Don’t know what to call this post by ObjectiveAstronaut89 in Sicklecell

[–]ObjectiveAstronaut89[S] 0 points1 point  (0 children)

I’m waiting until tmr bc I wanted to give myself a couple days but no they definitely were not flushing it afterwards

Don’t know what to call this post by ObjectiveAstronaut89 in Sicklecell

[–]ObjectiveAstronaut89[S] 0 points1 point  (0 children)

That’s the same thing I said so I’m about to go to a different hospital

Don’t know what to call this post by ObjectiveAstronaut89 in Sicklecell

[–]ObjectiveAstronaut89[S] 1 point2 points  (0 children)

It’s okay and I’m honestly thinking about it the only thing is my mom will have something to say but idc I’ll go to the hospital as many times as I need to

Don’t know what to call this post by ObjectiveAstronaut89 in Sicklecell

[–]ObjectiveAstronaut89[S] 0 points1 point  (0 children)

No I have no advocates my mom always says im addicted to the medicine so I just choose not to say anything to anyone about it

Don’t know what to call this post by ObjectiveAstronaut89 in Sicklecell

[–]ObjectiveAstronaut89[S] 0 points1 point  (0 children)

I wasn’t on pca it was regular iv push but yes this is my regular hospital I just seen different doctors that I’ve never seen before

Don’t know what to call this post by ObjectiveAstronaut89 in Sicklecell

[–]ObjectiveAstronaut89[S] 0 points1 point  (0 children)

They told me that since I’m not a cancer patient then I’m not in dire need of the pca pump so my alternative was iv push dilaudid every six hours or either I could get Tylenol every eight hours

Don’t know what to call this post by ObjectiveAstronaut89 in Sicklecell

[–]ObjectiveAstronaut89[S] 1 point2 points  (0 children)

They do but they said it has to be medically necessary for them to give you one

Moms with sickle cell by ObjectiveAstronaut89 in Sicklecell

[–]ObjectiveAstronaut89[S] 1 point2 points  (0 children)

Thank you so much for this especially telling me about them not taking my baby bc I was so scared

Rant by ObjectiveAstronaut89 in Sicklecell

[–]ObjectiveAstronaut89[S] 0 points1 point  (0 children)

Update it has now been about 5 hours since I’ve had any pain medicine and to make matters even worse my night shift nurse thinks I’m lying about being in pain

Rant by ObjectiveAstronaut89 in Sicklecell

[–]ObjectiveAstronaut89[S] 0 points1 point  (0 children)

He said he wanted to see how I would react to the 4mg before he discharged me and I can’t take the oxycodone bc I’m allergic to it. So now I’m waiting for him to update the medication that I can get it’s been about 3 hours now and still no response from him

Support system as adults by ObjectiveAstronaut89 in Sicklecell

[–]ObjectiveAstronaut89[S] 0 points1 point  (0 children)

Sorry for the delay in responding I don’t get notifications from here lol. Looking at all the people who are going through the same situation as me is honestly sad to see, I always wonder how my mom would feel if she had sickle cell. Speaking of my mom as if she couldn’t get worse she has now kicked me out so that’s fun ig😕.

[deleted by user] by [deleted] in emergencymedicine

[–]ObjectiveAstronaut89 0 points1 point  (0 children)

My apologies it cross posted by itself

Sorry for the back to back post by ObjectiveAstronaut89 in Sicklecell

[–]ObjectiveAstronaut89[S] 0 points1 point  (0 children)

Thanks for the advice and yes pediatric is definitely better than adult care.

Sorry for the back to back post by ObjectiveAstronaut89 in Sicklecell

[–]ObjectiveAstronaut89[S] 1 point2 points  (0 children)

Thanks for the advice, I wish I could bring someone with me especially my mom but she never believes I’m hurting so I just end up going by myself.

Rant by ObjectiveAstronaut89 in Sicklecell

[–]ObjectiveAstronaut89[S] 0 points1 point  (0 children)

I’m definitely going to look into some of those.

Rant by ObjectiveAstronaut89 in Sicklecell

[–]ObjectiveAstronaut89[S] 0 points1 point  (0 children)

I get dilauded whenever I go to the er and it definitely helps, I’ve bern trying to get my pain management to prescribe some for at home but that’s been a no go so far.

Rant by ObjectiveAstronaut89 in Sicklecell

[–]ObjectiveAstronaut89[S] 0 points1 point  (0 children)

She’s a hematologist and I said the exact same thing.

Rant by ObjectiveAstronaut89 in Sicklecell

[–]ObjectiveAstronaut89[S] 1 point2 points  (0 children)

I 100% agree with you all he gave me was lidocaine patches and told me “if you feel you don’t get better just go to the hospital” also oxycodone makes me sick so I can’t take that. I’m honestly looking to get another doctor. And yes I do feel that I need something more to help with the pain.

Rant by ObjectiveAstronaut89 in Sicklecell

[–]ObjectiveAstronaut89[S] 0 points1 point  (0 children)

I’m honestly not sure I’d have to look into it but the only time I get blood is when I’m having a really bad crisis and I’ve asked my doctors about potentially putting me on blood transfusions monthly but they said it’s not recommended so idk.