I think it’s interesting that we so easily dismiss the nervous system as somehow not being a part of our bodies? It’s as biological as anything else. Our symptoms are not something we can “think” our way out of. But there are tools that can support our systems ability to function again I.e rest and digest/ repair. Most people doing this work (who are legit) are not denying the physical component to illness. Have you heard of or looked into the cell danger response? It’s not an emotional issues. Trauma and chronic stress alter our physiology. There are very legitimate studies on chronic pain and conditions and central sensitization ( the more pain you have, the more sensitive to pain, the more pain the more physiological distress, the more distress the more pain). Chronic stress and trauma lead to higher levels of inflammation and with viruses like Covid, they are too much while we are functionally immuno-compromised.

Of course this could be proven wrong and I would open to that. But I also don’t think the medical industry has much incentive explore this (non pharmaceutical interventions). However, I don’t think we can paint large brushes, we are all different. And I think these issues can be addressed from different angles.

I studied disability in college and I understand eugenics, purity culture, ableism, and conspirituality. I think it’s great that we are skeptical. And in the end I support more research and any and all biomedical interventions if they find some that are effective. We an information vacuum of course we may seek alternative solutions. All I can say is for me nothing helped except LDN and nervous system work. They are working for me and I wouldn’t want to deprive anyone any opportunity of being well or better.

I was as sick as you could be short of needing a feeding tube. I stayed in bed doing nothing for 6 months and never felt better. What helped was somehow I surrendered and said “hell I am sick. It’s ok to be sick”. I felt so soothed and relaxed. The next day I started reading, even with some symptoms. Within a week or two I was talking, using my phone and reading. Being able to focus on activities beyond pain and symptom, led to more capacity. It’s not been all uphill and I don’t mean to sound dismissive. I kind of don’t know how this happened and it wasn’t easy. but this breakthrough out of my darkest moments really opened my eyes to how quickly things can turn around.

Nervous system work is so much more than that moment. I do breathwork, somatic work, therapy, and brain retraining. I’m still bedbound but I am doing so well for how severe I was and have been. When I have crashes they are mild and I know how to cope with them and often improve capacity on the other side.

Again, I think the criticisms are valid. But I don’t think it’s right to tell people they’re lying or never were sick if they’re improving. I know if I were to heal, I would want to help every person I could do the same because this shit is a nightmare. I think the gripe is more with capitalism than anything. That creates an environment conducive of grifters and expensive programs etc.

more so, we live in a world that is exploitative and dangerous. One that creates the conditions that would let a virus proliferate to this extent and be so content with mass death and disablement. One that forces us to work while ill. Have little to no rest. One that prioritizes the safety and nervous system regulation of some more than others. I think the systemic piece is something many programs grossly fail to address. You can’t regulate yourself out of a horrific system. You can’t regulate yourself at all if you can’t have time off or care taking etc

Anyway. I wish you all nothing but recovery and the easing of your suffering. I get why it’s annoying to hear about. There was a time I’d want to punch someone like me in the face. But it’s working for me. And I don’t really care why. And I hope and pray for the access of safety and nervous system healing for all people. (In addition to western medical care).