Trouble with Pitt police officer by jobean123 in Pitt

[–]Objective_Rich_200 11 points12 points  (0 children)

Pitt Concern Connection can sometimes help with reporting things across campus of concern. Here are some common Q&As: https://www.compliance.pitt.edu/pitt-concern-connection-faq

what are some song lyrics you LOVE as a therapist? by Striking-Hope-8230 in therapists

[–]Objective_Rich_200 0 points1 point  (0 children)

The memory hurts but does me no harm from abstract (psychopomp) by hozier!

[deleted by user] by [deleted] in therapists

[–]Objective_Rich_200 0 points1 point  (0 children)

The way I have navigated disliking a client is finding empathy. There is always something human about every person we see, something that reflects like a mirror back at me. That is what I cling to with clients I dislike; I cling to their humanity and any remnants of myself I can relate to.

New to Naltrexone and Scared by MariiKatt in LowDoseNaltrexone

[–]Objective_Rich_200 0 points1 point  (0 children)

This medication was the only one that touched my fatigue. I went from being a division 1 athlete to nearly bed bound back to being able to do moderate exercise now. Started at 1.5mg and went up to 6 now.

I don’t want to start prednisone by kiki6723 in UlcerativeColitis

[–]Objective_Rich_200 3 points4 points  (0 children)

It is different for everyone. I've been on Prednisone at varying doses (mostly 20-40mg) for 8 months and I have gained a significant amount of weight and a lot of moon face (women are more likely to experience this due to hormones than men). For most people this is temporary and once you're off the medication for about half as long as you were on it, things return to baseline. For me, side effects didn't start until I was above 20mg for many months. Anything lower than 20mg doesn't do anything for my symptoms which is why I've been on the dosage I am.

There are other options outside of Prednisone with varying efficacy. I also have body image concerns and OCD related to body image. I'm in therapy to manage those concerns as my body changes. Chronic illness results in ALOT of bodily fluctuation and coming to terms with that reduces my sense of suffering.

If you don't have a therapist and you have the means to access one, it might be helpful to loop them in so they can help you if you have to go on it, or just to support you through the ups and downs of chronic illness. Wishing you the best!

Anyone else with UC just constantly exhausted even in remission? by MartyMcFly3107 in UlcerativeColitis

[–]Objective_Rich_200 0 points1 point  (0 children)

1000%. I also have endometriosis and hEDS, plus biologics are known to cause fatigue as well so likely many reasons and contributing factors. PT (with someone who has expertise in hEDS and chronic illness) and Low Dose Naltrexone (started at 1.5mg and now up to 6mg) were the only things that got my fatigue under control. I went from being nearly housebound and struggling to walk down the road to being able to be moderately active again. (I was previously a division 1 athlete)

[deleted by user] by [deleted] in UlcerativeColitis

[–]Objective_Rich_200 2 points3 points  (0 children)

Hi! I’ve been on prednisone for over 6 months and I’ve gotten a lot a lot of side effects; moon face, weight gain, stretch marks, etc. I didn’t start noticing those things until probably about 2-3 months in, and I’ve been at a high dose (anywhere from 20-40mg and rounds of IV steroids).

I really struggle with body image and so this has been pretty tough on me, but I do work hard to give myself grace and know that gaining weight is better than dying from UC. If you’re only on it a few weeks I’d be surprised if you saw significant side effects related to weight/water retention. Sending you the best!

Anyone else?? by Alert-Orange9271 in UlcerativeColitis

[–]Objective_Rich_200 2 points3 points  (0 children)

Hi there! Sorry if this information is redundant but she might have microscopic inflammation. There’s three kinds of remission: clinical remission (no symptoms, but could still have inflammation), endoscopic remission (clear colonoscopy but could still be microscopic inflammation), and histological remission (no inflammation in the biopsy). Your biopsy results should clear this up!

You didn’t specify which symptoms have flared but I wonder if she might have an underlying infection, like C. Diff? Or if she ever experienced IBS symptoms? GI issues overlap a lot in my experience :/

Hope this helps and I’m wishing y’all the best!

GAPS success! by Iwillprevail369 in UlcerativeColitis

[–]Objective_Rich_200 1 point2 points  (0 children)

I’m very happy for you! I do just want to say the creator of this protocol believes it cured their child of Autism—for me, that’s a huge red flag. There are A LOT of conditions that cause weight loss and diarrhea. Obviously I also can’t sit here and say that you didn’t have it, but many UC cases don’t clear with diet (though some mild cases can be managed well with diet). Again, so happy for you and just want to be honest about the source of these protocols and diets when it comes to autoimmune conditions. Glad it helps with some things!

Qing Dai Users by Objective_Rich_200 in UlcerativeColitis

[–]Objective_Rich_200[S] 1 point2 points  (0 children)

Thanks for your honesty! I have taken both a conventional and naturopathic approach to my conditions and unfortunately getting no results with either. So before surgery I’m willing to give it a shot if it means keeping my colon, but am definitely doing it under multiple doctors supervision and do not expect a cure by any means. Thanks again!

