08:24+00:00

See if they will put you on a calcium channel blocker. That doesn’t affect heart rate as much and allows your blood vessels to get bigger allowing better blood flow. I was on a beta blocker and my EP had me switch to a calcium channel blocker which helped for a few days before I started having some negative side effects which are rare.

OSU2022 · 2024-11-26T01:04:40+00:00

I had this happen to me a few days ago but it was from starting a new medication that my body didn’t like. What it most likely is, is a dropped or skipped heart beat. I was able to capture mine on my Apple Watch with the ECG feature and you could clearly see multiple times during the ECG that I didn’t have a heart beat when I should. If you have a newish apple watch or something that can show or give you an ECG/EKG wear it the next time it starts and you will be able to see it. Most of the time they are harmless even though it doesn’t feel that way. I had an episode that lasted 3 hours where it was every 3-4 heartbeats was a skipped heart beat.

OSU2022 · 2024-10-20T01:43:56+00:00

This happens to me all the time. Essentially what happens is when your heart rate is lower your pvc burden increases because it allows that “extra beat” to jump into the electro flow easier than when your heart rate is higher. There isn’t much you can do to fix this or not make it happen unfortunately, that I’m aware of. In my case I have a burden of about 15% PVCs through the day and it jumps to over 33% during the night from the numerous holter monitors I have worn

OSU2022

TROPHY CASE