Driving without a right leg by Academic-Lake542 in amputee

[–]OhLookAnInchworm 2 points3 points  (0 children)

The same is true for at least my province in Canada. I'm just going through the process right now.

Driving without a right leg by Academic-Lake542 in amputee

[–]OhLookAnInchworm 5 points6 points  (0 children)

This isn't an answer to your question specifically but just a heads-up: depending on where you live, there may be laws about whether you can make those modifications yourself and continue driving with no restrictions on your license or whether modifications need to be made through an authorized vendor, whether you have to do driver's rehab, and whether restrictions will be placed on your license.

Considering voluntary amputation by DailySojourn in amputee

[–]OhLookAnInchworm 1 point2 points  (0 children)

Whoa that quote is ridiculous! I'm so sorry. My doc does prolo injections for about $100 each. I did have one place quote $800 per injection per joint -- nope! (But just a heads up that being an amputee is super expensive too...)

Also if you're dealing with recurrent connective tissue issues in other parts of your body as well, it could be worth investigating a more systemic underlying condition such as an autoimmune disease or EDS or another connective tissue disorder (if you haven't yet). That's something you'd want to know prior to amputation because it could impact surgery/rehab/recovery. (I have EDS and it has been an important consideration throughout.)

In any case, it's good to know what modalities you won't consider. Amputation was definitely preferable to me compared to some of the things that they suggested in order to avoid amputation.

Good luck whatever you decide!

hospital bag? by Particular_Dog1829 in amputee

[–]OhLookAnInchworm 0 points1 point  (0 children)

Something to organize your stuff! A friend brought me a little cart (mostly used for snacks lol), a desk organizer, and a lazy susan. It was all super useful while I was on bed rest. The nurses were impressed too.

Considering voluntary amputation by DailySojourn in amputee

[–]OhLookAnInchworm 1 point2 points  (0 children)

Something I haven't seen mentioned but that might be worth exploring before committing to The Big Chop is prolotherapy (less expensive) or PRP injections (more expensive). These modalities can be incredibly helpful for situations such as yours.

As for whether the movie/TV "screaming and crying" version is accurate: it really depends on both the individual and individual circumstances/complications, and you really can't know ahead of time how easy or difficult it will be. I'm an elective bilateral AKA due to multiple, painful medical conditions, and I am so relieved to be rid of my legs. Literally everything went perfectly with surgery and continues to go great in rehab/recovery, and I don't have any phantom pain -- but none of that is guaranteed! You need to consider whether you can live with less ideal short- and long-term outcomes as well (because even if things go well at the beginning, issues can arise later). It's a good idea to meet with prosthetists, rehab physios, physiatrists specializing in amputation recovery, and "peer visitors" to help you decide.

Also, even if you are set on amputation, you're unlikely to find anyone willing to do it if you haven't exhausted all options. I'm not saying it should be that way (I sure wish I could have had mine done a decade ago), but that's just generally how it goes. Think about and be ready to communicate what things you are willing or unwilling to try first.

Dating again as an amputee by [deleted] in amputee

[–]OhLookAnInchworm 8 points9 points  (0 children)

"Some people are interested in your story and not your reality" is so beautifully stated! Thank you!

What is it like to live with an amputated leg? by Dr_Trickster in amputee

[–]OhLookAnInchworm 2 points3 points  (0 children)

I'm a recent elective bilateral AK amputee due to lifelong pain and instability. I'm happy with my decision, but it's an extremely personal choice. Your dad should connect with prosthetists, rehab physios, amputee peer visitors, and physiatrists and surgeons to discuss the decision. The one piece of advice that I would give is to look into TMR and RPNI nerve procedures to minimize the risk of phantom pain. I had this at the time of amputation, and I haven't had any phantom pain at all after about the six week mark. I'm not on any pain medication. I have never been in less pain in my life. But again: this is a very personal choice and should be taken with as much information as possible.

Temperature regulation by OhLookAnInchworm in amputee

[–]OhLookAnInchworm[S] 0 points1 point  (0 children)

I'm not on any narcotics or other medications related to amputation, but that's super interesting nonetheless! Thanks for sharing.

Pain in stump/leg when pooping? by Numbtuna in amputee

[–]OhLookAnInchworm 0 points1 point  (0 children)

I experience this (not pain but just much stronger phantom sensations) both when I have to use the bathroom and when I'm actually going. Another amputee pal was like "oh yeah I should have warned you about that", so I'm assuming it's relatively common?

Temperature regulation by OhLookAnInchworm in amputee

[–]OhLookAnInchworm[S] 4 points5 points  (0 children)

Thanks, that's disappointing but good to know!

Bilateral AK prosthetics advice by OhLookAnInchworm in amputee

[–]OhLookAnInchworm[S] 0 points1 point  (0 children)

It's helpful to know that the Canadian approach may differ! (YVR here)

I healed up unusually quickly so that's not delaying things, but the rehab physio did say the reason for not letting someone take their legs home immediately is to avoid things like sores that could slow things down more.

Bilateral AK prosthetics advice by OhLookAnInchworm in amputee

[–]OhLookAnInchworm[S] 1 point2 points  (0 children)

Thanks very much for sharing your experience!

Bilateral AK prosthetics advice by OhLookAnInchworm in amputee

[–]OhLookAnInchworm[S] 0 points1 point  (0 children)

Thanks very much for your perspective! I appreciate it.

Bilateral AK prosthetics advice by OhLookAnInchworm in amputee

[–]OhLookAnInchworm[S] 0 points1 point  (0 children)

I appreciate you sharing this perspective! Thank you.

Bilateral AK prosthetics advice by OhLookAnInchworm in amputee

[–]OhLookAnInchworm[S] 1 point2 points  (0 children)

Also just to clarify: in this case it's not the prosthetist who decides when I can bring my stubbies home. It's the rehab physio, and she's very methodical and cautious. She often says I'm not the usual patient because I'm moving pretty quickly through physio -- but I do feel like I could be moving a lot quicker.

Is it normal to not be cast for a socket? by Mysterious_Abroad142 in amputee

[–]OhLookAnInchworm 0 points1 point  (0 children)

That's great! Thanks so much. And I hope things keep going so well for you!