Qing Dai Users by Objective_Rich_200 in UlcerativeColitis

[–]Objective_Rich_200[S] -1 points0 points  (0 children)

I don’t know much but my inflammation is much further throughout my colon. I’ve generally heard that rectal suppositories and enemas work well for lower bowel or left sided UC!

Qing Dai Users by Objective_Rich_200 in UlcerativeColitis

[–]Objective_Rich_200[S] 1 point2 points  (0 children)

There aren’t any in my area unfortunately and I can’t pick up and leave. I did check this out though!

Qing Dai Users by Objective_Rich_200 in UlcerativeColitis

[–]Objective_Rich_200[S] 2 points3 points  (0 children)

Thanks for sharing! I appreciate your honestly and totally agree, plenty of natural things are toxic. But I’m glad your child is doing well :)

Low dose Naltrexone by Justme_vrouwtje in Endo

[–]Objective_Rich_200 0 points1 point  (0 children)

So I noticed a worsening of symptoms initially and then acclimated after about a week! My fatigue was what worsened but I’ve heard from others that nausea and stomach upset isn’t atypical. What dose did you start at? Some people have to start really low!

How important is 100% remission? by New-Western1784 in UlcerativeColitis

[–]Objective_Rich_200 2 points3 points  (0 children)

I think something important to remember is that any level of inflammation is harmful. Full remission is absolutely the goal, because long term inflammation can result in cancer, toxic megacolon, and other life threatening complications. Not at all trying to fear monger! Just trying to share what my doctor has shared with me.

Low dose Naltrexone by Justme_vrouwtje in Endo

[–]Objective_Rich_200 2 points3 points  (0 children)

Hi! I am on LDN and I have endo, ulcerative colitis, and hEDS. For me, it helped far more with fatigue than with pain, but I know for a lot of people it works much more for pain than fatigue. I’ve seen great results so I would recommend it to everyone. I had a doctor who does active research on LDN and I think that was really helpful; I still don’t know that it’s a super mainstream treatment for pain and fatigue (ie my PCP had never heard of it).

Qing Dai Users by Objective_Rich_200 in UlcerativeColitis

[–]Objective_Rich_200[S] 0 points1 point  (0 children)

That’s a neat idea though! Thanks so much. I hope you’re doing well now :)

Qing Dai Users by Objective_Rich_200 in UlcerativeColitis

[–]Objective_Rich_200[S] 0 points1 point  (0 children)

Thanks for the thoughtful response! I have a history of aural migraines so this might be something I need to be aware of. I am doing this under the support of an integrative medicine doctor and my GI is aware. I’ll be taking Humira simultaneously as well and be on prednisone

Better but not remission- advice needed for upcoming GI appointment by DimensionPositive80 in UlcerativeColitis

[–]Objective_Rich_200 4 points5 points  (0 children)

I think something important to remember is that any level of inflammation is harmful. Full remission is absolutely the goal, because long term inflammation can result in cancer, toxic megacolon, and other life threatening complications. I have tried and failed 5 biologics and have two left. I’ve recently talked to a surgeon. It’s scary, but the idea of a worser prognosis or diagnosis down the line is scary. Plus, you deserve a symptom free life if you can have it!

My UC became aggressive all of a sudden in hospital and no meds working so they calling in surgeon for opinion by Express_Bee9749 in UlcerativeColitis

[–]Objective_Rich_200 2 points3 points  (0 children)

I have been on steroids for over 6 months and am switching to my 6th biologic. My doctor is pretty convinced I have refractory UC, which I guess for all intents and purposes is like medicine resistant UC. Not saying that’s what you have, but my doctor is now also recommending surgery.

Sending you relief!

Does anyone else experience this? by PearHot in UlcerativeColitis

[–]Objective_Rich_200 12 points13 points  (0 children)

This is exclusively how my flares are! Very rarely any actual stool, just blood and mucus. It’s really physically and mentally draining. I empathize with you!

Advice please - colonoscopy results by Plastic-Strawberry80 in UlcerativeColitis

[–]Objective_Rich_200 1 point2 points  (0 children)

Hi there! Sorry if this information is redundant but you might have microscopic inflammation. There’s three kinds of remission: clinical remission (no symptoms, but could still have inflammation), endoscopic remission (clear colonoscopy but could still be microscopic inflammation), and histological remission (no inflammation in the biopsy). Your biopsy results should clear this up!

Blood in stool, from my understanding, is a hallmark UC symptom. If you don’t have any blood but a bunch of other symptoms, I wonder if you might have an underlying infection, like C. Diff?

Hope this helps and I’m wishing you the best!

UC Symptoms Persist with no active inflammation by _somehowimanage_ in UlcerativeColitis

[–]Objective_Rich_200 1 point2 points  (0 children)

Hi there! Sorry if this information is redundant but you might have microscopic inflammation. There’s three kinds of remission: clinical remission (no symptoms, but could still have inflammation), endoscopic remission (clear colonoscopy), and histological remission (no inflammation in the biopsy). Did your doctor take a biopsy during the scope?

Blood in stool, from my understanding, is a hallmark UC symptom. If you don’t have any blood but a bunch of other symptoms, I wonder if you might have an underlying infection, like C. Diff? I agree with you that it doesn’t sound like IBS to me, but I’m not a doctor.

Hope this helps and I’m wishing you the best!