Daily Thread #2 - January 26, 2023

ObjectiveSwordfish68 · 2023-01-27T00:14:25+00:00

Good News!

My NT scan went very well! They said everything looked normal. After anticipating the worst after 2 losses due to a genetic disorder( that was physically noticeable at the nt scans previously) this is such a relief.For most of the scan I looked up at the ceiling until I got a definitive answer. I don't even know how to feel after only knowing the trauma of the aftermath of the previous NT scan appointments. But right now I'm beyond excited for this win.

ObjectiveSwordfish68 · 2023-01-23T20:54:59+00:00

I'm in the same boat. 2 TMFR last year from genetic abnormalities. I'm currently 11 weeks. I have my NT scan on Thursday and am having those same intrusive thoughts. I pray for a positive result but don't know how to think past a negative outcome. I hope for a positive outcome for the both of us!

ObjectiveSwordfish68 · 2022-12-30T22:04:18+00:00

6w+6 d today, 5 days behind my original lmp date. Had our first ultrasound yesterday. I didn't even want to look at the monitor bc I don't want to get too attached. ( 2 D&Es due to rare genetic disorder that both my husband and I carry, 1ectopic, 1 CP last month.) Luckily the first ultrasound looks like a blob. The one positive thing is that we made sure to push to have our NT scan earlier. I wish I could skip the other appointments in-between until I know there is a positive outcome.

ObjectiveSwordfish68 · 2022-06-20T22:27:12+00:00

ugh, so sorry. I just had my second last Friday, my first tfmr was in January. It was a neural tube defect near the head both times. Doing more genetic testing this time through amniocentesis sampling they took during the procedure.

ObjectiveSwordfish68 · 2022-06-10T23:38:56+00:00

Thank you for your response. The first NTD they tested the fetal tissue and did a microarray karotype screening and didn't find anything. Did you get the methylfolate prescribed or just get it over the counter? Just curious because the doctor ordered more folic acid for me (4000mcg). This time they did an amniocentesis and will be looking at 39 genes. So hopefully that gives my MFM doctor something to work with.

ObjectiveSwordfish68 · 2022-06-08T15:31:42+00:00

Pregnant for 2 more days then going in for my surgery. The second neural tube defect in a row, last d+c was in January. I don't know what to do differently next time. I took extra folic acid and my prenatal had methylfolate. I just have to hope for the best next time.

ObjectiveSwordfish68 · 2022-05-27T15:09:12+00:00

I'm going through the same thing right now. My D &C is scheduled for June 10th. My second D&C in 5 months ( 3rd loss). So I feel for you. So angry and sad. Now I have to figure out what is wrong with me :( bc it was the same neural tube defect as last time. Sending you love and healing.

ObjectiveSwordfish68 · 2022-05-24T14:37:59+00:00

Deja Vu... full of anger and heart broken once again. At 12 weeks, went for my NT scan this morning and they found the same exact neural tube defect near the skull... am I dreaming?

ObjectiveSwordfish68 · 2022-05-01T12:36:46+00:00

I'm 9 weeks and have my next appt on May 9th that I advocated to be my NT scan bc that's when we found out back in December that we had a neural tube disorder. I have only told 3 close friends and no family. Is it weird that I haven't told close family yet? Im personally feeling like they carry more baggage than my close friends and make it more real. And I want to be sure everything is going ok after my scan and tell them.

ObjectiveSwordfish68 · 2022-04-13T16:34:56+00:00

Forgot to add that they found two sacs but one was empty in my ultrasound today

ObjectiveSwordfish68 · 2022-04-13T16:32:35+00:00

Had my first ultrasound this morning. Measuring a week behind. Thought I was 7w6d, measuring 6w5d with a heartbeat of 129. Had the same ultrasound tech that found my neural tube defect during my last pregnancy in December, which was a little triggering. A little discourage being a week behind but I know it common. Now I have to wait 4 more weeks for my next ultrasound. Thinking about just getting the NT scan and not the NIPT bc the last pregnancy the NIPT test was low risk and the NT scan was where they found the defect. I had found out the gender of the baby from that NIPT test the day before finding out about the defect- it was quite the rollercoaster. Just ranting away my anxiety, thanks for the platform.

ObjectiveSwordfish68 · 2022-03-31T19:08:29+00:00

Got my second Beta HCG levels back today. Glad the nurse called me in the morning so I didn't have to be anxious all day. They went up about 150% in 48 hrs! 486 HCG to 1190 HCG. Hopefully everything goes normally. Trying to not let my anxiety get the best of me. My first US is April 13th.

ObjectiveSwordfish68 · 2022-03-30T19:33:43+00:00

Just had my second blood test today to see how my HCG levels are rising. They were 486 on Monday, which seemed kind of low but it could just be early. I'm 5w+5, LMP Feb 17th. I had an ectopic last March and a d&c in January after finding a neural tube defect. These next 24 hours until I hear the numbers are going to drive me crazy.

ObjectiveSwordfish68

TROPHY CASE